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why does this process take so long? why does this process take so long?

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  #1  
Unread 09-03-2009, 03:45 PM
why does this process take so long?

hi, fairly new to this site. i have ovarian cysts, multiple uterine fibroids and endometriosis. i'm 42 and had an emergency c-section in 1999. i am absolutely miserable and have been for a long time (as i'm sure most of you are and have been!) i'm in pain, look 5 mos pregnant, tired all of the time, pressure on bladder, bowels and stomach , painful intercourse , plantar fasciitis, etc!! i just need to vent. why does this process take so long to be scheduled for surgery!? i started going to the doctor back in may, had numerous blood tests in june, ultrasound in july, had to wait til aug 27 for consultation and am now still waiting for surgery date. i was told i'd have a surgery date within 5 days of my consultation and here it's been a week and they say it could be another 5-8 days for approval! i just think it's a shame that women have to suffer this long. anyone else have to wait so long?
  #2  
Unread 09-03-2009, 04:43 PM
Re: why does this process take so long?

Hi I personally did not have to wait long. I was diagnosed, the surgery was scheduled at that appointment and I had the surgery ten days later. However, my situation was somewhat of an emergency in that it was a catastrophic prolapse that required it. Even so, it was considered elective surgery, as are all hysterectomies unless done as an emergency for life-saving purposes, which is really pretty rare.

Since a hysterectomy, like any major surgery, involves substantial risks, it's generally a good thing imho that it takes a while to go from initial appointment to the OR, or even to getting scheduled for surgery. It can also be an emotionally charged surgery for many women, so doctors tend to be cautious about recommending it right off the bat if there are other treatments that *might* help. The potential for regrets after the fact is rather great, as evidenced by the posts here from women who wish they hadn't had their surgery.

Similarly, insurance companies tend to take a while to approve coverage depending on why the surgery is being proposed. I had zero trouble, but have heard of women having to do months of alternative treatments before coverage was finally approved.

It gives you time to get your house in order, plan for your recovery, and make absolutely sure you know what you're in for - and are prepared in case things don't go quite as anticipated. We hope they do, though!

s,
-Linda
  #3  
Unread 09-03-2009, 06:22 PM
Re: why does this process take so long?

I did not have to wait that long either. About a month. My doctor is great at getting things through insurance though. That takes the most time. While you are waiting, take the time to get your house all ready with the food you will need. You can get laundry going & plans movies for when you will need them. Best wishes to you.
  #4  
Unread 09-03-2009, 06:25 PM
Re: why does this process take so long?

  Quote:
Originally Posted by babs09 View Post
hi, fairly new to this site. i have ovarian cysts, multiple uterine fibroids and endometriosis. i'm 42 and had an emergency c-section in 1999. i am absolutely miserable and have been for a long time (as i'm sure most of you are and have been!) i'm in pain, look 5 mos pregnant, tired all of the time, pressure on bladder, bowels and stomach , painful intercourse , plantar fasciitis, etc!! i just need to vent. why does this process take so long to be scheduled for surgery!? i started going to the doctor back in may, had numerous blood tests in june, ultrasound in july, had to wait til aug 27 for consultation and am now still waiting for surgery date. i was told i'd have a surgery date within 5 days of my consultation and here it's been a week and they say it could be another 5-8 days for approval! i just think it's a shame that women have to suffer this long. anyone else have to wait so long?
Oh my goodness and i thought i was the only one going through the waiting game lol.Ive been waiting nearly 3 years for my op and im feeling just as you do.And i think there is a lot more than what the doctors are telling me .I look nine months pregnant in pain all the time.Having troubles with bladder and bms.Mybe if you wouldnt mind we could become friends and talk about it lol
  #5  
Unread 09-03-2009, 08:53 PM
Re: why does this process take so long?

I think that it all depends on the Dr. I did not have any diagnosis. I went to my GP to complain of a period that would not stop..it was very light, but had gone on for a couple of months. I would have 3-4 days of hemmoraging, then it would stop...but then I had this spotting all month.

She sent me to a GYN in July. The first available surgery date was September...so I went for it. So, for me, it was very quick without having to jump through hoops. I was lucky.
  #6  
Unread 09-03-2009, 09:13 PM
Re: why does this process take so long?

Hi babs09
Go ahead and vent!!!! I understand completely. I saw my first specialist in May of last year. Got to 2nd opinion guy in January this year and every time I see him, he wants another test and I have to wait a month or 2 for the test and then a month or 2 to see him again. I saw him 5 weeks ago and I am still waiting to get an appointment with another specialist he is referring me to. (I think I am having a little vent here too!)
I also think it is a shame that women have to wait soooooo long.
Welcome to hystersisters, by the way.
Hugs,
Suzanne
  #7  
Unread 09-03-2009, 11:45 PM
Re: why does this process take so long?

HI Babs09, sorry you're so frustrated with waiting. If it helps any I too had to jump through hoops, wait for testing and follow-up, wait to schedule appointment with other specialist then wait for everyone to confer. I was beginning to think they would never figure out what to do. Then a date was finally scheduled and it was almost 6 weeks away. This process can be a practice of patience. Hang in there, be patient but stay on top of the details so there are no unnecessary delays.
Good luck
  #8  
Unread 09-04-2009, 03:49 AM
why does this process take so long?

Hi from NYC..Don't despair!..I would have LOVED a 5 to 8 day wait!..Original diagnosis early June..after the waitng for CAT, MRI, Biopsy (last one 2 weeks ago), EKG appointments (all separate appointments) I am now scheduled for 9/22..pretty standard wait time in Manhattan. I had to wait FOUR weeks for an "emergency" mammography!
I feel crappy too and have all ur symptoms except no pain during sex which is pretty unbeleivable. I have over 20 fibroids starting at 14 cm..I understand the whole looking pregnant! Hang in there!
  #9  
Unread 09-04-2009, 08:57 AM
Re: why does this process take so long?

thank you guys for your supportive responses. sounds like some of you have had to wait and are still waiting and other didn't. i think part of the reason for my wait is that i live in a highly populated area and go to a busy medical group that needs more doctors. i guess i just feel like my life is on hold because of all of this waiting because i have done the research and talked to several women who have been in my situation and am resigned to getting this done because i know i can't continue to live this way. i know surgery won't be a walk in the park and i won't feel the same afterwards but it's gotta be better than this. so glad i found this website! i have learned so much and you guys make me feel "normal" good luck to those of you "still waiting"
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