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Endometrial Ablation and tying tubes? Endometrial Ablation and tying tubes?

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  #1  
Unread 04-02-2008, 08:14 AM
Endometrial Ablation and tying tubes?

Hi,

I was diagnosed with endo 20 years ago and have done lots of different treatments including 10 laparoscopies, Danazol, Lupron and countless birth control pills. On 4/25, I am scheduled to have an endometrial ablation and the dr. recommends that I tie my tubes as well. Apparently I am to have a "rollerball"? ablation done. Has anyone had this before? Are there any downsides to having my tubes tied as well? Would this be a potential side for endo/scar tissue to grow? (I've had a lot of trouble w/scar tissue and adhesions in the past as I've also had 2 c-sections).

My dr. was originally pushing for a hysterectomy but, because I have 2 separate clotting disorders, I can never take hormones or any form of hormonal birth control again. Add to that the fact that I am currently on a daily regimen of baby aspirin and Plavix which makes me bleed even more heavily when I have my period.

Any thoughts would be great.

Thank you!
Laina
  #2  
Unread 04-02-2008, 05:10 PM
Endometrial Ablation and tying tubes?

Bless your heart not being able to take hormones. My doctor told me (in '04) that I HAD to have a tubal ligation, because she said that with an ablation, it is rare, but possible for a fertilized egg to implant in the uterus, but could not be carried to term ( of course). She wouldn't do one without the other. I don't know that there's a disadvantage, but...I did end up having a complete hysterectomy three years later due to adenomyosis. I wish you the best.
  #3  
Unread 04-03-2008, 07:58 AM
Endometrial Ablation and tying tubes?

Laina

I have just beed diagnosed with a blood clotting disorder also. I am still waiting for the lab work to come back to find out which facotors are low. They did a bunch of blood work a while ago and the doctor said my factor 8 was low but he said that is almost impossible for a female to have hemophilia A. I am so confused about all of it. Which disorder do you have? Could you tell me a little about it? I am so worried about it. I am also having my tubes tied along with an endometrial ablation. They think I might have endo also. He will find out when he does the laproscopy to tie my tubes. I am getting novasure ablation so I dont know anything about the rollerball. I have heard of that quite a bit in this forum. I am sure someone will reply back on that. For me there is no downsides to getting my tubes tied. I do not want anymore children so I am excited for me and my husband to not have to worry about getting pregnant. Well keep us updated on what happens with you. My surgery is tommorrow! I am so nervouse!!!

Nicole
D&C, Laproscopy,
tubal Ligation, Novasure
4/4/08
  #4  
Unread 04-03-2008, 09:34 AM
Endometrial Ablation and tying tubes?

I had an ablation and laproscopic tubal ligation in November 2006- The ablation was no big deal- the soreness from the lap incisions were rough. But if you've had laps before it's not that different- but I didn't have anything to compare it to. I was myself and exercising within a month- back to work in two weeks. I did my tubes because my doctor said I either should do that or be on bc forever because I really couldn't get pregnant- as rare as it is.
But I too had to end up getting a total abdominal hysterectomy- I was fine for about 6 months and then started having a great deal of pain- I also had adenomyosis- and I honestly wondered if I had it before the ablation and the ablation made it worse- or if the ablation caused it. I haven't read anything to support that but I just have wondered about it. So, I had a tah in Nov. 2007, and ended up having a lap on 3/17 for hemorrhagic cysts and adhesions- so lost my ovaries and tubes then and am recovering again!
My doc didn't say anything about adhesions caused by the ablation/tubal ligation after the tah- but I certainly had some after the tah! Good luck!
  #5  
Unread 04-03-2008, 11:14 AM
Endometrial Ablation and tying tubes?

Thank you all for your responses; sounds like I should get my tubes tied during the surgery. (kind of what I thought). I do have adenomyosis as well; hopefully things will get better after the surgery.

Nicole, I wish you good luck with your surgery. Please make sure that you move around as much as possible right after surgery. Having a clotting disorder definitely raises your risk of a blood clot post-surgery. The 2 disorders I have are Protein S deficiency (apparently this one is genetic but none of my other family members seem to have it!) and APS which stands for antiphospholid antibody syndrome. The antibody stuff was acquired at some point but the drs. do not know when. I began experiencing transient vision loss in my left eye during my last pregnancy and after I delivered my daughter. They theorize that these episodes were "microclotting" in the eye. So, I'm on meds for the rest of my life. Don't be too worried about it; just make sure that all the drs. and nurses you deal with are aware of your clotting situation and I'm sure that everything will go just fine.

Thanks again,
Laina
  #6  
Unread 04-03-2008, 03:32 PM
Endometrial Ablation and tying tubes?

I had an ablation in 03,tubes were tied in 92.The discomfort was like period cramps from the ablation,the tubal hurt a little more because they put gas in the belly so when it disburses it can give you pains in the shoulder.Each time I was feeling good in three days.I had a hysterectomy due to adenomyoisis,it wasnt caused by the ablation we knew it was there some but I had so much bleeding that wouldnt be controlled & could afford to be off for a hysterectomy in 03. Anyhow...the ablation worked fine for me stopped the bleeding problem & bought me time to get the hysterectomy at a time I could afford to be off.
  #7  
Unread 04-04-2008, 02:04 PM
Endometrial Ablation and tying tubes?

