Hysterectomy & Adenomyosis

Well we are growing slowly but at least they're starting to put in some good stores finally! lol The Roy Rogers museum is now gone. They moved that to Branson, MO about 2-3 years ago I think it was. I was born in Calif and have always lived here, would be nice to live somewhere outside Calif for a change I think but my sister in law just moved a couple of years ago to Colorado and after this last blizzard they had I think she was sorry she did! lol

When you had your last surgery did the doctor come out and say he found no adhesions or scar tissue? That's what they were thinking I had due to my 2 c-sections and tubal 10 years ago but they said there was nothing there. I was clean as a whistle as he basically put it. Made me mad because I was yet again without a diagnosis. I think I would jump for joy to have this next test and if she found even something so minute that I would be thrilled. Then I would feel that it really wasn't in my head, although feeling the pain brings me to the reality it really isn't!!! I'm just hoping that during the hysteroscopy she will take some different biopsies and I'll tell you, if the diagnosis did come back as adeno, I will be scheduling that surgery as soon as I could!!! I pray for no more pain!!! I guess the surgery can't be any worst than what we're already going through.

by the way, when you get the sharp stabbing pains (I think you were the one who said before that you get those), do they happen all of a sudden and you find yourself bending over and can hardly walk? It has now happened outside of my house and it scares me to death every time! I cannot do a lot of walking anymore, I feel like this is just taking my life away, do you feel that way sometimes? Does this happen to you also? I feel like it is so debilitating. I said that to one doctor in the past and he looked at me like I was crazy. He even asked me if I knew what the word "debilitating" means!! I was appalled! It wasn't his body! Never went back to him.

Take care,
Sherry

Hey Kuhio,
I have seen 3 GYN's and all but one suggest a hysterectomy. The one who didn't wanted to put me on a low dose birth control pill. I am 41 and smoke. The other 2 doctors thought that was absurd. I have taken a progesterone bc pill with no avail. Ablation is not recommended due to the fact my main complaint is the pain. I do bleed heavy, if you can call it that. I only pass large clots, very little flow. The final GYN I was referred to by my original doc. He is the director of a pelvic pain clinic and laparoscopy at a major university in NC. I trust his opinion. My periods have progressively gotten worse with each of my three children. Each was born by c-section. I had my tubes tied 9 years ago with my last and everything has gotten progressively worse since then. I always felt I just had to live with it until recently. I ended up in the
ER with what I thought was a kidney stone, only to find out my uterus doesn't look very healthy. OTC pain meds are not working very well anymore.

Sherri

I wanted to mention that with IBS they seem to be very insistent that you do not wake up from pain. It's one of the hallmarks that pain goes away in sleep. I would think this is connected to our female trouble and not IBS.

Does anyone else ever get irritated by nurses that just flip their hands and say "Oh clotting is just old blood" when you say you clot. I want to say, LOOK, it is just a clot or two. It's CLOTS more than FLOW. At least my Gyn is very interested when you say you have clots and says "I am NOT a fan of clots". I can remember once when I was about 28 and working a second part time job, I sneezed and I thought for sure an organ had fallen out. It was horrible. Yeah, flip your hand a ME over a clot will you.

Good luck tomorrow Kichie.
Please post how you are doing as soon as you feel up to it.

I know what you mean...We're not talking old blood with these clots...GYN told me this happened because of the adenomyosis and that my uterus was unhealthy.

Sherri

My dr. is concerned about clots too. This is probably TMI, but during my last period I passed clots as big as my thumb. They defininitely were not "old blood"-- they were bright red. This was during the first part of my period, when the cramps felt like I was being kicked in the abdomen and caused me to double over. I was at work at the time. This would last for about three or four hours, then the cramps and flow would stop, and I would spot for about a day with mild cramps, and then the heavy flow and "kicking" pain would start up again, for several hours. This continued for about a week and a half, then the spotting continued for a total of three weeks. The light flow contained what looked like "old clots" that had burst--just the tissue without the blood inside. Has anyone ever experienced heavy/light/heavy/light periods like this, or am I just strange??

	Quote:
Originally Posted by kichie I wanted to mention that with IBS they seem to be very insistent that you do not wake up from pain. It's one of the hallmarks that pain goes away in sleep. I would think this is connected to our female trouble and not IBS. Does anyone else ever get irritated by nurses that just flip their hands and say "Oh clotting is just old blood" when you say you clot. I want to say, LOOK, it is just a clot or two. It's CLOTS more than FLOW. At least my Gyn is very interested when you say you have clots and says "I am NOT a fan of clots". I can remember once when I was about 28 and working a second part time job, I sneezed and I thought for sure an organ had fallen out. It was horrible. Yeah, flip your hand a ME over a clot will you.

That's an interesting thing about IBS and sleep, because I've heard about at least one man who suffers in the same way I do; a brutal waking up, followed by a stumble to the bathroom in the small hours. Of course, his trouble might not be IBS either; it's only one of a number of nasty disorders which attack the bowel. Women have the additional disadvantage of gynae disorders, which can mimic, aggravate and be aggravated by bowel problems, which is one of the reasons I'm where I am now. It's gone beyond a point where I can be sure which symptom belongs to which condition.

As for clots...yep, and they are nowhere near as much of a problem for me as for a lot of women. I get at least a couple each month and although they are rarely big, they are always more painful than ordinary flow. 'Just' old blood eh? Is that why they make my pelvis feel as if a Shetland pony has been tap-dancing on it?

Ladies,
I had clots sometimes the size of your fist. The nurses at the gyn would tell me the same thing, its old blood. NOT. I wish you ladies in waiting alot of luck ahead. I can tell you from my experience that it was worth having the surgery. I feel great now! Kim

K2
I am with you. My clots as big as my fist. I had to wear the disposible bladder panties to keep from leaking from them. I had non-stop bleeding and clots for over 3 months. My Dr never mentioned Adenomyosis until after the TAH and the Path report came back. I had never heard of it either. I wish I had your support before when I was going through the pain and clots. I feel so much better now and can't wait until all is healed and back to normal activity.

Oh by the way, for you sister who have a little extra hanging around the house. This was posted on another Thread. WWW.Tamponcrafts.com It is hysterical.

I have been told I was having clots was due to the fact I'm getting old. Maybe my uterus is old and sick but I'm a pretty happy 41 year old. Passing these clots through the cervix is the cause of horrendous pain. When there is no flow and only clots it makes wearing tampons painful and useless.

Sherri

Sherry

You should feel better after Feb. 9th. I will be thinking of you.
As far as our age. My Dr asked how old my mom was when she had her TAH, I didn't know. Well she told me prior to my sx that she was 43 too. She was told she had fibroids, she went through the same thing.. hvy clotting periods, no relief from the pill or d&c. I thought that was very interesting, my doctor was not suprised, says alot of daugthers suffer from the same problems as their mothers.

I guess that confirms it: I am becoming my mother after all