Guidance Needed :) I feel so alone

Hello! I am 39 years old and had a tubal ligation after my csection with my third child five years ago as I was done having biological children. I was "normal" til my milk all of the sudden dried up.nursing my.child (my other two I breastfed for two years). I had the perfect cycle, every 32 days, ovulation, no problems with periods. But that was not to be the case after he was born. Like I said, my milk dried up....I began have clotting with my periods...here I am five years later after among other things an emergency D and C, blood transfusions, severe anemia from excessive bleeding, hormone tests (I make all the hormones perfectly), bankruptcy from the first surgery, birth control pills (which I was trying to avoid with getting my tubes cauterized!), Mirena, passing out, blood clots evrry 10 minutes the size of plums, exhaustion, a sad husband....my OB saw the Mirena was causing me to get severely anemic and we pulled it out. I'm on a strong dose of progesterone to.stop the bleeding.

Well its gotten worse. I can barely.move and feel like I'm in the late stages of early labor for the past four years! I'm sad. Exhausted. Work full time as q preschool assistant director and have six children.
I can't do this anymore
Ablation :s the.next step. I'm scared. My husband can't be with me as he used.up all his days taking care of me before the mirena was put in this spring.
what can.I expect? Will it help? I feel so alone. I can't really bring this up with anyone except my husband. I.just want to rip my.uterus out and be done! I'm scared. I hurt. And I am exhausted. Why.is my.body doing.this??? Thankyou for just being here amd letting me let it out

Sorry for all the problems you are having. As for the ablation - I can only pass on what I have read here. Others that have had them I am sure will be along. It seems the ablation only works for a while then they end up having a hysterectomy. Remember though - women that come here are the ones with problems and/or looking for answers. So I don't know the overall percentage that don't work for long.

Kate Ann, has your obgyn given you a diagnosis? I see that you have awful symptoms, but does your medical team know what is causing them? If not, it might be time to push for them to find out--that way you can look more thoroughly at treatment options.

Regardless, I'm sorry you feel so miserable ((hugs)) and hope you get relief soon <3

Right that's what I am seeing and have heard. I want to just have a hysterectomy.but my dr and my husband think this should be the first big step (besides the iuds and bc pills that failed) thankyou for replying! I mostly just feel so alone and that my life is shrouded in this excessive bleeding.and exhaustion but I can't tell anyone! Its so.isolating. I can't do anything because I'm afraid of bleeding through my.cup, my.pads and my.clothes!

It sounds to me like it could be adenomyosis. However it could be other things too. Have you had an endometrial biopsy? An ultrasound? MRI? Sometimes these things are very helpful in finding a diagnosis. I agree that you should seek out someone to give you a second opinion. Having the proper diagnosis can go a long way to making sure you get the proper treatment and don't suffer through more treatment, like the mirena coil, that just don't work. Here is a link to our Gyn Diagnosis articles. And here is a link to our Treatment alternatives articles. They are all fairly short, but they can at least give you some info to use to question doctors about planning the next steps.

No cancer. No fibroids. No problems making hormones. (The fact hormone treatment isn't working for me in.high doses makes me think my hormone receptors have been damaged?). Np stds. Just an overactive uterus that keeps making a lining for a non existent baby and them.gets so thick it falls out. Has anyone heard of this?

Like I said, that makes it sound like adenomyosis. You might want to look through the articles I linked and read about it.

Hi Kate Anne,

I am so sorry to hear what you are going through. Please don't feel alone. You are amongst a wonderful community of women here.

I can only give you my own personal experience. I too suffered after my second child was born. Over the past 11 years,my monthly period went from being 2-3 days, to being a month long sick event. Pain, clotting, painful sex, cysts, exhaustion, endless tests, medications, ultrasounds, BC and then some. My doctors could not figure out what was wrong with me. I have a friend who just had ablation done. She was pleased with it and her period did stop. I was booked for October 10th for ablation. About 2 weeks before, I had a period like no other. I bled through my pants in the middle of the mall. Covered down my pant leg. The pain I suffered the entire month prior to ablation, was unreal. I was taking T3's like candy and that was just during ovulation. So needless to say, I asked my doctor and did my research about the chances of the pain going away. That day I changed my surgery to a hysterectomy. If there was a chance I was going to continue to be in pain, I didn't see the point for myself. I knew this was a huge decision to make and I did not take it lightly. My family and husband knew this was stealing my daily quality of life.
So here I am, 3 weeks post op tomorrow. It is a major recovery. However, I can see the light at the end of the tunnel now.

It sounds like you have an amazing partner in life who will support your choice. Do your research on both procedures. Get second and third opinions. But don't suffer any more. And please know you are not alone. Sending you cyber hugs. :-)

	Quote:
Originally Posted by Kate Anne Hello! I am 39 years old and had a tubal ligation after my csection with my third child five years ago as I was done having biological children. I was "normal" til my milk all of the sudden dried up.nursing my.child (my other two I breastfed for two years). I had the perfect cycle, every 32 days, ovulation, no problems with periods. But that was not to be the case after he was born. Like I said, my milk dried up....I began have clotting with my periods...here I am five years later after among other things an emergency D and C, blood transfusions, severe anemia from excessive bleeding, hormone tests (I make all the hormones perfectly), bankruptcy from the first surgery, birth control pills (which I was trying to avoid with getting my tubes cauterized!), Mirena, passing out, blood clots evrry 10 minutes the size of plums, exhaustion, a sad husband....my OB saw the Mirena was causing me to get severely anemic and we pulled it out. I'm on a strong dose of progesterone to.stop the bleeding. Well its gotten worse. I can barely.move and feel like I'm in the late stages of early labor for the past four years! I'm sad. Exhausted. Work full time as q preschool assistant director and have six children. I can't do this anymore Ablation :s the.next step. I'm scared. My husband can't be with me as he used.up all his days taking care of me before the mirena was put in this spring. what can.I expect? Will it help? I feel so alone. I can't really bring this up with anyone except my husband. I.just want to rip my.uterus out and be done! I'm scared. I hurt. And I am exhausted. Why.is my.body doing.this??? Thankyou for just being here amd letting me let it out

Thankyou everyone! I'm going in for blood work today and have a big appt Thursday. Adenomysosis sounds exactly what I have!!! And why all the "fixes" made it worse. This causes me to really doubt an ablation is the solution. I.am going to talk to my OB and share my ideas. Thankyou again!

I hope you get some answers, Kate Anne. I have a diagnosis of adenomyosis--confirmed by MRI--and am scheduled for a total hysterectomy in three weeks. I can relate to a lot of your symptoms--constant pain, excessive bleeding, clots, lengthy periods (and a short cycle to boot), anemia, the list goes on. I'm lucky to have an obgyn who suspected adenomyosis from the beginning, and who was supportive of a hysterectomy. I'm told that not every obgyn is as knowledgeable about the condition, but I hope that your obgyn will listen to your concerns and take appropriate action. My obgyn did say that hormone therapy was an option--although I'm not a candidate for it because of liver problems. But if it is adenomyosis it's tricky to get a firm diagnosis--it's my understanding that a firm diagnosis can only be given by post-surgical pathology. I was "lucky" that mine is bad enough to show on an MRI. At the end of the day, if you have tried multiple other solutions to no avail, it's time to start gathering other opinions. You're the one that's experiencing this discomfort and you are your own best advocate. I hope you get relief soon.