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Ovarian cysts after Hysterectomy due to Endo Ovarian cysts after Hysterectomy due to Endo

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  #1  
Unread 08-02-2011, 02:41 AM
Ovarian cysts after Hysterectomy due to Endo

Hi

I had a hysterectomy (kept ovaries) 18 months ago due to endometriosis.

In the last 6 months I have been experiencing some pain which feels a bit like period pain. I haven't been too concerned until last week when I was in so much pain I could barely walk. I was so bloated that I looked 6 months pregnant and had an increase in urinating along with a very sore lower back. I went to my Dr who arranged an ultrasound and blood tests and also gave me a referral to my gyno who I am seeing on 12 August.

This pain lasted about 4 or 5 days. I had the ultrasound today and they found a fairly large burst cyst on my right ovary. There was no endometrioma's found and I was told that the cyst wasn't related to endometriosis. I was told that it will just disappear.

With all of the issues I have had over the last couple of decades, I have never had a cyst on my ovary like this.

I know that ultrasounds don't show everything, especially endo, so I was wondering if I should still go and see my gyno. After so many years of being told that the pain I have been experiencing is just normal women pain (well until I found this gyno who said it is very much not normal) I now feel guilty, worried, embarrased to go to a specialist especially if they don't find anything.

Also, are the chances of getting ovarian cysts more common after a hysterectomy and is there more chance I will get more?

Thanks for listening :-)
  #2  
Unread 08-02-2011, 10:00 AM
Re: Ovarian cysts after Hysterectomy due to Endo

Hi there I can totally relate as I went thru the same thing. I had a vaginal hysterectomy in Feb with complications that caused me to bleed and had to have an abdominal cut to stop the bleeding. During recovery I was still in a lot of pain and went to another gynie for 2nd opinion post op in the 3rd month and he found a cyst the size of a chicken egg. He gave me meds to take and found out two weeks ago that the cyst was gone but he saw some shadows, looked at theleft ovary and l complained of lower back pain and pain when urinating so he did a laporascopic surgery to check out my ovaries,cervix and tubes with possible oophorectomy. I was scared as I did not want the removal of any ovaries especially since the cyst had been on my left ovary. I had the surgery a week ago and the 1st thing I asked when I woke up was, did they take anything out....they took my left ovary and there was a lot of adhesions. Doc just said that ovary could not be saved and he did a lot of work inside and right ovary looks fine. To make a long story short, if ur instincts tell u something is wrong the chances are that its true therefore my suggestion to u would be to go see the gynie to do a laparoscopy. I wish u everything of the best with lots of hugs. I hope my story brings u some hope.
  #3  
Unread 08-02-2011, 10:09 AM
Re: Ovarian cysts after Hysterectomy due to Endo



Removing the uterus should not affect whether or not one has ovarian cysts. However, what can happen is that hormonal treatment that was used prior to the hysterectomy is stopped and the change in the cycle might create some issues.

I don't recall having any cysts prior to my hysterectomy, but I have had several post hysterectomy. For me, the issue is that prior to my hysterectomy I used birth control pills to manage my cycles, preventing ovulation and thus the formation of cysts. Now, as part of normal cycling and ovulation, cysts form and occasionally create an issue.

Each month as part of the hormone cycle a functional ovarian cyst is created to hold the maturing egg. If the egg is not released or the cyst collapses on itself, a follicular cyst occurs. Usually these cysts cause no symptoms and require no treatment though sometimes they can be painful, especially when they burst.

If the sac holding the egg reseals itself and swells with fluid once the egg has been released, it is said to be a luteal cyst. Again, this type of cyst typically requires no medical treatment.

If the functional cyst bleeds into itself, it is called a hemorrhagic cyst. Some of these cysts will bleed out on their own, others require medical intervention.

If the cyst had been a result of endometriosis, it would have been an endometrioma and those do not tend to burst on their own.

It sounds to me like you had a normal cyst that did cause some issues but has now resolved itself. I agree that it was not likely related to your endometriosis diagnosis.

