HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Member Journals > Clementine's Journal



Blood, pain pills & listening to that inner voice 06-29-2004 - 09:54 PM
I know that I should write at least to record my physical day, but I've not been in the mood all day. I am so touched by everyone who wrote in response to my last entry about my dad. Ceedeewho, Moonchime, gemsab, empresse, PraireLakeLady, texrahrah, Northlights, jeanette, californiagal, and floppsy, your kind words and support were such a surprise and are still a comfort. I've reread the comments about three times throughout the course of the day and each time they make me feel better. Thank you.

I skimmed through a book today called, "Just As Much A Woman." I checked it out from the library before my surgery and thought it would be a great read. Instead, I found it very one sided and have a hard time relating to it. It had a heavy emphasis on fibroids and women in their 50s and 60s going through the surgery (if you are in either of those categories you might like the book). For me, it was too linear. Of the twelve women mentioned in the book none had endometriosis and, in fact, the author stated that hysterectomy is not necessary for endometriosis. I can't believe such an opinionated book was published. The book was basically one woman's journey and the advice she learned from her one doctor, and as I read some of the things she wrote I was riled. I'm old fashioned in that I believe an author has a responsibility to present all the facts about a topic like hysterectomy. Maybe we should all band together and publish our stories, eh ladies? We are all so diverse, yet share common threads. I have learned more here than through any book on the market.

I am still bleeding! I'm not bleeding an inordinate amount or even all day, but at least three times each day I go to the bathroom and bleed into the toilet water and wipe blood away from my vagina and bleed onto a pad. I have a distinct feeling that at my 6 week post op I will be getting a suture. It's okay. I know eventually this will heal correctly. Right? The good news, however, is that the pain if finally getting better. Nothing remarkable, but, rather, an extra hour or two between motrins or percocets... I've even been able to substitute vicodin occasionally.

And on the subject of pain medication, I am so sad for many of my Sisters when I read about the trials so many people have just to get pain pills! I think it is absolutely unconscionable for doctors to dole out medication in such minute quantities to women in chronic pain. I am lucky and apparently rare in that my doctor has never questioned my need for or limited my access to the medication I have needed or requested. I am not a drug addict (or maybe I am, but not for reasons of getting a high). I am a woman who has been in chronic pain. I can't even imagine the state I would be in if my doctor handed out a paltry 30 pills and told me that was it. I might be suicidal by now if I'd been forced to live with my pain and never have a break from it. I know that legislature in California is working hard to change doctor's knowledge and perception of patients in chronic pain; I believe they require classes for all physicians. I wish that kind of learning was mandatory in every state.

I found out something interesting about vioxx yesterday from my mother. We were both given vioxx on the same day (she pulled a muscle in her side). Apparently, people allergic or sensitive to sulpha should not take vioxx. Oops. Mom is allergic and I am sensitive. This explains why I felt so weird the day I took it; she also had a negative reaction. I am impressed with myself because I had a very strong inner voice telling me not to take it yesterday morning, and I listened to it!. The same voice told me to be wary the first day I took it, but I listened yesterday. We all have that voice. It's good to know that mine steered me in a positive direction. At least something is working right .

~ Clementine



 
Northlights said at 06-30-2004 - 06:35 AM
Clementine
I read that book too, and was disgusted with it. I agree with your suggestion of writing our own stories. Some of the books I have read out there....are not only filled with lies and one-sided rhetoric, but they are POORLY WRITTEN. How does someone who is a terrible writer get a book published????
I for one, along with several other sisters am considering writing a book about my own journey. Who knows? People may want to read it. I think all of us have a story to tell, and you're right, there's very little out there about Hysterectomy due to endo or adenomyosis. Maybe a Hystersisters collaboration is in the works???
I am so glad you have a doc who is understanding with regards to pain meds. I'm sure you've read my struggles in dealing with the chronic pain pre-op. Fighting to get proper pain meds left me feeling weak, needy, and downright a second class person. It was horrible.
Thank you for keeping this journal Clementine....it helps all of us every day.

Tam

 


jeanette said at 06-30-2004 - 07:04 AM
That sounds like a wonderful idea, a collaboration of stories from this site (journals). There's so many different experiences here, so many different diagnosis and surgeries. No one should read just one side of the story. I haven't read that book and I don't plan on it either. I am soooo glad you're feeling a bit better, I too think you may be heading for a suture or two at your six-week check up. If that's what it takes to stop the bleeding that's what you'll have to do. You've been through worse.

My thoughts and prayers are with you!
Jeanette

 


californiagal said at 06-30-2004 - 08:40 AM
Clementine,

You reminded me that when I decided to have my hyst., the first thing I did was to go to Border's to buy a book or two on hysterectomy. I found the Health section and began skimming through several books. In no time flat, I knew I could not read those books. I felt negativity leaping off the pages. My younger DS asked me why I put all the books back on the shelf. I told him that I'd rather go through the experience on my own.

And, now that I did, I really feel no less a woman. I knew I would have no more children after DH died. So I went through that grief years ago. I feel so much better and maybe even sexier now that I'm not bleeding 24x7. I'm not a slave to my uterus and its problems anymore.

Clementine, I feel sure that once you're over this setback and really start to feel better physically, you'll feel even better emotionally. --Rosanne (californiagal)

 


icare4bunnies said at 06-30-2004 - 09:11 AM
I feel like I have lost a year in the life of my sisters in the past couple of days!! Yesterday I was only partly "here". You were not supposed to keep bleeding, so STOP THAT!! (that did the trick, right? we are big sneezers in my family, so after about 5 in a row someone says "stop that" which is a joke of course) Retro s for all your pain!

I'm happy I spent time with my mom at the hospital, even though she doesn't remember I was there, because if anything had happened I would have been riddled with "what ifs" myself. Those are great lyrics, and I am sorry your dad couldn't have heard them coming from your lips When I talked to my mom (I talked to my mom!!! On the phone!!!) I thought my heart was going to swell and burst, I was so grateful.... she said "I'm not ready to die yet!" and I said I was extremely glad to hear THAT, seeing as how she was saying something different a couple of days ago.

I looked at a book about hysterectomy in the library after my surgery (don't recall the title at the moment) that might have been a good book, except that the author was obviously very bitter about the circumstances of her surgery. She was of the opinion that she hadn't needed one (probably didn't, happens a lot) so she spent a lot of energy on regret. I only had to look a few pages in to see that I would have wound up second guessing my surgery, and at this point, where would that get me but bitter and angry right along with her? Would that put my uterus and ovaries back? And who's to say that in the end this wasn't the best thing, that I had one surgery instead of 2 or 3 or more?

Oh, on the subject of vioxx - I did not know the thing about the sulfa connection!! I'm so glad you stopped taking it!

My DH is allergic to Keflex, and is pretty paranoid about antibiotics (understandably so) so we check up on what's in them before he takes something even though supposedly all the docs have that info in his chart. Mistakes happen, but we don't have to blindly participate in them LOL


 


 

[Back]

Advertisement

Hysterectomy News

April 16,2024

CURRENT NEWS

HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive

TODAY'S EVENTS

Calendar - Hysterectomies - Birthdays


Request Information


I am a HysterSister

HYSTERECTOMY STORIES

Featured Story - All Stories - Share Yours

FOLLOW US


Your Hysterectomy Date


CUSTOMIZE Your Browsing  



Advertisement