HysterSisters Articles for Hysterectomy
SHARING IS CARING
Why Am I Having Endometriosis Symptoms Years after a Hysterectomy?
From the Endometriosis Articles List
I was diagnosed with endometriosis and had a TAH/BSO over 10 years ago. I used HRT for the first two year before quitting. Suddenly, I have symptoms that lead me to believe that endometriosis is back. Can endometriosis be an issue this many years after a hysterectomy and oophorectomy?
The BJOG: An International Journal of Obstetrics and Gynaecology
published Laparoscopic Excision of Endometriosis: The Treatment of Choice?
which stated, "Endometriosis is an extra-uterine disease, and the aim of treatment should be to remove all the extra-uterine disease while retaining all the healthy tissue including the uterus and ovaries." Endometriosis surgeon Dr. Tamer Seckin further comments, "Patients are sometimes misled to believe that the only long-term solution is removal of all female reproductive organs - a myth. Endometriosis is not cured by removal of the reproductive organs. This dangerous misconception in the medical field is responsible for countless, needless hysterectomies performed each year."
Removing the uterus and ovaries does not cure endometriosis. If all of the endometriosis is thoroughly and meticulously excised by a skilled endometriosis specialist, recurrence of endometriosis is low with or without removing the reproductive organs. However, when incomplete removal of the implants occurs, recurrence is higher. One of the areas were endometriosis can be missed is the peritoneal surfaces where it may go undetected and thus untreated.
What some women and doctors do not realize is endometriosis can create its own supply of estrogen. Thus, even if you have had a hysterectomy with oophorectomy and you have chosen not to use HRT, you could still have issues with endometriosis. It can be self sustaining. Over time, the implants can increase to the point where they begin to cause symptoms, and/or the implants allow for the creation of adhesions which may lead to symptoms.
Some of your symptoms may also be related to no or low estrogen. Women who choose not to use HRT in an attempt to prevent endometriosis recurrence can inadvertently open the door for new health issues.
Women with endometriosis also have a higher rate of some co-existing health issues including autoimmune disorders, thyroid issues, allergies, Interstitial Cystitis, Chronic Fatigue Syndrome, Fibromyalgia, and more. These health issues can cause symptoms that may be mistaken for endometriosis and symptoms of some of them may be exorbitant from a lack of estrogen.
To help you and your medical team determine if your issues are endometriosis, it can be helpful for you to keep a detailed symptom diary
. You may also need to undergo various tests to rule out other conditions as causes for your symptoms. Try not to be discouraged or panic, but do seek medical attention for symptoms that are indicative of endometriosis post hysterectomy.
This content was written by staff of HysterSisters.com by non-medical professionals based on discussions, resources and input from other patients for the purpose of patient-to-patient support.
03-11-2013 - 10:31 AM
SHARING IS CARING
Do you have a question?
If you have a medical support question related to this article, come JOIN US in our HysterSisters Community Forums. You will receive helpful replies to your questions from our members. See you there!
Recommended for Hysterectomy Recovery
Mesh panties are stretchy and light - perfect for holding peri pads securely during hysterectomy recovery. [...More]
Post-operative compression panty with medical grade silicone to speed hysterectomy recovery + reduce scarring. [...More]
Softest Bra Ever
When you want to wear something, but feel nothing. Two in a value pack for your hysterectomy recovery. [...More]
Options to Hysterectomy
Hormone and Menopause
Intimacy after Hysterectomy
Fitness after Hysterectomy
Grief and Loss
Ask A Doctor
Find a Surgeon
|Joseph S. Valenti, M.D.
2805 S. Mayhill Road
Denton TX 76208
|Arnold Advincula, M.D.
Columbia Ob/Gyn Midtown
51 West 51st St, 3rd FL
New York NY 10019
|Terry Grogg, M.D.
4461 S Broadway Suite 200
Grove City OH 43123
|Amit Patel, M.D.
2301 Marsh Ln
Plano TX 75093
|Nonnie-Marie Estella, M.D.
10 Research Place
North Chelmsford MA 01863
|Debra Richardson, M.D.
Gynecological Oncology Clinic - SW Med
2201 Inwood Road Suite 106
Dallas TX 75390
|Clifford Rogers, M.D.
The Everett Clinic, Dept. of Surgery and Gynecology
1330 Rockefeller Ave, Suite 120
Everett WA 98201
425 339 5424
|Charles Miller, M.D.
120 Osler Drive
Naperville IL 60540
|Ellen Wilson, M.D.
5323 Harry Hines Blvd - Dept of OBGYN
Dallas TX 75390