Comes a time, once in awhile, when you or your loved ones are faced with the biggest hardest decisions of a lifetime -- as now my young son must face whether to go down the usual route with cystic fibrosis treatment, which is not yielding optimum results, or opt to be evaluated for a lung transplant, which feels pretty radical to all of us, especially him, right now. It puts him into the position of being enticed by the potential of having non-CF lungs, but realizing that that comes with great risk -- long surgery, anti-rejection drugs for the rest of his life -- potential death if things don't work out... The CF treatment is known territory, scary at times, but we &quot;know it.&quot; I hope and pray that we can help him make a good decision.
In the meantime, he has decided to improve his fitness by going to the gym. He has picked up his eating and is gaining weight. He only hopes he can turn his lung function curve upward, instead of where it has been headed, which is slowly downward.
I didn't post yesterday, as I was too upset to write. Thank goodness I am recovered to this point, as I would not have had the strength to deal with this during my first weeks of recovery...
All of the support I get from my friends here and friends at work helps enormously.
Thank you from the bottom of my heart!