Adenomyosis suspected- hysterectomy recommended - Hysterectomy Options and Alternatives - HysterSisters
  Hysterectomy Checkpoints Hysterectomy Checkpoints  Hysterectomy Alternatives Alternatives   Hysterectomy Options Hysterectomy Choices  Pre Op Hysterectomy Pre-op  Post Op Hysterectomy Post-op   Hormones HRT Menopause   Sexual Dysfuntion Intimacy   Fitness Pelvic Floor  Fitness Fitness   GYN Cancer Cancer  Grief Grief    
 
 
 

Reply

Adenomyosis suspected- hysterectomy recommended Adenomyosis suspected- hysterectomy recommended

Thread Tools
  #1  
Unread 08-18-2012, 10:02 AM
Adenomyosis suspected- hysterectomy recommended

ARG.. Reading this site has really encouraged me, but it also is making me ask so many more questions. My consult is end of Nov. On one hand after reading this I am SO ready..

SO ready for the constant bloating, pain, cramping, nauseousness,fatigue, low iron, terrible Flo, and no thought of sex to go away and to feel better again. Just want to make sure I am making the right decision.

Is leaving the cervix better? Doc said they would more then likely leave the ovaries.

I see I SHOULD expect to feel better as I feel nasty right now. But what really SHOULD I expect to feel a few years down the road from a hyst.

What about things moving after a Hyst is that really as much of a problem as my moms friends are telling me?

Should I make sure they do a bladder sling when they do surgery?

Then on the other hand I wonder If I am forgetting something and is there a way I can deal with this without a hyst? Please tell me I am making the right decision?

They are doing a ultrasound in Nov. (office is really booked sigh). to double check to make sure initial diagnosis (internal exam) looks right. I know if they change the diagnosis to fibroids I have more options Doc does not think they be changing it though. SIGH. My uterus is painful, soft, and enlarged.
  #2  
Unread 08-21-2012, 09:51 PM
Re: Adenomyosis suspected- hysterectomy recommended

I had my hysterectomy for adenomyosis,fibroids and endo. I am 4 months post op and am so happy I had it done. All that horrible pain and bleeding is a thing of the past. Keep researching and asking questions on here and you'll find all the answers! Your cervix is actually part of your uterus, not a separate organ. It is the neck portion. If you have adeno it can also be in your cervix and if you leave your cervix some of your symptoms may not go away. I kept my ovaries but let my cervix go along with my uterus.I tried to get my doc to do the bladder sling and she assured me I didn;t need one. She said my enlarged uterus was pushing on my bladder and once the uterus was removed I'd be fine.I'm still hoping she's right. I have minimal leakage now and doc says it will go away with time.What are you referring to with the " things moving" question? There is no cure or alternative treatment for adenomyosis. Sometimes BC pills can lessen symptoms and stall things on until menopause though. Hysterectomy is the only way to get rid of it according to my doc. It also can not be diagnosed until pathology after a hysterectomy. Ultrasounds and MRI's can give your doc a pretty good idea if they think it is adeno, but not for sure.
  #3  
Unread 08-22-2012, 09:26 AM
Re: Adenomyosis suspected- hysterectomy recommended

Thanks so much for the answers. It does help. I guess I will just have to trust the doc on the cervix question. Maybe it is not as big a deal as I am making out. Been reading more on here and it HAS been helping.

By things moving. I was referring to other organs sifting after a Hyst because of the extra room. Some friends of my moms.. (remember here early years of hyst.. my mom is 75.) have had issues with everything sifting internally. causing all sorts of issues. Maybe they do things differently now and not as many people have issues. (HOPING)
  #4  
Unread 08-22-2012, 09:50 AM
Re: Adenomyosis suspected- hysterectomy recommended

The organ shifting can be a problem for women I have heard too. It's very important to follow your doctors restrictions after surgery. Especially the lifting. Doctors usually restrict for anywhere from 4-8 weeks, but I restricted myself much longer on my own because I wanted to avoid the shifting and possible prolapse issues. I'm 4 months out and still don't do heavy lifting. I'm a better safe than sorry kind of person. I probably went overboard with restricting myself, but the thought of bladder and bowel issues in my future was enough to set in paranoia. I figured even if it wasn't a possibility it surely wouldn't hurt me to be careful, considering the alternative.Some doctors are pretty lax with restrictions and some are strict. Listen to your Mom, it can't hurt!! I still have bladder and bowel issues a bit and was very careful. I can't help wondering how much worse they may be if I hadn't been careful.
Reply

Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
11 Replies, Last Reply 03-31-2012, Started By Sarah1979
5 Replies, Last Reply 03-19-2012, Started By PugCrazy
9 Replies, Last Reply 02-13-2012, Started By lilybugs418
0 Reply, Started By littlebirdy
21 Replies, Last Reply 05-08-2011, Started By dkhb2000
3 Replies, Last Reply 01-12-2010, Started By delsolgl
22 Replies, Last Reply 12-15-2008, Started By churchsec
25 Replies, Last Reply 08-11-2008, Started By Beevy
4 Replies, Last Reply 04-12-2002, Started By cyndiHGP
3 Replies, Last Reply 11-04-2001, Started By Duckie
3 Replies, Pre-Op Hysterectomy Support
4 Replies, Pre-Op Hysterectomy Support
2 Replies, Pre-Op Hysterectomy Support
6 Replies, Pre-Op Hysterectomy Support
3 Replies, Pre-Op Hysterectomy Support
7 Replies, Pre-Op Hysterectomy Support
5 Replies, Pre-Op Hysterectomy Support
4 Replies, Pre-Op Hysterectomy Support
3 Replies, Post Op Hysterectomy Support
13 Replies, Post Op Hysterectomy Support


Hysterectomy News
June 20,2013
WEBSITE NEWS
Checking In June Newsletter
The HysterSisters June newsletter has been published and can be accessed on the website here: June 2013 HysterSisters Ch [More]...

LATEST BLOG POST:
When It Becomes Mental

PROUD PARTNER - DaVinci Surgery


Advertisement


Android app on Google Play


Advertisement



Advertisement





All times are GMT -6. The time now is 03:23 AM.

HysterSisters.com is a patient support website and does not intend to take the place of the relationship between patient and personal physician.

Mobile Skin
Medical Advisory Team - Give Me a Second - Second Opinions are Good For Your Health

Peer Support Websites: IC-Network
Hyster Sisters® Copyright 1998-2013 All rights reserved.
Page generated in 0.29236698 seconds with 12 queries
HysterSisters Hysterectomy | TOS | Privacy | About | Contact | Help/FAQ | Advertise | Hysterectomy Products | Advertising Policy | Doctors | Twitter | Facebook | Videos| Press Room
 
toggle

Receive support and resources for your hysterectomy related needs:

Support Forums - Hysterectomy Checkpoints - and more!