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Your Myomectomy Experience Your Myomectomy Experience

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Unread 07-21-2009, 08:12 PM
Your Myomectomy Experience

Please tell me about your myomectomy experience: the good, the bad, and the ugly. Did you experience any complications or negative outcomes? Did your myomectomy succeed in stopping recurrence, or did your future fibroids prevail irregardless?

Much appreciated.

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Unread 07-23-2009, 11:12 AM
Re: Your Myomectomy Experience

I had an abdominal myomectomy in Jan 2004. Bikini-line incision same as a c-section.
My surgery went well, virtually no blood, recovery went well (although I wish I had known about the belt and panties that help stabilize the wound).
Pain was managed well with morphine in the hospital and Percocet alternating with Ibuprofen 600-800 mg.
Recovery takes 6-8 weeks with no lifting and bending is difficult too.
So, make sure you have someone to help you out with cleaning and grocery shopping etc..
However, you asked for the ugly too so here it is: I now have adenomyosis and I have never had kids. The specialist thinks it is from this surgery more than likely.
About 2 weeks post-op I felt that there was a bulge and a pulling in my belly. I have been going back to the doctor (not the one that diagnosed the adeno. but the one that did the surgery) for 5 years saying: I hurt and something is wrong in there. Do I have adhesions? He said no and sent me home for 5 years!!
The past 2 months have been worse than usual ( My swelling and clots have been getting steadily worse the past 5 years).
I tried making yet another appt. but, thankfully, he wasn't in and they booked me with someone else who then said "Hey this lady has been in for the same thing for 5 years, gee, someone should probably check things out" Was sent for an ultrasound and I thought for sure the fibroids were back reeking havoc again. But, there were only a few small ones and a small benign polyp on my ovary.
I was sent to a pelvic pain specialist and diagnosed with adenomyosis.
This explains the ever expanding abdomen/slightly-pregnant look I have.
Some days for a half-hour or so it is not so bad but, then, it comes right back ( I have several threads on here describing the experience if you want to read them).

I dunno how common it is to get the adeno. from a myomectomy though. And my fibroid was unbearable so I had no choice but to have it removed (it was 16 cm and weighed 1.5 lbs).
So, it was a risk that I had to take. Just one of those things that can possibly go wrong. I realize there is no way to "prove" it caused the adeno. it is just thought to.
Hope this helped. Good luck honey.
Unread 07-23-2009, 09:24 PM
Re: Your Myomectomy Experience

Dear Deetzah,

I am so grateful for your honesty. Yes, I will look at your other posts about it. Hopefully, your new doctor will be more helpful than the former one.

Other than the risk of adhesions, not much is conveyed in terms of the negative consequences of myomectomy. Sometimes, I think it is over-glorified, which makes me skeptical because it is major surgery, after all. It cannot be that perfect, clear-cut and dried, can it?

You might be on to something, that perhaps the relationship between myomectomy and adenomyosis is not causational, but it very well may be correlational, especially given the prevalence of adenomyosis. Very interesting food for thought, Deetzah. You are a scientist in the making!!

I hope our paths cross again. Be well --- and soon.


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