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Help! Do I really need the hysterectomy surgery?? Help! Do I really need the hysterectomy surgery??

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  #21  
Unread 02-16-2015, 06:48 PM
Re: Help! Do I really need the hysterectomy surgery??

wow, you ladies have been so helpful. I've actually cancelled the surgery (definitely felt a bit rushed, which really isn't good given these are pretty important body parts!) and going to see the top Gyn Onc in the Houston TX area. I'll likely have to wait to see her but don't care. If she concurs with his decision, I can live in peace that the right road was taken. I think I'd always live with the "what if" if I didn't do this. I'll keep you all posted. Thank you so much for this forum. It's a great thing to talk to others in the same boat.
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  #22  
Unread 02-16-2015, 08:42 PM
Re: Help! Do I really need the hysterectomy surgery??

I had basically the same problems as you (fibroids, heavy bleeding, a cyst and thickened uterine lining). I had my vaginal hysterectomy on 2/3/15 (kept my ovaries). Surgery wasn't to bad and I feel really good two weeks post-op. I'm still tired but hardly had any pain after the first couple of days. I really wish I did this sooner. I kept putting it off surgery because I was scared. Now that's it's done I am so happy! Good luck with your surgery!
  #23  
Unread 02-17-2015, 07:26 AM
Re: Help! Do I really need the hysterectomy surgery??

Hi Laurie
I am glad you are seeking a 2nd opinion and kudos for selecting a gyn/onc as a major thing to eliminate is whether cancer possibly could be lurking. May you get an all clear re "C" but even if there pls know you very likely will have caught things early which for endometrial cancer at least means surgery often can be the FULL cure. Good luck and pls keep us updated.
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  #24  
Unread 02-17-2015, 08:47 AM
Help! Do I really need the hysterectomy surgery??

  Quote:
Originally Posted by lauriefromtx View Post
wow, you ladies have been so helpful. I've actually cancelled the surgery (definitely felt a bit rushed, which really isn't good given these are pretty important body parts!) and going to see the top Gyn Onc in the Houston TX area. I'll likely have to wait to see her but don't care. If she concurs with his decision, I can live in peace that the right road was taken. I think I'd always live with the "what if" if I didn't do this. I'll keep you all posted. Thank you so much for this forum. It's a great thing to talk to others in the same boat.
It's great that you have cancelled and are seeing another doctor that will hopefully put you at ease with whatever decision needs to be made.
If your appointment is a long way off you may want to consider treatment for the hyperplasia. It will at least stop/slow the bleeding and thin your lining. This could prevent the hyperplasia from getting worse too.
Even simple hyperplasia shouldn't go untreated. There is no good reason for you to suffer while you wait.
Best wishes to you.
  #25  
Unread 02-17-2015, 09:03 AM
Re: Help! Do I really need the hysterectomy surgery??

The funny thing is.....I was bleeding super heavy for almost 4 weeks, and the day I went to see the Dr. and he did his ultrasound, took some to do a biopsy, etc. it stopped....I mean stopped, not a drop after that. It seemed really odd....like something he did made it stop, but that makes no sense. I haven't bled again since then....will be 4 weeks soon. Maybe I will again, maybe I won't. Hard to say because I am approaching menopause (51 y/o). Just really odd and adds to my not feeling like this is all a slam dunk. If I was bleeding heavy for months consistently, different story. Will be good to get some different medical perspectives.
  #26  
Unread 02-17-2015, 09:34 AM
Re: Help! Do I really need the hysterectomy surgery??

Hi Sweetie,
Just wanted to add what you probably already know - perimenopause can cause excessive bleeding, long periods of no bleeding, etc. so perhaps it is all/some related to this but you are listening to your body, being proactive and checking things out and hopefully will get solid answers soon.
BTW, I did not suggest a second opinion because I thought your first, long experienced doc was wrong,etc but whenever surgery is suggested I believe it is almost always wise to get a second opinion. I suspect with his experience your original doctor may have had a number of women with similar symptoms who in fact turned out to have pre-cancer or cancer post surgery and thus decided hysterectomy was the safest route for you. FYI. although the biopsy only showed hyperplasia, do remember that is a very minute sampling of the lining and a D&C with hysteroscope in fact is the gold standard to rule out cancer..Again, it is very wise you chose a gyn/onc as your second opinion doctor as he can best determine whether this is or is not a possible concern.
  #27  
Unread 02-17-2015, 09:41 AM
Help! Do I really need the hysterectomy surgery??

