Well, today is February 28th. I have "officially" been diagnosed with endometrial cancer, grade 1, for 4 days now. It seems an eternity already.
and I've only just begun this journey. Hopefully, if the biopsy and my Dr. are to be believed and have it right, a hysterectomy should be "currative and you'll need no further treatment".
Now for a little about my history. I'm 42, have 2 kids (soon to be 13yo and 6yo) and have been married to my high school sweetheart for the past 20 years. Actually, we could say middle school sweetheart since we've known each other and have been singing together as early as 7th grade. Ohhh, and Max
. DH and I both work at an "institution of higher education" in web development. I am a
person. When I had my son at 37, my doctor wrote on the wall and on my chart "elderly, morbidly obese". Obese - yes, morbid or elderly - no.
I was a very early bloomer and started having regular periods at 11yo. Our daughter was concieved naturally after 8 yrs of trying off/on. Our son, was concieved after 4 yrs of "more scientific babydancing thru chemistry". He was our "kidscicle" and miracle baby. He was a result of a frozen embryo transfer of a single embryo whom our RE named "fred". We had less than a 5% chance of it working and it did! My uterus & cervix didn't behave during pregnancy and I had several bleeding scares.
Of course, now I'm wondering what all those hormones had to do with the predicament I find myself in now. BUT I wouldn't change anything for the world!
Two years ago, I started having uncontrolled periods. They were lasting 3-4 weeks with a 1wk to 10-day break and they were "gushers" to say the least. I went to the doctors and was given some iron (I almost required a transfusion) and they did a hysteroscopy. Apparently the inside of my uterus was all ripply (DH and I saw it ourselves in living color on TV). Next came the D&C. Everything checked out fine. I was told the D&C should help the problem. It worked fine for about 5 months.
Eighteen months ago, I started having those problems again and underwent a biopsy before going thru a uterine ablation. The biopsy again tested normal.
Seven months ago I had a funky period again and was on the phone to the dr. right away. He did a biopsy in August and put me on 30 days of 20 mg. progesterone. After I came back from vacation, he called me with the results "hyperplasia with a focal point of atypia". I was put on 20mg progesterone for 6 months and was told to schedule a rebiopsy at that time. I was scheduled (due to his vacation) for the biopsy on April 3rd, but had a yearly with him on Feb 22 and asked that he do the biopsy then. He did, and on Feb 24th I was told "hyperplasia is still there, but pathology saw some grade 1 cancer cells in the sample too". That was Friday afternoon, he wanted me in his office at 8:15 Monday morning. Thank goodness I asked.
So, that is how I begin this journey. Right now, I have calendar dates of :
March 1 - CT scan of pelvis (drink the nasty milkshake)
March 7 - Mammogram (or tortilla press)
March 14 - Barium (lower GI series - that milkshake goes where?)
March 29 - review all tests with a gyn/onc who will be assisting w/ surgery and evaluating the organs, chest x-ray and blood work.
April 5 - Radical abdominal hysterectomy. Two days after my rebiopsy was scheduled. (They're taking it all, whether they want it or not!) 6 weeks recovery from my boss - er ...I mean surgery.
Hubby and I went to the hospital today to pick up the nasty milkshake. I'm most apprehensive about the darned testing and the possibility they'll find something else somewhere that didn't know about. Every little twitch, twinge, gas bubble is adding to my feeling of terror. DH shared with me that he's scared of the surgery. He said they can't do anything wrong with the testing, but with the surgery... Gee, thanks hon, for reminding me.
Tomorrow - Orange Creamscicle Barium Sulfate for breakfast. Yummm!