HysterSisters Articles for Hysterectomy
SHARING IS CARING
Endometriosis Recurrence after Hysterectomy
From the Endometriosis Articles List
I am considering having a TAH/BSO for endo, but my doctor told me that it can come back after the surgery. Why go through all the struggle if it’s going to return?
It is true that endometriosis may exist following a hysterectomy and oophorectomy
. Often, however, it is not so much that endometriosis returns, but rather that it was not all removed during surgery.
Endometriosis occurs when endometrial like cells implant in various places outside the uterus, including on the ovaries, Fallopian tubes, ligaments, bowel, bladder, pelvic side wall, exterior of the uterus, and other areas of the pelvic cavity. Endometriosis can also implant outside the pelvic region including on the diaphragm, lung, and brain. The implants can be difficult to locate and remove, especially when they exist on delicate organs such as the bowel.
Unfortunately, at this time there is no medically-proven cure for endometriosis though excision surgery
may offer the most optimal results. There are documented cases of endometriosis persisting despite a complete hysterectomy and oophorectomy. The Incidence of Endometriosis in Posthysterectomy Women
concludes that "endometriosis will be found at laparoscopy in a significant number of women with chronic pelvic pain status post hysterectomy with or without BSO."
The key for successfully treating endometriosis is the skillful locating, recognizing, and excising of the implants. For some, a hysterectomy with or without an oophorectomy may also be necessary.
The decision to have a hysterectomy is a major one. Each woman has to consider her own circumstances and health situation to determine what is best for her. One of the best things a patient can do is learn all she can about her endometriosis so she can make the most informed decisions. The Endometriosis Resources
and Endometriosis Information
page here on the site are a good places to start.
If you are considering having a hysterectomy for endometriosis, HysterSisters.com members who have experienced this same condition advise you to seek at least a second (or third and fourth) medical opinion prior to scheduling surgery. If at all possible, consulting with an endometriosis specialist
can be wise. If there are any other treatment options available, you might want to try them first.
If you do decide to proceed with a hysterectomy, having the most skilled surgeon you can find to do the surgery so that as much endometriosis as possible may be recognized and removed could offer you the most optimal outcome. If you decide to have your ovaries removed, you would also benefit from working with a doctor who is very knowledgeable regarding both endometriosis and HRT (hormone replacement therapy). Although estrogen is the fuel for endometriosis, hormones are also beneficial and critical for many aspects of overall health, including the functioning of the heart, bones, skin, eyes, libido, and more.
If endometriosis persists following surgery, more than likely you will notice because of pelvic pain, bloating, or a change in bowel movements. The symptoms will probably be similar to what you experienced prior to your hysterectomy. However, experiencing pelvic pain or bowel issues does not necessarily mean that endometriosis is the culprit. It is easy for endometriosis patients to assume that any pain from the bottom of the rib cage to the thighs must be endometriosis, but there can be a whole range of conditions that can cause pain in this area of the body. Women with endometriosis often have other co-existing health issues
that may need to be diagnosed and treated. Keeping a detailed symptom diary
can be critical for determining the cause of symptoms.
It is important to remember that not all women will have problems with endometriosis after their surgery. Each patient must choose the best for her, talk to her doctor about preventing endometriosis recurrence
, and then hope for the best. While there is no guarantee that one’s future will be free from endometriosis after surgery, there also is no guarantee that it will not
This content was written by staff of HysterSisters.com by non-medical professionals based on discussions, resources and input from other patients for the purpose of patient-to-patient support.
08-09-2007 - 03:02 PM
SHARING IS CARING
Do you have a question?
If you have a medical support question related to this article, come JOIN US in our HysterSisters Community Forums. You will receive helpful replies to your questions from our members. See you there!
Recommended for Hysterectomy Recovery
Mesh panties are stretchy and light - perfect for holding peri pads securely during hysterectomy recovery. [...More]
Post-operative compression panty with medical grade silicone to speed hysterectomy recovery + reduce scarring. [...More]
Softest Bra Ever
When you want to wear something, but feel nothing. Two in a value pack for your hysterectomy recovery. [...More]
Options to Hysterectomy
Hormone and Menopause
Intimacy after Hysterectomy
Fitness after Hysterectomy
Grief and Loss
Ask A Doctor
Find a Surgeon
|Mayra J. Thompson, M.D.
5323 Harry Hines Blvd Dept OBGYN
Dallas TX 75290
|Mini Somasundaram, M.D.
3600 Olentangy River Rd
Columbus OH 43214
|John Miklos, M.D.
3400 Old Milton Parkway
Bldg. C, Suite 330
Alpharetta GA 30005
|Megan Daw, M.D.
Western Carolina Women's Specialty Center
2100 Ridgefield Blvd
Asheville NC 28806
|Siobhan Kehoe, M.D.
Gynecological Oncology Clinic - SW Med
2201 Inwood Road Suite 106
Dallas TX 75390
|Arnold Advincula, M.D.
Columbia Ob/Gyn Midtown
51 West 51st St, 3rd FL
New York NY 10019
|Quanita Crable, M.D.
8160 Walnut Hill Lane
Dallas TX 75231
|Jennifer Hayes, M.D.
Visionary Centre for Women
2695 Ulmerton Rd
Clearwater FL 33762
|James Zolzer, M.D.
235 Medical Park Rd Suite 201
Mooresville NC 28117