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MRgFUS (MRI guided Focused Ultrasound)
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03-28-2010, 08:01 PM
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HysterSister
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Re: MRgFUS (MRI guided Focused Ultrasound)
Hi. I'm sorry to hear about your pregnancy.
My fibroid did shrink a bit, so now it is about 12-13cm. Because of the way he procedure is now regulated they can't zap an entire fibroid my size in the time they have. It took almost 7 hours to get about 40%. This was obviously not enough to make a big difference for me. This procedure could be perfect for you with a smaller fibroid. You would need to be evaluated to see if you would be a candidate.
I'm now kind of back at square one. I'm anemic from heavy bleeding, and have discomfort from pressure. I am terrified of surgery, so will try everything else first.
Many alternative approaches, such as herbs, acupuncure, homeopothy, nutritional changes, etc. are said to be much more effective for small fibroids. I wish I had done something while mine was still small. Once they get big they are so much harder to deal with.
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03-28-2010, 09:51 PM
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HysterSister
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Posts: 157
Hysterectomy:
Surgery Type: TAH
Ovaries: Undecided
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Re: MRgFUS (MRI guided Focused Ultrasound)
Hi green123,
thanks for responding to my question/s so quickly. I heard also that to take care of them when they are smaller is much easier; however, since I am asymptomatic unless I get pregnant, my fibroid is not an issue so sometimes military docs will not do anything for something that's not giving any problems. They tend to sometimes wait until the problem presents symptoms, which sometimes is too late, before they address things like fibroids. In this case I don't think I will get a referral but I will speak with my primary doc since I have my annual physical on Thursday of this week.
I hope your fibroid gets addressed so that you don't have to have surgery. I heard some good and some bad about hysters, but I'm a chicken about surgery. I have bad reactions to meds and whatever else may go wrong.
I am considering herbal remedies to rid myself of this lil bugger. I saw a Dr. Oz show where one woman said that she ate a lot of fiber to get rid of hers and it worked. Lots and lots and lots of raw veggies. Then I saw on his web site about hysterectomies and how many hysters are unnecessary. My former gyn recommended one to me due to chronic anemia but the military gyn said my periods are too light to be a significant contributor to my anemia--period lasts from 2-5 days and often just a wipe on the TP.
If I find something that helps me I will certainly post it here in the forum so that we can all benefit.
Take care and I really, really hope you are able to avoid the surgery.
Again, thanks so much for the info.
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03-30-2010, 09:32 PM
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HysterSister
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Posts: 157
Hysterectomy: May 17th, 2010
Surgery Type: TLH
Ovaries: Kept 1 or both
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Re: MRgFUS (MRI guided Focused Ultrasound)
To shrink fibroids and reduce the bleeding, I tried several ways to reduce estrogen load. I stopped eating feedlot red meat (loaded with hormones) and cut out xenoestrogenic personal products. I tried antiestrogenic supplements DIM and calcium d-glucarate (these work for some, didn't work for me). I lost weight ( fat cells make estrogen and hold toxins).
I did many of these things as well-but as a vegetarian what I had to exclude was soy products (high in estrogen like plant compounds) and limited my dairy intake for the same reason as avoiding beef. I also stepped up my aerobic exercise to one and half hours per day (brisk walking and cycling) and lost some weight. These steps didn't shrink my fibroids, but they helped my body with the bleeding (it reduced by a significant amount) and pain. A year and a half later I'm opting for a hyst-my doc told me I'd done a great job of coping health wise (no anemia!) but the fibroids have kept growing (4 months pregnancy equivalent) so I'm getting them out before they get the best of me.
good luck!
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03-30-2010, 10:05 PM
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HysterSister
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Posts: 157
Hysterectomy:
Surgery Type: TAH
Ovaries: Undecided
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Re: MRgFUS (MRI guided Focused Ultrasound)
Hi Zen.
I agree with you. I know I need to find the cause of my anemia, especially since I have a breast tumor that was at last check, still B9. One of my friends had breast cancer and she said that her cancer was inside her so-called B9 tumor. Apparently, some cancers are inside the tumor. She said her surgeon showed her the cancer by cutting the tumor in half and the B9 tissue had encased the cancer.
I go in to my PCM Thursday and I am going to request a consult to have the tumor removed. I also have a CBC with the hematologist tomorrow to see if the last iron treatment held. I move around a lot--am the spouse of active duty military--and this new hematologist told me he has to start from scratch and if the last iron treatments don't maintain my iron levels, he's going to do some extensive testing on me.
I'm not stressing over this like I did when I first learned of the possibilities that can be associated with anemia, but I am just hoping all this turns out without the existence of cancer. One hematologist said it's probably idiopathic while another does not necessarily believe in idiopathology.
Hi onthefence.
You have to do a lot to cope with fibroids. I have a question for you though. If the exercise does help and you are not anemic, why the hysterectomy...if you don't mind my asking? Is there some sort of pressure or something related to the fibroids and their growth that is affecting your quality of life? I am now starting to wonder if my periods are so light because the fibroid is consuming all the blood. Does that make sense? I asked one gyn I had and she said it's not what's going on and that I should be happy to have light periods, so I let it go.
Oh well... If I'm not back on the boards in the next couple of days you guys enjoy your holiday weekend and welcome Spring and wearing white shoes again with open arms!
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03-30-2010, 10:25 PM
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HysterSister
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Posts: 157
Hysterectomy: May 17th, 2010
Surgery Type: TLH
Ovaries: Kept 1 or both
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Re: MRgFUS (MRI guided Focused Ultrasound)
Hey Crunches! I said the bleeding was reduced...but I still spent yesterday (thankfully off from work) changing superplus tampons every hour on the hour for 12 hours so....I guess it depends on your individual condition (my doc and I are convinced that good nutrition and exercise have kept anemia at bay)! But yes, my fibroids have grown to the point of constant discomfort-lower back pain and lots of pressure plus my gyn told me two were growing very close to the femoral artery-so close already that I may require a TAH to have enough room to safely do the hyster. I decided it was better to get them out now before my health gets compromised.
We all come to this decision after much thought and because of a variety of complications. I hope you can find a solution that both works and makes sense for you in your particular situation.
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04-01-2010, 10:27 AM
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HysterSister
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Posts: 157
Hysterectomy:
Surgery Type: TAH
Ovaries: Undecided
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Re: MRgFUS (MRI guided Focused Ultrasound)
Thanks for responding to my post onthefence.
Your fibroids being close to your femoral artery...how scary! Just the thought of them being in the vacinity of a major artery makes you wanna volunteer for the TAH just to be safe! Your bleeding seems very severe too so I hope you get all the relief you need. Your flow has to be dominating your life when it shows up. I can't imagine so I am not even qualified to comment any further. I just needed to know what signs and symptoms to be watchful for should my fibroids become worse...only time will tell. Right now though, if I were to put on a superplus tampon I would probably be able to wear it for two days! I have tried superplus for safety a couple of times when I had to work long hours on the road, but let me tell you, I didn't have enough flow and I was in pain from cramps during the work day. Then when I went to remove the darn thing it was 'stuck' in my vaginal canal because it never became lubricated enough from my flow to require that level of absorbtion.
I wish you the best and most awesome recovery with zero complications because I know this was a very tough decision for you (and most of us who have been forced to decide on a hyster for that matter). I never judge anyone but I do believe in informed consent and it seems that you do too. I am just hoping I am not forced to make that decision until I am mentally ready (if there is such a time) but as you and others are testimony, only time will tell.
Take care and be well.
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