However, that does not mean that endometriosis is not causing you some issues. A hysterectomy is not a cure for endometriosis so if your surgeon missed (or intentionally left behind) any endometriosis, it could still be causing symptoms.

I would suggest keeping a detailed symptom starting today. Also, write down as much as you can about the last 6 months. Then take all of your notes and with you to your appointment with the GYN. Definitely keep that appointment.

Your GYN could use your notes to help determine what might be at the root of the pain you have been experiencing. It is possible that the cyst had formed 6 months ago and your symptoms accelerated as the cyst grew. But if you are still in pain, then more likely there is something else to consider like continued endometriosis, adhesions, intestinal issues, etc.

in there!
  #4  
Unread 08-02-2011, 02:16 PM
Re: Ovarian cysts after Hysterectomy due to Endo

i get the burst ovarian cyst almost every other month to every month on top of my endo that i have right now and yes the pain is way worse than the endo i usually have to spend a lot of time in bed when that happens.

The last doctor i went to told me that since i'm overweight that it's probably caused by the weight gain and that losing weight would help correct that, although she did not explain to me how the two were connected i don't know if you're in the same weight situation but that's what i've been told. The only thing i can say about when that happens is that a heating pad is your best friend and can help a lot with the pain, same with a good warm bath.
  #5  
Unread 08-02-2011, 09:04 PM
Re: Ovarian cysts after Hysterectomy due to Endo

Thanks everyone for sharing your stories.

I will keep the appointment, even if it is just for peace of mind. I have kind of kept a symptom diary. I remember the exact day I had my first endo attack after the surgery. It was 11 months after the hysterectomy. I was devastated, besides from being in pain. My husband had to stay home from work to look after me. This recent pain was very similar although lasted a lot longer, so I wonder if it could of been a cyst. I didn't get an ultrasound after that but probably should of.

I think I need to start asking more questions. The sonographer who did my ultrasound yesterday said that there was evidence of blood in my ovary. I just nodded. What does that actually mean?

To be honest, I haven't felt the same since I had the hysterectomy. I mean the month (well most of the month) pain due to bleeding has gone obviously, but now I seem to always be bloated, upset tummy, pelvic pain (not severe), pain when emptying my bladder (more like muscle pain, not UTI pain), lower back pain, sciatica, nausea for no reason etc.

In my last laporoscopy (prior to the hysterectomy), there was a lot of endo (heaps of endometriomas, adhesions etc) were over my urethra etc so I am always concerned of bladder issues.

Thanks again for your advice. It is so good to talk to people who understand.

xox
  #6  
Unread 08-02-2011, 10:05 PM
Re: Ovarian cysts after Hysterectomy due to Endo

  Quote:
Originally Posted by cmb010 View Post
The sonographer who did my ultrasound yesterday said that there was evidence of blood in my ovary....What does that actually mean?
It means the cyst was not a corpus luteum cyst/luteal cyst or hemorrhagic cyst.

  Quote:
To be honest, I haven't felt the same since I had the hysterectomy. I mean the month (well most of the month) pain due to bleeding has gone obviously, but now I seem to always be bloated, upset tummy, pelvic pain (not severe), pain when emptying my bladder (more like muscle pain, not UTI pain), lower back pain, sciatica, nausea for no reason etc.
All of these symptoms could be endometriosis, adhesions, the cyst, a bladder issue such as Interstitial Cystitis/Painful Bladder Syndrome, IBS, hormonal issues, and/or more. Hence, the importance of keeping the symptom diary so you and your doctor can look for patterns that can lead to the correct diagnosis and help you see which things make your symptoms better/worse. You may need undergo a variety of tests to rule out some health conditions and diagnose others the the symptom diary can help point you in the right direction.

Know that you are not alone. Several of us deal with endometriosis and other health issues following our hysterectomy. We have to learn to cut ourselves some slack, work with our medical team, and take one thing at a time, one day at a time. Rome was not built in a day and it can take time and trial and error to address each of our health concerns successfully so we can feel our best.

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