TVH - My Story - Hystersisters Hysterectomy Article

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TVH - My Story

TVH - My Story

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My surgery is schedled for 2-27-01

I have had an awful last couple of years. I was having pain from what I knew was ovarian cyst. I was young, and afraid I was going to have to have a hysterectomy. I wasn't ready to have any more children (I have one daugeter who was three) My gyno did a laporoscopy, and after several weeks of recovery, I was pain free. A year and a half later,I had an abnormal pap. I wasn't seeing my regular gyno because I didn't have insurance, so I was going to a community clinic attcahed to the local med school. The doctor there told be I needed a LEEP. It was so painful, and I bled heavily for six weeks because the idiot doctor/student dropped the tool inside of me. After the path reports came back, they said I had cervical cancer, and would need a hysterectomy. I decided to go to my gyno. YHe said everything was fine, and that I had been a guine pig. I was furious.

Everything went well for about a year, then I started having pain from what I knew to be cysts. I convinced my gyn to do an ultrasound, and sure enough I had a cyct on each ovary. They were very small, but since I was in so much pain, he did a lap, during which he descovered I had endometriosis. He got about 70%. I was devistated, and did lots of research. After I recovered from the lap, I had one pain free week. Another ulrtasound showed two more large cysts on each ovary. I was in A LOT of pain, and he did another lap, removed the cysts and remaining endo. Again, after recovery I had one pain free week. I went back to the doctor, and he did an exam. A week later I had another lap, as my right ovary had been fused to my abdominal wall by endo. It was at this time that I was faced with the decicne on wether or not I wanted more children. I was told that now would be a good time, as I would in all likelyhood need a hysterectomy (I refused to have lupron) After some convincing to my husband,I tried to get pregnant. After a coulple of months, I was worried. I had a blood filed cyst on one ovary, and much scar tissue on the other, and I was afraid I wouldn't get pregnant again. To my surprise, the pregnancy test came back possitive. I was worried about ther cyst thought, and the possibility that it would interfere. I was in a great deal of pain, and my doctor order an ultrsound. Imagine my surprise and dismay when the ultrasound showed that I was pregnant with triplets. I was shocked and scared at first, but adusted to the idea, and was very excited. The cyst went away, and the migraines started. I spent a lot of time in bed, which angered me because I knew I would spend a lot of time there. I had my first pre term labor pains in early july (I was due in December) By August first, I was in the hospital on magnesium. By august 19th, my babies were born at 23 weeks, all three weighing in at 1 pound. Two days later, my second born son died of heart faliure. The very next day my first born son passed away from kideny and liver failure. Lossing the second one was the hardest, because I felt that even if I took two home, it was still multiples. No mater how well we thought we had prepared ourselves for the loss of our children, I thought I was never going to be me again. On December 27th, 2001, we brought our daughter home from the hospital. She sis very well, we had pretty much only ups, and not many downs with regards to her health. That is until now. Last week she had surgery to put a shunt in. Prior, the CT scan showed that she had some abnormalty in her brain that most likely will affect her movement, ability to walk ect. She doesn't look at me, and I am worried about her sight. She had some trouble in the hospital with her eyes, but avoided surgery. I still think there is something wrong, even though the surgen said she is fine. Her ears canals are so small that they can't get a reading for her hearing, but I think she does have some at least. One month after I had my babies, the cysts and endo came back. My gyn is no longer practicing here, and I had to find a new doc. I thought that I wanted to get pegnent again, so I refused the lupron. After lots of soul searching, I have decided I didn't want any more children, and besides, it wouldn't be fair to bring another child into the family when we will have a handicapped child. I have been through too much to think about losing another child due to miscarrige or what ever, because the endo has gotten worse. I am 28 yrs old, and I convinced my new doctor to do my hysterectomy. Even if I wanted more children, we would have to wait two to three years because of the health of our baby, and I cannot find any doctor to give me meds for the pain. I cannot give my children the care they deserve when I am in this much pain. My oldest daughter has already missed out on so much because of my health. I jsut wqant my life back. I just want ME back. We only planned on having two children anyways, it was just the loss of my identical twin boys that prompted me to want more, and I didn't even want more children, I just wanted to be pregnant. I was so looking forward to being pregnant, and felt robbed when I delivered so early. I am looking forward to this surgery. I want it to be over, and my life to go on. I have so much ahead of me, besides, we can always adopt. I have one 23 yrs old sister, who will have shildren soon, and I owe her a lot of babysitting.

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Amie Napier, M.D. Medical City Hospital 7777 Forest Lane Suite A331 Dallas TX 75230 9725667760	Francisco Garcini, M.D. 1870 Silver Cross Blvd Suite 210 New Lenox IL 60451 815-463-3000	Robert Castle, M.D. 3650 Joseph Siewick Dr. #203 Fairfax VA 22033 703-391-1500
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