Craft Lady I am really sorry to hear this news. You had your A&P just a couple days after mine. How do the doctors know that your bladder muscle is too weak to contract or that it will never again function? It seems a bit early to be making that proclamation but of course I don't have the info they do.
What I can tell you is that during the time I had the Foley in, my bladder was completely taking a vacation. It did nothing but fill and let the Foley drain the urine out. It wasn't until they insisted the Foley come out (at the doctor's office), taught me how to self cath (again, at the insistence of the nurses at the doctor's office and they made sure I could do it before I left) AND I started taking an alpha blocker (like Flomax, that men take for enlarged prostates, it helps relax the bladder neck - anything to help I would take!) that I started to see any improvement in my bladder. I had to write everything down. How much I went by myself (which was nothing at first) and how much I self cathed.
It was slow improvement and I had to cath myself more than I wanted to - in fact I never thought in a million years that I would ever have to learn to cath myself or that I would. But I had to cath most in the early morning and before bed. I pee into a hat still and measure how much I go. I know now what is "normal" for me. I run water when I go still. (ok I use a water sound on my iPhone
) and it can take me 20 minutes to get 300cc out. But I can do that now on my own and a week ago I was sure that I would be cathing forever. Early morning concentrated urine is still the hardest for my bladder to deal with. Now I'm just afraid to go off the alpha blocker!
I've also had to be treated for a UTI that developed at some point and was causing terrible bladder spasms (and I thought that was due to my self cathing technique but was really due more to the UTI). I also discovered during that episode that the drug pyridium, meant to help bladder spasms, actually helped my bladder relax enough to start dribbling some urine on its own. I'm not taking it any more as my UTI has been cleared and I don't like the orange color it makes everything, but that was a nice thing to have and would have been useful to take the first few days coming off the Foley.
Is there any reason your doctors don't want you to try self cathing, or have you already tried that?