I thought my periods were over because I did not have one for about 11 months then the dam broke and I had one that lasted 84 days. Yep, almost 3 months. Every morning my bed was like a crime scene and it was truly terrible. It was also fibroid related. I scheduled UFE getting the best IR I could find. The fibroid was embolized and I have never had another period. I had Embo at 51 years old. My uterus was 22 weeks preggers. Now all that is gone by a miraculous process after Embo called hyalinization degeneration. This is the bodily process of disposing of dead tissue not considered foreign. I'm so grateful to have had UFE because Iwas desperate to keep my body parts. I wanted the PROBLEM treated only. I don't mean to bash doctors but many were very agressive in giving me one option that seemed too drastic for my one problem: a fibroid. Some were mean, others were comedians but all completely disregarded my feelings making this time one of the lowest in my life. I think it's natural to harbor a grudge and be overly cautious because this speciality is paid by body parts, does not practice full disclosure of treatments outside their speciality and has recently been under fire by the public and FDA. Hystetectomy is not the end all, be all solution. Women have to be careful. Not all are trustworthy. Sadly.

  Quote:
Originally Posted by lauriefromtx View Post
The funny thing is.....I was bleeding super heavy for almost 4 weeks, and the day I went to see the Dr. and he did his ultrasound, took some to do a biopsy, etc. it stopped....I mean stopped, not a drop after that. It seemed really odd....like something he did made it stop, but that makes no sense. I haven't bled again since then....will be 4 weeks soon. Maybe I will again, maybe I won't. Hard to say because I am approaching menopause (51 y/o). Just really odd and adds to my not feeling like this is all a slam dunk. If I was bleeding heavy for months consistently, different story. Will be good to get some different medical perspectives.
  #28  
Unread 02-17-2015, 10:25 AM
Re: Help! Do I really need the hysterectomy surgery??

Sadly more and more professions have folks that are not trustworthy although thankfully I've yet to have a doctor I felt was distrustworthy but am sure there are some out there as in all professions. I also think the vast majority of doctors take their profession seriously and want to heal their patients and don't seek to "charge by the body parts"- I've never heard this before?- .but again given human nature there probably could be some doctors focused mainly on the money. I do know that IF I ever did not trusted my doctor, I immediately would drop him/her and seek another. In fact I left one PCP as I did not like the way he spoke to me and was so dead set on dxing me BEFORE an X-ray; etc., (and in fact his DX was WRONG); I did not care if he was just having a "bad day"as his receptionist said; I'm always respectful to others and expect the same especially from a professional.
In any case, Laurie wisely is getting a second opinion and from a specialist and hopefully this will help her greatly as she moves toward making the best decision re treatment in her particular case.
  #29  
Unread 02-17-2015, 02:17 PM
Re: Help! Do I really need the hysterectomy surgery??

Peggiesue you are lucky to have encountered mainly good doctors. I have had just the opposite experience most of mine weren't considerate of me at all or of family members that I have seen treated for serious issues. To me doctors fall into four categories from personal experience - money driven, surgery happy, don't care/ don't want to help/ or don't know how to help, and the few that truly care about their patients.

Laurie - I think it is wonderful that you are getting a second opinion and by a GYN/ONC. You are worth it. Hopefully they will be able to give you more answers and help you find a treatment that is right for you.
  #30  
Unread 02-17-2015, 07:10 PM
Help! Do I really need the hysterectomy surgery??

  Quote:
Originally Posted by lauriefromtx View Post
The funny thing is.....I was bleeding super heavy for almost 4 weeks, and the day I went to see the Dr. and he did his ultrasound, took some to do a biopsy, etc. it stopped....I mean stopped, not a drop after that. It seemed really odd....like something he did made it stop, but that makes no sense. I haven't bled again since then....will be 4 weeks soon. Maybe I will again, maybe I won't. Hard to say because I am approaching menopause (51 y/o). Just really odd and adds to my not feeling like this is all a slam dunk. If I was bleeding heavy for months consistently, different story. Will be good to get some different medical perspectives.
That's great. Hopefully you are dealing with simple perimenopause stuff.
Not having a period for six and then having a long heavy one isn't unheard of.
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