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7 Years post TAH/BSO and still suffering! 7 Years post TAH/BSO and still suffering!

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  #1  
Unread 03-25-2012, 06:46 PM
7 Years post TAH/BSO and still suffering!



I am 7 years post TAH/BSO and still suffer from Menopause symptoms. I thought that I was home free and wouldn't need HRT during the first 12 months after the procedure. Not a symptom, no hot flashes, night sweats, mood swings..nothing. My Doctor told me that all that would start within 24 hours of the surgery.

Almost 12 months to the day of my surgery...I was hit with all symptoms above. My husband use to apologize as he walked thru the door in the evening just in case (lol). I tried the natural approach and it gave me some relief, but still suffered. Tried HTR and I turned into Dr. Jeckle and Mr. Hyde, then my husband was even afraid to come home. Obviously, I figured that I just needed to live with the symptoms and eventually they would go away. Afterall, how long could they really last??? Well, February marked my 7th year post-op and they are worse than ever. Insomnia, night sweats, hot flashes, low to no sex drive, pain during intercourse, headaches, swelling, fatigue and weight gain. I deal with the problems day by day.

After sorting though the first few pages of posts, most seem to be recently post-op. Has anyone else been through all of these symptoms for so long and is there any light at the end of the tunnel or is it just the train coming to run over me again? Trying the natural approach because I have very minimal health insurance and no prescription coverage. We also don't qualify for any type of assistance so I can't afford repeat doctor's appointments so they can run me through a battery of tests that will cost me a fortune to tell me I need HRT that I can't take because of the mental instability.

Open to comments and suggestions....
Love, Laughter and Peace to all!
  #2  
Unread 03-25-2012, 08:24 PM
Re: 7 Years post TAH/BSO and still suffering!

Dear lucky13FL, I can seriously relate to how long your suffering is going on - it's been 1 1/2 years for me now and I am going back in for surgery April 20, 2012!! Not for a hysto or bladder, but for damage that occurred during those surgeries. And my HRT nightmares were ridiculous.
I became allergic to Premarin, then Estrace and when the infections became so frequent that I saw my gyne every couple of weeks - and I contacted the mfr. of both products and found I couldn't take their products, well the hits just kept on coming. Insomnia, weight gain, name it you've got it, that was me. My neighbor recommended herbal remedies, such as Black Cohosh, so you might try that, but in the meantime, my dr. put me on the lowest form of HRt, Estriol and that worked.
Many of my symptoms remain however, due to my allergy to the bladder sling that was put in during my hysterectomy. I also couldn't walk following my hysto, the result of being in stirrups too long. Now, after 9 months of PT for my insides and her trying to 'rub' out all my leg/hip pain, I was starting to have trips/falls and severe pain. Now I use a cane to walk and in April (after seeing numerous drs. and having far too many tests) I am scheduled to have a total hip replacement. My surgeon explained what happened. He said that once you are in the stirrups and they run into complications, they don't stop working - and your hip hates you for the rest of your days!!
I am devastated with this news. To have a hysto and problems in 2010, a bladder fall and AP repair in 2011 and now a total hip replacement in 2012, will the problems from my first surgery ever go away? I doubt it. In fact, I was supposed to see a specialist in May to talk about removing the problem sling, but now that's on hold. and my husband is beside himself with dealing with my health and my misery.
I have 3 adult children and they don't know what to think either. I have done nothing but deal with chronic pain since my first surgery - I can't even think of what's to come.
I'v eonly been dealing with this for a year and a half. I can only imagine your misery for 7 yrs. Lucky13fL, my suggestion is to try the herbals at the healthfood store, try to think positive and on my side, I will pray for you. Old Chick
  #3  
Unread 03-29-2012, 04:25 PM
Re: 7 Years post TAH/BSO and still suffering!

I can relate to both your stories, and seriously wish I could say something to grant you the peace and relief from pain you both so desperately deserve.

My TVH was nearly 9 years ago. I ended up was such an abdominal abcess that I needed emergency surgery and spent a week in ICU. I was "brought back" twice and it took months to feel "human". Seven months later I needed both ovaries & multiple cysts removed. Unfortunately, the damage and scar tissue was such that my gyno could only remove the right. Two months later, I had to have a specialist perform surgery to remove the left.

