Still Can't Pee

I cant pee as well I am 16 days post op after an a and p repair .My cons has told me that I will have to be caths for the rest of my life. I am having supapubic one in the months time. My bladder muscle is that weak it cant contract anymore

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Originally Posted by craft lady I cant pee as well I am 16 days post op after an a and p repair .My cons has told me that I will have to be caths for the rest of my life. I am having supapubic one in the months time. My bladder muscle is that weak it cant contract anymore

Craft Lady I am really sorry to hear this news. You had your A&P just a couple days after mine. How do the doctors know that your bladder muscle is too weak to contract or that it will never again function? It seems a bit early to be making that proclamation but of course I don't have the info they do.

What I can tell you is that during the time I had the Foley in, my bladder was completely taking a vacation. It did nothing but fill and let the Foley drain the urine out. It wasn't until they insisted the Foley come out (at the doctor's office), taught me how to self cath (again, at the insistence of the nurses at the doctor's office and they made sure I could do it before I left) AND I started taking an alpha blocker (like Flomax, that men take for enlarged prostates, it helps relax the bladder neck - anything to help I would take!) that I started to see any improvement in my bladder. I had to write everything down. How much I went by myself (which was nothing at first) and how much I self cathed.

It was slow improvement and I had to cath myself more than I wanted to - in fact I never thought in a million years that I would ever have to learn to cath myself or that I would. But I had to cath most in the early morning and before bed. I pee into a hat still and measure how much I go. I know now what is "normal" for me. I run water when I go still. (ok I use a water sound on my iPhone ) and it can take me 20 minutes to get 300cc out. But I can do that now on my own and a week ago I was sure that I would be cathing forever. Early morning concentrated urine is still the hardest for my bladder to deal with. Now I'm just afraid to go off the alpha blocker!

I've also had to be treated for a UTI that developed at some point and was causing terrible bladder spasms (and I thought that was due to my self cathing technique but was really due more to the UTI). I also discovered during that episode that the drug pyridium, meant to help bladder spasms, actually helped my bladder relax enough to start dribbling some urine on its own. I'm not taking it any more as my UTI has been cleared and I don't like the orange color it makes everything, but that was a nice thing to have and would have been useful to take the first few days coming off the Foley.

Is there any reason your doctors don't want you to try self cathing, or have you already tried that?

I cant do isc I have a kink in the uretha. the cons say it would be to painfull to do isc. They have to sedate me when they change the cath. Before I had the op they did an unydodamtics test. They said then that the bladder muscle was very weak and aslo damaged. I was retainting then about 400ml. I had done a voiding chart before then I was still only passing 80 to ml. When i had the unydo done they want to cath me then, but the cons said wait untill after the op. Then we will do another test. they tried to get me to pass water but i cant. Hence the cath for allways

OMGoodness Craft Lady the kink sounds so painful! Was it there before your surgery? As in normal for you but means ISC just isn't possible? I wonder if having the supra pubic cath -if they'll have you try and clamp it off now and again to see if you can void?

I wish you the best of luck with this and please keep us posted!

yes the kink was before the op They found when they did the uyduo test. I also have other health issuses . One is life threating. They have to sedate me when they change the foley cath. They said that I will never be able to pass urine again normally beacause of the bladder muscle. The spincter muscle also is very weak.

I came back from Europe a month early; because I got so frustrated from cathing in public restrooms that are shared by men and women. I went back to my gynecologist who did my sling and anterior repair and he said he wasn't going to do anything because nothing was wrong with my surgical repair. IT HAS BEEN 6 WEEKS and I still can only dribble urine. I always seem to have the urge if I don't empty my bladder with the cath. Went to a urologist yesterday he cystoscoped me and dialated my urethra. No change! Next week I am scheduled for urodynamics.
I think I have tried everything you guys have suggested I was able to add sex on the list this week. (Didn't work, but made my husband happy) I think I am going insane and I am so weary of this process. On top of this I am an operating room nurse and I need to go back to work, but I can't figure out how to manage peeing and cathing when I am stuck in surgery for hours.

cant you ask for a indewlling cath in you still cant pee . I been told that I have have a cath now for the rest of life. Men dont know how lucky they are . It is only ladies that seam to suffer

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Originally Posted by ORRN I came back from Europe a month early; because I got so frustrated from cathing in public restrooms that are shared by men and women. I went back to my gynecologist who did my sling and anterior repair and he said he wasn't going to do anything because nothing was wrong with my surgical repair. IT HAS BEEN 6 WEEKS and I still can only dribble urine. I always seem to have the urge if I don't empty my bladder with the cath. Went to a urologist yesterday he cystoscoped me and dialated my urethra. No change! Next week I am scheduled for urodynamics. I think I have tried everything you guys have suggested I was able to add sex on the list this week. (Didn't work, but made my husband happy) I think I am going insane and I am so weary of this process. On top of this I am an operating room nurse and I need to go back to work, but I can't figure out how to manage peeing and cathing when I am stuck in surgery for hours.

I wondered how Europe would go - I thought you had a great attitude to give it a try! I keep reading on these boards of some surgeons who are willing to loosen the sling if someone can't pee after a certain amount of time. Yours was totally unwilling to consider this? My mother had the sling about 10 weeks ago and is going insane because not once has she had a bit of improvement - in fact she's been much worse since she had her surgery - flooding and leaking with great urgency all the time and all night long. We thought it a little ironic that my surgery left me unable to void for so long.

Is sex supposed to help with the voiding issue sometimes? Just curious as you said you had tried everything and were able to add sex (not even thinking about that yet having just passed the three week mark ) I can void OK but not great...early morning is quite a chore. Sitting on the pot for so long leaves me with a feeling of heaviness in my repaired areas, so not great either way.

Hopefully the urodynamics will give a clearer picture. Wonder if they can put a capped Foley in with no bag if you're still not fixed by the time you have to go back to work. Then you could just uncap and pee standing up. Still a pain but yikes, sometimes I guess you have to choose the lesser of evils it seems. At least in an OR situation it would seem you have some understanding co-workers?? Well, co-workers with the ability to understand anyway. I know it's pretty high-stress in there. I hated the feeling of the Foley. Let us know how the urodynamics goes.

I must have overdone something, I can't figure it out, but I am 4 weeks post op A&P repairs and where I was able to pee "OK", I am now all swollen up again and having problems to the point of having to cath again. Things were looking pretty good, well, at least OK down there and now it looks awful, all the stitches are showing, everything is so swollen, and it makes me sick to think that things are swelling so badly that something might be getting damaged.

Not sure why this has happened, I don't feel like I've overdone anything, even over the hot long weekend where we were up at our lake cabin I did not do much of anything (although I couldn't go in the lake to cool down) except I did have to go up and down the stairs more than normal as there are more flights there than at home. But at 4 weeks out I would think this wouldn't be such an issue. Also had a day of diarrhea, so a bit more time on the toilet than usual, but still not sure if that would cause all this swelling today.

I've started back to work (work from home) but my mind has not been in it much today. I called the dr. office and they never called me back! I am afraid I need to be seen, as it feels like everything is falling out of me right now. It's that bad.

Wow, you shouldn't be seeing stitches. Keep calling the office and the answering service. I had my urodynics today. They put me on vali 5 mg x 2 a day. Now I am groggy and can't per.