Vaginal Hysterectomy - TVH/BSO - Kidney transplant and Lupus - Kim's Story

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Vaginal Hysterectomy - TVH/BSO - Kidney transplant and Lupus - Kim's Story

Vaginal Hysterectomy - TVH/BSO - Kidney transplant and Lupus - Kim's Story

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Options to Hysterectomy
Pre-Op Hysterectomy
Post-Op Hysterectomy
Hormone and Menopause
Intimacy after Hysterectomy
Pelvic Floor
Fitness after Hysterectomy
GYN Cancer
Grief and Loss
Endometriosis
Uterine Fibroids
Hysterectomy Stories
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I was diagnosed w/ lupus at age 21, so I've been w/ it and it w/ me for (gulp, age admittance time) almost 20 years. I subsequently developed kidney involvement (due to lupus) and also took Cytoxan, high dose Pred (dread)nisone and all the rest. Eventually I weaned myself off the evil nasty drugs (not Dr Recommended, by the way) and decided surely that dialysis and transplant were better than living the nightmare of cytoxan AND high dose prednisone.

Cut to the chase: started dialysis in May 1987. Expected quick transplant but sadly lived in bad part of country (slow, less organs recovered, Midwest) and dialyzed for 4 years before moving to Florida (fast! best state to live in if you are waiting for a kidney tx.) In 5 weeks I received my kidney tx. The entire Midwest doctor's had balked at tx'ing a lupus pt. but the docs here said I was a fine candidate and YOU BETCHA! Almost 9 years later here I am!

Since then I had to have one ovary/tube removed due to cyst, then had some problems with breakthrough bleeding on periods and abnormal paps, dysplasia, etc. Because I am at greater risk for Cancer being on immunosuppressive meds, I opted for a TAH but luckily it got done as a vaginal hyst, they took it all out. No more risk for ovarian, cervical or uterine cancer. Now, granted, at 40, I had long since abandoned the idea of having kids but in my 20s and 30s I mourned.

Since the Hysterectomy I have been on Premarin, four different patches, and two versions of EstraTest (both hi and low). Ultimately, for the best outcome of my kidney function, I went off all synthetic/medical/prescribed hormonal replacement and am taking daily: Estroven, 2 soy isoflavone capsules and 2 black cohosh capsules. I take FOSAMAX once a week for calcium, plus also daily calcium and magnesium. (This in no way describes my total pill/supplement regimen, just the hormonally related stuff).

I feel wonderful. Now that I'm off the Rx hormones I am losing weight, not holding water, my kidney numbers are awesome, I'm full of energy, I work a full time job, am on call round the clock 25 days a month, and an also at the helm of one of Florida's largest jazz charity events! AND I WORK OUT, TOO! So there. 40, energetic, no more periods (oh happy day), and even the libido is hanging in there.

I encourage you to do research, and beyond everything else: You must keep your attitude POSITIVE! It has impacted me tremendously to be up, optimistic and have a can-do, "BRING IT ON, BABY!!!" attitude. I'm only on 5mg of prednisone, too, so we cannot blame my energy on that. HEALTHY PEOPLE MARVEL AT ME.

All I can say is, it's "Joie de vivre" or JOY FOR LIFE! Live each day as if it is your last, make the most of it, and thrive through the Hyster Sister support network. All my best with a grin, a hug and lots of LUPUS LOVE!

Kim/Fort Myers, FL

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Recommended for Hysterectomy Recovery

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The Great Binder Set - We have made it very easy for you and combined the two best binders and the Silky Sac into a great set to save you money! Our favorite is the Perfect Pocket binder with cold/hot packs!
Deluxe Hyst Prep Set - As you plan, we've gathered the best products into one set for special pricing.
Post-Op Panty - These great panties speed recovery, and reduces scarring. They contain a medical-grade silicone panel over incision to reduce scar's apperance while they provide support to weakened muscles and tissues from surgery. Excellent!
Softest Bra Ever - When you want to wear something, but feel nothing. This is the softest bra ever, in microfiber with no hardware or tags to chafe or dig! The comfort-ribbed underband stays in place gently, so it is perfect for sleeping and lounging.
HysterSisters Accessory Kit - Are you a HysterSisters fan? This set has a fun collection of HysterSisters items.
Very Private Moisture - Once your doctor gives you the green light for intimacy, this is the stuff! This is a best selling product with a high rate of permanent, satisfied, repeat customers! Relieves vaginal dryness instantly, protects tissue & enhances intimacy. "Buy it for the problem, use it for the pleasure."

Vaginal Hysterectomy - TVH/AP Repair - Pat's Story

Find A Doctor Near You

Melanie Bone, M.D. 5301 S. Congress Ave. Atlantis FL 33462 561-548-8600	Amie Napier, M.D. Medical City Hospital 7777 Forest Lane Suite A331 Dallas TX 75230 9725667760	Aram Bonni, M.D. 25108 Marguerite Parkway Suite A-259 Mission Viejo CA 92692 949-916-2100
Quanita Crable, M.D. 8160 Walnut Hill Lane Ste. LL-001 Dallas TX 75231 (469)364-3764	Brad Cohen, M.D. 2477 Route 516 Suite 103 Old Bridge NJ 08857 732-679-6900	David Mainman, M.D. Desert Bloom Obstetrics & Gynecology 6452 E. Carondelet Drive, Suite A Tucson AZ 85710 520-885-5300
Ken Sinervo, M.D. 1140 Hammond Dr., Ste. F6220 Atlanta GA 30328 770-913-0001	Sean Kossari, M.D. 14901 Rinaldi Street Suite 320 Mission Hills CA 91345 818-365-1616	Charles Miller, M.D. 120 Osler Drive Suite 100 Naperville IL 60540 630-428-2229

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