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Anyone else with organs adhered to their uterus? Anyone else with organs adhered to their uterus?

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  #1  
Unread 06-15-2016, 11:44 AM
Anyone else with organs adhered to their uterus?

Hello,

I was diagnosised last month with possible adenomyosis and endometriosis. I have always had long, heavy periods and a lot of clots and bad cramping, very painful BM's, and intercourse.

The last 6 months my pain has become constant through the entire month, along with a heaviness in my pelvic area, severe lower back pain (worse around period), extreme exhaustion and bloating.

I had three c-sections in the past and I have had a tubaligation.
I was also informed last month that my bladder is adhered to my uterus in such a way that my Obgyn is not comfortable doing a hysterectomy because of the risk to my bladder. She consulted with another Obgyn as well.

She started me on progestin pills for the next three months to see if it will help me. I'm not comfortable with the idea of an IUD....I'm not sure what I should do from here.

I have been using NSAIDS to try and control my pain, and now tecta to help with my stomach from them! I can not function anymore without either med.

I would like to hear from others who have had to deal with bladder or other organs being adhered to their uterus and still had a hysterectomy. I need to know that I am not stuck without the option of one!
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  #2  
Unread 06-26-2016, 06:40 AM
Re: Anyone else with organs adhered to their uterus?

You absolutely are not alone. My ovary was adhered to my uterus and bladder and my uterus was also adhered to the bladder. My other ovary was adhered to my body cavity. My surgeon was a gynecological oncologist and he was able to untangle everything enough to remove via LAVH. Is your doctor an endometriosis specialist? They are the doctors who know how to excise all the endometrial implants so the endo cannot cause symptoms after hysterectomy. They are also good at handling adhesions. If you look at our endometriosis articles, there are some very informative articles that may help answer your questions. You should also seek a second opinion, preferably from and endo specialist. My doctor did excision surgery, was able to remove my organs that were stuck together, and I have had no signs of endo or adeno pain for over 3 and a half years even with using HRT. I wish you the best!
  #3  
Unread 07-11-2016, 03:01 AM
Re: Anyone else with organs adhered to their uterus?

Hi, I'm new too. I read your post and related to all of it. I have an ovary adhered to my uterus and that is also attached to my bowel in some way too. I was given tramadol and mefermeric acid pain killers with a stomach liner. The pain killers didn't touch the pain, left me like a zombie and gave me really bad constipation which made my pain 100 worse. I am currently waiting for date to have ovary removed but I am now thinking should I just have it all out as I'm 48. I have been offered an kid so many times and don't want it because of all the bad stories and firstly having it put in. Then if it doesn't work having it removed again. I was put on provera by my gynae which he said take for 3 months to stop periods. I did well on it regarding pain but only took it for 2 weeks as I was due to have surgery and was worried about clotting possibilities with surgery. My date was then cancelled! Part of me really wants the hysterectomy but I'm concerned I will be worse off afterwards if things don't go smoothly and I'm petrified they will perforate my bowel.
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