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Hard Things In Life 04-07-2005 - 05:09 AM
Comes a time, once in awhile, when you or your loved ones are faced with the biggest hardest decisions of a lifetime -- as now my young son must face whether to go down the usual route with cystic fibrosis treatment, which is not yielding optimum results, or opt to be evaluated for a lung transplant, which feels pretty radical to all of us, especially him, right now. It puts him into the position of being enticed by the potential of having non-CF lungs, but realizing that that comes with great risk -- long surgery, anti-rejection drugs for the rest of his life -- potential death if things don't work out... The CF treatment is known territory, scary at times, but we "know it." I hope and pray that we can help him make a good decision.

In the meantime, he has decided to improve his fitness by going to the gym. He has picked up his eating and is gaining weight. He only hopes he can turn his lung function curve upward, instead of where it has been headed, which is slowly downward.

I didn't post yesterday, as I was too upset to write. Thank goodness I am recovered to this point, as I would not have had the strength to deal with this during my first weeks of recovery...

All of the support I get from my friends here and friends at work helps enormously.

Thank you from the bottom of my heart!



 
Julia S said at 04-07-2005 - 05:22 AM
Oh such difficult times! You phrased it right, we all have times in our lives when we or loved ones are facing life changing decisions. Our hysts were such, but definately not on par with a organ transplant!

I hope your son can make the right decision for him, with all his family support. He sounds like a strong young man - and I am sure which ever way he feels to go, will be the right one and he will be strong enough in mind/body/spirit to adjust to whatever decision h makes.

You are to be admired - you are stronger than you think. Not only dealing with your health issues, but those of your son, and knowing ultimately the decision is his.

Know you both are in my thoughts and prayers - as well as the rest of your family.

I am thinking of you.

s
Julia

 


gemsab said at 04-07-2005 - 07:56 AM
Big s Ellen!!!!!!!!


Emily

 


jmberg said at 04-07-2005 - 10:47 AM
I can not even begin to imagine what you and your son are going through. You and he are in my prayers. May this fitness routine he is doing be of help.

Know that we are with you in spirit and will support you in whatever the decision is.

s
Jane B

 


Dylli said at 04-07-2005 - 02:35 PM
Tex, I'm so sorry for your son and your family. CF is such a difficult disease to deal with. I knew someone whose kids both had it. You are very brave and my and s to you! Good for him that he is taking action and fighting!

Dylli

 


 

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