suffering post op 2nd time

5yrs ago i had a hysto and 1 ovary left due to endometriosis. im 41 no kids and for the past 2yrs suffered with severe bowel problems. i lost my mother 3yrs ago through ovarian and bowel cancer so i had a colonoscopy. nothign was found but things got a lot worse and i was told i had ibs. after pushing for something to be done i had every test, mri, scan etc imaginable. finally i had the very lovely sigmoidoscopy where they found something on the outside crushing my bowel by 80%

last week i had my ovary detached from my bowel and bladder and taken out. im struggling to have bm have terrible gas and cant stop crying.

has anyone else had this done?

I have endo too and have had horrible bowel issues. I go from loose stools to so much pain that it feels like someone is sinking a hot knife into my bowel. Doc said it is all related to endo and hormones. I kept a diary of everything that I ate, medications, time of the month, and everything else. It took a while to figure it all out because the docs that I saw before the last one all said ibs. I think that is the "shut up you up and get you out of my office" diagnosis. My last doc started testing everything and discovered I had adhesions, we knew about the endo, found out I had interstitial Cystitis. He figured out after going in (my umpteenth lap) the endo that had been previously lasered was growing down into my tissue. He elected to resect the endo and scar tissue and when all was said and done my pelvic floor looked like a doily. I felt better for a while. They also found scar tissue from other surgeries caused some of the muscles around my lower bowel had more or less "frozen" from trauma. I went through rounds of botox and physical therapy to have normal bowel movements. Amazing that other docs would imply it was all in my head...

your story is almost exactly the same as mine. our nhs must have spent a fortune on my miss diagnosis. i was also never told that my endo was controlled by my ovaries so to have 1 left and now have to go through all this is frustrating. i wish id had it taken away at the same time as my hysto.

i felt like i was not being taken seriously. i know my body and i knew it was serious. in this country with the nhs they take the cheapest and longest route but it has cost them more in the long run

im my head my *** lol

Isn't it amazing that doctors go to medical school for years and years and years and they have all this training... But you and I can figure out what is going on just by discussing our symptoms. I spent the last ten years having MRI techs and ultrasound techs telling me how many cysts I have on my organs... But not one radiologist suggested that might be odd. A year ago, I go in and tell them that my mom has PKD and now all the sudden everything makes sense and I have PKD. The fifty million cysts all over my kidneys and liver didn't give you a clue before??? I sometimes wonder about doctors!!! If it is outside the box, don't consider it. All of my problems were blamed on Endo and nothing else considered. I went through every kind of treatment but still had pain. Just so happens, I have the IC too, (which is called Endo's evil twin). They cause similar symptoms and pain. I go in after treatement for Endo, still with pain, I am crazy.. It is in my head... Then they find out I have IC too, now it all makes sense. Doctors need to listen to US!!! We know our bodies!!!

i think some of my problem is i dont go into the room a hysterical mess falling down in pain. as a reserved british woman and also very shy i probably dont express myself too well. my pain threshold is also very high so when i tell them im 8/10 in pain i dont think they believe me. the gyny who just done my surgery initially threw his hands up in the air and told me i needed a bowel surgeon but agreed to do a lap. after my surgery he looked very sheepish as the damage he had to repair and remove was his job after all. oh what a surprise!!!!!

I hear you about that!!! It seems like we have all been in so much pain for so long!! Most of the ER docs I have encountered are just like, "Are you sure you are in pain? You seem to be in such a pleasant mood." I usually have my 9 year old son with me, because I am a single mom, so what am I supposed to do, act like a hysterical mess, screaming and writhing in pain, in front of him? I tell them how I feel, they generally don't believe me, but then look at my medical records and realize there might be something to it, do a CT or an MRI and then all the sudden it is like, OMG!!! Get this woman some pain medication. I wonder what would happen if men had to deal with this kind of pain and attitude... I think there wouldn't be very many men left in the world!!! No offense, because I am sure there are some pretty special guys out there, but I doubt they could deal with the kind of pain we have to suffer with "in silence!!" and still take care of the family, work, support our friends and family, etc. We deserve a prize!!! LOL

lmao oh yes we do deserve a prize. my partner said he would swap with me if he could but i doubt even he could take the pain bless him. xx