A word of warning: I had my tubes tied and had an ablation back in 01. Things were wonderful until 2006, when the pain started. I was diagnosed with post-ablation syndrome. Pain became unbearable and I had a TVH in March of this year. My doc this year (different ob/gyn from ablation) told me that when you do both procedures together, it does create the possibility. It only happens 10% of the time, and I was in that 10%. My first doc never said anything. So just know that is a risk worth considering.

Looking back, I would probably do it again. It was a great bandaid for those few years.
  #8  
Unread 04-04-2008, 03:07 PM
Endometrial Ablation and tying tubes?

I would like to know if there are any people out there who have had an ablation who didn't end up having to have a tah or more eventually. When I did it- I thought I was doing it so I wouldn't have to have a tah, that it was a less invasive thing to do instead of a tah- but it sounds like it's something you do to PUT OFF having a tah.
  #9  
Unread 04-04-2008, 03:36 PM
Endometrial Ablation and tying tubes?

  Quote:
Originally Posted by spiceflower
I would like to know if there are any people out there who have had an ablation who didn't end up having to have a tah or more eventually. When I did it- I thought I was doing it so I wouldn't have to have a tah, that it was a less invasive thing to do instead of a tah- but it sounds like it's something you do to PUT OFF having a tah.
My surgeon essentially agreed with what you just said. He told me that it bided me time for a few years. I've read research (somewhere) that says that the majority of women who have ablations eventually go on to have hysterectomies. Now, that being said, we are probably the women who have the most gyno problems in the first place. Who knows. I just know that I'm glad everything's out
Best of luck
  #10  
Unread 04-05-2008, 07:39 PM
Endometrial Ablation and tying tubes?

Hi Laina

Sounds like you've been through a lot. I had a rollerball ablation for my heavy bleeding. It was worth my time to try it, but had I known about my stage IV endometriosis and my adenomyosis, I would've known that my odds of it helping me were quite slim. (I had a hysteroscopic myomectomy with my EA and at that time they discovered some of the fibroids they were planning to remove were actually large nodules of adenomyosis - so I am in the very small group who actually had adeno surgically confirmed before my hysterectomy.)

I do not regret trying the ablation for my heavy flooding, but it couldn't help the endometriosis, fibroids or adenomyosis. My bleeding was much less after my ablation, but my cramps went from really bad to absolutely horrific. The way it was explained to me was that the adeno bled during my cycle, but the blood was being trapped under the ablated lining, so the uterus r-e-a-l-l-y cramped up to try to expell it. At that point, a hysterectomy was a no-brainer.

Is your endometriosis still bothersome to you? If you should end up having a hysterectomy, you could ask to keep your ovaries so you can go through a natural menopause rather than a surgical one. (You would want to be absolutely sure you find a GYN with the expertise to remove all the endo, not just your organs.) <That goes for anyone with endo, not just those hoping to retain their ovaries. (Even though my ovaries were removed, microscopic implants left behind were fueled by my HRT and I did have a recurrence.)

I understand your concern about using HRT with a clotting disorder. Any clotting disorder needs to be taken very seriously, so be sure your docs communicate with each other about what's best for you. My older sister has APS also, and cannot use hormone replacement. That same sister also had a very successful ablation - so there are success stories out there. (We just don't normally see them posting here on a hysterectomy site.) She thought for sure she'd end up with a hysterectomy, but she's now well into menopause and has had no GYN issues at all since her ablation.

The rollerball method takes longer for the surgeon to perform. My GYN still prefers it over the newer generation 'easier' ablations because he feels he gets a better result with it, especially for those women who might have some irregularities of their uterus. The recovery from my ablation was much, much easier than having my regular awful period. I would have had a repeat ablation in a heartbeat had I been a candidate for one.

With me...I'd been seeing a nurse practitioner who really didn't think I had "anything significant" going on ... other than my thick uterine lining. (Made me feel foolish, like I was being weak complaining of so much pain all the time.) She is the one who booked me for the consult for the ablation. Once I met with the GYN about the EA, he felt I was not really a good candidate (He said my pelvis STRONGLY suggested adenomyosis and significant endo.)
I still wanted to try EA though, since my sister had such success and because even if it only helped the flooding - that would be a huge help in itself.

Anyway... There are no easy answers - especially when your case is complicated. Please take time to get other opinions. (You're worth it! ) Seek an endo specialist if you can, get all your docs on the same page, and just do what feels right for *you.*

Here are some links that might be helpful for you as you worth through your decisions:

Endometrial Ablation Discussion Group

Directory of links for Alternatives / Options


Options Articles


Endometriosis/Adenomyosis Resources from our Link Directory

Hysterectomy Recommended to you?

Please keep us posted.
Gentle s
Beth
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