No, I don't regret my decision for hysterectomy - my quality of life was nil and there really was no decision to make - but I miss feeling "normal" and pain free.

I guess all we can do is the best we can. I wish both you ladies all the best. Prayers and hugs ... and know you are not alone.
  #4  
Unread 04-25-2012, 06:28 AM
Re: 7 Years post TAH/BSO and still suffering!

Hi lucky13, its been 8 years for me...I'm right with you, still suffering, night sweets, no sleep, and migraines....I've pretty much tried everything suggested on this forem, no luck. I just keep thinking my body will adjust. I have started drinking tart cherry juice, its suppose to help with sleep...I'm so tired of buying and trying things that just don't work for me...You are not alone... cyn
  #5  
Unread 04-26-2012, 09:46 AM
Re: 7 Years post TAH/BSO and still suffering!

I know how all of you feel. I had uterus removed on 2005 and both ovaries removed in 2009. I started battling symptoms 6 mos after my uterus was removed. I have tried it all patches, creams , gels , injections, pellets they each come with pros and cons for me. Divigel helps me most with the hot flashes. I recently had a food and medication tolerance blood profile run waiting on results, Its called the ALCAT test. I'm comtemplating b12 injections for energy. All I can advise is keep plugging away and try new things there is light at the end of the tunnel. I have never tried Estriol as mentioned above maybe it's a try! Best of Luck to all!!!
  #6  
Unread 04-28-2012, 08:39 AM
Re: 7 Years post TAH/BSO and still suffering!

Hi

I am 6 years post hyst and 5 years post ovary removal and I am still dealing with menopause. It can't last for ever I guess! I tried HRT and ended up feeling worse so now just put up with it all. I feel much older than my friends who are starting to go through natural meno,, anything meno related they ask me now! Hang on in there you are not alone.

Forgeful50
  #7  
Unread 04-30-2012, 04:08 AM
Re: 7 Years post TAH/BSO and still suffering!

hi everyone,
im 3 years out of full hysterectomy and i find that my symptoms will lesson some for a few months and then intensify for a few.they never go away just lesson in intensity then increase.recently theyve intensifyed for longer than usual.its been since December they've intensified.Im not sure it ever goes away,but hopefully for everyone here it will.I just pray and ask god to help us all through.ive been torn about hormones,tried some estrogen but made it worse.so ive just used estroven to take the edge off.
  #8  
Unread 04-30-2012, 07:37 PM
Re: 7 Years post TAH/BSO and still suffering!



I am so glad I found you ladies here...I almost thought I was the only one that had my hyst 7 years ago, and still going through the hotflashes and everything else that's related to Menopause. I've tried everything ( nothing really works) but don't want to go the HRT road. So here I am with you struggling with 6 years (first year the one remaining overy worked well ) of night-sweats, mind fog, anxiety at times, and not sleeping because I'm drenched half the night I'm up at 4:00 am for work 5 days a week, I don't know how I am still functioning.. this Menopause roller coaster has to stop one day, and I (we) will feel normal once again..
Sending you all
  #9  
Unread 08-21-2012, 04:03 PM
Re: 7 Years post TAH/BSO and still suffering!

Ok I had my 6 years ago june and I feel worse now then back then, I'm moody and never sleep all night keep my room cool and have the cool pillow ") But seem like I'm in my own world sometimes last week have been having soreness on the top of my left breast then I get all excited thinking I'm having a heart attack then get stressed about that!I do take a low dose of premarin had both ovaries removed also. Keep achey all over and week knees sometimes, The doctor says don't stress if I knew how I sure in the world would! Don't want to take stress pills! MY mother tells me don't read side effects on meds or she says I'll get them I just wonder when this menapause will be done!!!!! I'm trying to lose weight and see if that helps but also have thyroid issue's Well Feel better writing it down thanks for listening ") Hyster sisters
  #10  
Unread 08-22-2012, 06:32 AM
Re: 7 Years post TAH/BSO and still suffering!

Sounds like the low dose of Premarin you’re taking is not enough. Why not get a higher dose and see if it helps with your symptoms?
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