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Pelvic pain two years post vaginal hysterectomy? Pelvic pain two years post vaginal hysterectomy?

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  #1  
Unread 05-06-2012, 08:01 AM
Pelvic pain two years post vaginal hysterectomy?

I am post vaginal hysterectomy x2yrs and 6 months after started having pelvic pain. When my gyn checked me internally it was(is) very painful from the vaginal cuff up through the right side. He did all test he thought was applicable and of course all were "normal". I then have been referred to a urogyn who recently sent me to PT which really has not helped by any means...hence she is releasing me back to his care. My next option will intra-vaginal shots then if this doesn't work then my next option will be a Lap to remove any associated adhesions that "may be" connected to my vaginal cuff. Just wondering if ANYBODY else has gone through the same problems and if at all your pain has dissipated...then how that was achieved. Please help........
  #2  
Unread 05-06-2012, 02:45 PM
Re: Pelvic pain two years post vaginal hysterectomy?

Yes, I have had the same issue for most of the time since my vaginal hysterectomy in 1998. I have issues on the left side of my vagina. I have what they describe as a 'small rectocele' which they say shouldn't cause any issues but I am constantly aware of its presence. I think I got it from doing heavy lifting on-the-job a very long time ago and then having the hysterectomy didn't help. Apparently the gynecologist who did my hysterectomy didn't see it and I didn't know about rectoceles at the time so didn't mention it. Otherwise, I would have definitely agreed to have it fixed at the same time.

I'm pretty sure I have vaginal adhesions on that left side now as well. It feels very swollen and bumpy compared to the right side (I have never given birth). One gynecologist said 'Oh, that's probably just adhesions'- she was very dismissive about it and wouldn't consider that they could be causing me any major discomfort. It feels like things are very tethered down there and my massage therapist frequently comments on 'that bulge!' - it even feels like it pulls my buttock down a bit. I have frequent burning sensations coming from that area- what they like to label as vulvodynia- which doesn't really help. They recommend sitz baths which don't help and even sometimes makes it feel worse.

I have gone to many doctors about these issues but can't seem to find anyone who appreciates the discomfort they cause. Just like with you, the gynecologists pretty much do the usual lab tests and pelvic exams and always say that they can't find anything and that's the end ot if. I also just went to a gastroenterologist recently- the rectocele makes complete evacuation difficult and when I try to do splinting it never works and even sometimes causes an infection. Anyway, I did mention adhesions and he said he thought that's what it sounded like but he didn't want to talk about it. He did a colonoscopy and upper endoscopy- I thought that this would be the beginning of investigating but he didn't even have me come back for a follow-up- he just sent a letter with his recommendations- which included physical therapy- which, if he had spoken to me, I would have told him that I had already tried two physical therapists who specialized in pelvic issues but there was nothing they could do.

I will be going to my GP this week. Guess I'll have to tell her that nothing was accomplished with the gastroenterologist. If any doctor were to help, it would have to be one who would be willing to work with me- i.e., willing to spend a decent amount of time with me which these days doesn't seem to happen anymore. My only guess as to why this is is maybe it's pressure from insurance companies to keep costs down and therefore issues that affect quality-of-life but aren't fatal aren't to be given in-depth investigation and treatment? Like I said, I thought that the colonoscopy and endoscopy would be just the beginning- to rule some things out and then we'd go from there- but I guess not.

I'm hoping my GP will agree to at least give me some pain meds. I was given Tramadol a year ago after an MRI showed some trapped nerves somewhere down there. I was to take it alongside Naproxen and I got very sick and assumed I could not take Tramadol. But now I think it was the Naproxen as I never have been able to take Nsaids- like Ibuprofen- because it gives me gut pain and leads to diarrhea. I've been taking the Tramadol lately and it does help the pain down there as it tends to ache when I'm at work and it does help me get through the work day. But I know that a lot of doctors don't like to give pain meds long-term so don't know what she will say. If she refuses, I suppose I could ask to be referred to a pain clinic but as far as I know there aren't any in my area. I've already tried antidepressants- including Elavil- and the side effects were not worth it. One of them was weight gain and with things like rectoceles they actually recommend LOSING weight!

So I can relate, daisy16! What gets me is that I have had my rectocele- no matter how small- demonstrated on a Defecography test and the trapped nerves showed up on an MRI. You'd think that this would provide some validity to my complaints but apparently not enough.
  #3  
Unread 06-15-2012, 10:08 PM
Re: Pelvic pain two years post vaginal hysterectomy?

My pain began immediately after my TVH 11 months ago. I'm no sure how much longer I can take it. Luckily my doc gives me Percocet or I wouldn't be able to leave the house. Everyone says something different but no one can seem to make it better. Now seeing a physiotherapist who specializes in pelvic pain and pelvic floor dysfunction. She says it's nerves trapped in scar tissue. But after my second treatment this week the pain is unbearable. I was so afraid this would happen. I was so much better off before my surgery.
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