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hi, well 10 days post op my right hip/thigh begain with burning and needles and pins and 20 days post op my left hip/thigh began...its been contant..some days better some days worse...I am 6 weeks post op this Thursday....
For some background..i have had Rheumatoid Arthritis for 13 years...I just got back from my rheumy as I have other symptoms like my arms and face feel sunburned and I have headaches (this all started about a week ago) - This could be hormonal....But Fibromyalgia has symptoms of burning skin...anyways, I could also have Fibro..no big surprise but he does not think my legs/hip nerve stuff is Fibro..although I dont know if I agree as it seems EVERYONE who has experienced this thigh/hip nerve thing is right away after surgery and it is only on one side...
Anyways, My OB/GYN told me that the leg/nerve pain has ALWAYS recovered anytime he has seen this - but he did say it is usually one-sided
It is not my RA that is for sure as the pain is not in the joints...it is shallow like on the fat part of my hip/side of my butt...and sometimes I get little cripsy stinging sensations down each thigh...
hugs and prayers...I suggest we all subscribe to this thread and keep each other updated on what Doctors, neurologists (I am getting an MRI just in case) have to say...
I had / have nerve pain. Originally mine was all across the mons area and in the creases of my legs. My gyn-onc told me that mine was due to the lymph node dissection. He said it would clear in 9 to 12 weeks, I'm almost 11 months out and it's almost gone now. Another member said her doctor told her it could be 12 to 15 months. I actually stopped wearing anything tight around my legs because it seemed to agitate the nerves (yep, no undies), I've dressed in skirts pretty much since May. I also started taking additional magnesium which is supposed to help nerves and also bones and it seems to help.
These posts have been very helpful, as I am also having leg pain and sensitivity in the creases of my legs. In the granny panties that I wore for the first 3-4 weeks after surgery, I cut the elastic binding off of the front to make them a little more comfortable, but go without when I can. (Sorry - TMI?)
The rest of the leg pain is deeper though - not in the skin - and is mostly in my calves, but sometimes in my thigh, mostly the right one. Since I had a DVT 1 week post-op, they have done numerous ultrasound/dopplers to check for more clots, but found nothing after the original one dissolved. My surgeon referred me to a vascular specialist, (appt 11/30) but had not thought about nerve involvement. I will keep that in mind if the vascular is ruled out.
NSE, I'm sorry to hear that you had complications as well. I would definitely look into the possibility of your pain being nerve pain. Mine starts right at the crease. I've found that very loose clothing and non-waistband undies really help.
You may want to try the Maidenform "The Smooth Bikini" undies a try (sorry, I tried to link them but got a message saying it was against the rules, but you can google it - I promise I'm not a panty salesperson! ). I found them at Kohl's and they are the only ones that are even remotely comfy. I'm also living in yoga pants a lot. I'm not a huge Walmart fan, but they have a good selection of mix & match workout clothes that aren't binding and allow me to feel like I'm getting "dressed" every day.
What does your pain feel like? Is it sore muscle-type pain or more like zinging, electrical pain? I have both, but the zingers are really what get me. They wake me out of a sound sleep & then go for hours.
Keep us posted please. It really helps me at least to know I'm not alone and that others have gone through this as well.
I went back to work yesterday - just working 1/2 days this week. By the time I've been there 3 hours or so, I am very glad I'm just working 4 hours. I'm not having so much fatigue as I expected, but get very sore and have increased swelling in the ovary areas, and swelly belly too, which I have not had much at all until the last few days. The pain in my legs has decreased. Still walking 30 minutes a day, 5 or 6 days a week, and last week I started doing a few reps on the weight machines. I alternate on the machines so I'm not doing everything each workout.
I'm posting this on our Sept 21-28 thread also, so you might see this twice if you're in both groups.
I'm so glad I found this post as I just started a new thread with nerve pain/sensation questions. I am on day two of numb/tingly/burny in the pubis and groin to down the thigh and big toe on my right side. I will consult my doc if it continues into next week. I know that if it's nerve damage there is nothing I can do. I figure if it's just nerves starting to reconnect it should ease up a bit. Kinda spooky! And I DEFINITELY don't like the sensation, it's icky!