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I'm wondering what kind of shots others have had. When I started the ilioinguinal nerve-block treatments, I had had five shots (one a week) in a row, then about every two weeks, with the longest period of relief lasting about two and a half months.
My doc said he does not inject directly into the nerve, as stabbing it with a needle can damage it and add to the problem. I had one shot a week (both sides) for five weeks, and then when the pain returned. I don't know how many I've had since July; I lost count!
The doc says the shots are innocuous, so I shouldn't wait when I feel pain. He encouraged me to come in immediately and get a shot. I'm wondering what the difference is in others' shots that they can have "up to 5" in a year, when I lost count of how many I've had in the past six months.
I was on amitriptylene and up to 100mg, but then switched to Lyrica 75mg tid and then 150mg bid as I was getting auditory hallucinations and had trouble concentrating on the ami. The Lyrica makes me retain fluid (added weight). Although losing weight is difficult, I am not gaining, and the drug does take care of the pain wonderfully without making me feel drugged all the time.
I am scheduled for surgery next Monday to remove a section of the ilioinquinal nerve on both sides. I will stay on the Lyrica for "a while," the doc says, and then taper off after I've healed up.
Hoping others will share surgery experiences here. I am a bit nervous about the outcomes, but the doc specializes in pelvic pain and surgery. "I don't do babies, birth control, or paps" he says. He is also a prof at a world renowned med school, so I think he is always learning something new to help patients.
Anyone use capsaicin cream for mild nerve pain? I've tried it and it burns at first (like bad sunburn), but it does take care of the pain. The burning goes away (you'll think you forgot to apply it) after a few days. Capsaicin is used for shingles nerve pain, so ... why not groin?
OK ... way too much here! Sorry for rambling. Hope to hear from all of you soon.
Do you know what is in your shot? I'm not sure what your doctor means by
"innocuous". Unless, perhaps the shots just contain lidocaine. When I first started the nerve blocks, the shots contained cortisone, which is a steroid, which is why I could only receive a limited number of them. My doctor was concerned about long term steroid use. A different doctor used lidocaine when doing the injections. Lidocaine is basically a numbing agent, thus it would just numb the area for a short period of time.
I had the damaged ends of the nerves removed. The first surgery was a bit more involved as the doctor also did an incision revision, removing tons of scar tissue. The second surgery wasn't that involved so recovery was a bit easier.
I had relief for awhile, but than started with a zapping feeling. My doctor explained that nerves can regenerate. I am not sorry at all that I had the surgery, I do think that it helped alot. I now do accupuncture treatments which has helped even more.
I have heard of capsaicin cream, but have not used it.
Best wishes to you on your surgery. Do keep us posted on how you're doing.
I had my damaged nerves treated with a radio-frequency treatment with good results. This is less drastic than surgery but has to be repeated once the nerves regenerate after about 18 months or so. Once you have had 2-3 treatments the nerves can die out for good. I agree with Kim that I would be cautious about having endless injections if they contain cortisone as this does have long-term side effects including a compromised immune system. I had 3 cortisone injections in a 9 month period and noticed that I was sick a lot more than usual. Like you, I also really like the Lyrica for that nerve pain. Best of luck with your continued treatment!
I have ilioinguinal neuralgia following my TAH/BSO of Nov. 16, 2005 and the pain clinic has tried EVERYTHING to help me! Now it boils down to me taking Lyrica forever and Oxycontin for the pain OR having the nerve cut.
Just wondering how you did after you had your nerve cut??
I would LOVE to hear back from you! I am having my surgery consult in 4 days!! thanks! jojopassport
I will be having radiofrequency ablation of the ilioinguinal nerve (perhaps iliohypogastric) soon and was wondering more about your experience. How long did it take to work? Has the pain returned yet? Did they use heat/pulsed or both - where did they do it near the spine or close to the pain?
My pain specialist is not even going to do any blocks but go straight ot radiofrequency. I am waiting for the appointment.