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cystocele 8 weeks post op cystocele 8 weeks post op

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  #1  
Unread 11-10-2006, 06:53 AM
cystocele 8 weeks post op

Ihad an appointment wed for some leaking and really painful intercourse. Was discovered I have a cystocele. At first he suggest we wait four months and re-evaluate. I told him I didn't think that was a good option. So I go 12-11 for a test to see at what point I leak and so forth.
Even that 5 week wait seems too long. Since in two weeeks time it's gone from urgancy to actual stress incontinance and from enjoyable relations to that last time I was crying from the pain and waddleing all the next day.
I have a couple of questions for those of you who have had these or currently do.
He said they will probably do a lap sling procedure take 20 minutes out patient and all is well in the world. If I am bulging out to the point where I feel it constant does a ant-repair need done as well?
Were you able to have this if you had a lot of scar tissue (two c-sections now the hyster)
If I opt to not have surgery I understand in all likelyhood this will only get worse? Do you have painful intercourse all the time, or does it come and go?
I already do kegals and have for years, can pelvic tilts help, and I am guessing ab exercises are out? I have a job where I work a 10 hour day on my feet, no breaks, can this worsen the situation?
I'm only 34, and admit to having very little knowledge on this. I googled it and find lots of info on what it is, but little on how a day to day experiance is. Like the pain aspect of it which he never addressed.
Any info or experiances you could share would be great. I am trying to decide whether to wait the 5 weeks or ask to push up the appointment or just go and see a uro if they can get me in sooner.
Thanks,
Jen
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  #2  
Unread 11-10-2006, 09:47 AM
cystocele 8 weeks post op

Hi Jen. I ended up with a recotcele because of my hyst. After reading all I have read here and elsewhere about failures with repair I am seeing a Pelvic FLoor Specialist. I saw her for the 1st time yesterday. I actually have both bladder and rectocele (bladder is worse) . She used a machine to graph the strength of my pelvic muscles and whether I was doing the Kegels right. SHe says we can fix this with therapy and no surgery by the end of the month. SHe gave me a website to help find one of the 2000 specialists in the country. Maybe one is by you. My thought (this is not covered by my insurance) is that I would do or pay anything not to have a repair. I especially hear the the bladder repairs cause many problems after. I hoe this helps you!

www.womenshealthapta.org
click on about us and then on "what is womens health PT. It will give you names and numbers!

The good part for me is I fell empowered not just waiting for some DR to try and fix this and if it does not work I will know I tried everything!!! Good luck!
  #3  
Unread 11-10-2006, 10:38 AM
cystocele 8 weeks post op

I sent an email to see if there is someone close by. I hope so, the symptoms are getting worse. Where I was feeling leaking here and there I now feel it several times through the day and am not able to void easily, starts and stops and then feels like something is blocking it, kind of like that feeling when you have a UTI? I admit, I haven't been with hubby since that last time, scared to death it's going to hurt like that again. Thanks for the web-site, hope I hear from them soon and they feel it's something they can help with. I checked your date, yours happened real quick after your surgery as well. Do they suspect it was there to begin with and once the support of the uterus was gone it became more obvious? And do you mind me asking how old you are?
Jen
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  #4  
Unread 11-10-2006, 10:48 AM
cystocele 8 weeks post op

I am 52 and I noticed it a week after surgery. Looking back I had issues I just had never heard of prolapse. I peed when I sneezed and had to go all the time. I get up 2 or 3 times a night. Dr thinks the upper muscles must have been keeping it at bay and when they were gone...oops! He gave me the "Oh I can fix that in 20 min" but having been here I knew to ask about complications. He said he would not even touch the bladder issue and admited to all the problems with rectocele repair. He threw the PT out as an option and I can't tell you how impressed I was with all the info she gave me and her passion about it all. I have nothing to lose and so much to gain by trying.

How old are you and did you have issues before. I really hope there is someone nearby that does this for you. There aren't that many. Please let me know if you have any luck!
  #5  
Unread 11-10-2006, 10:52 AM
cystocele 8 weeks post op

I'm 34. Had urgency issues before hand, had even asked doc for deterol or something and was told there were too many side effects but at that point I wasn't leaking. Things were fine first few weeks post op, no urgency and certainly no leaking. Just seems like this happened so fast and is worsening quickly. I told my sis how the doc said it would only take 20 minutes and she laughed and said yeah, but this is you Did they give you an idea on how long they thought your PT would need to be until you saw a difference?
Jen
  #6  
Unread 11-10-2006, 11:15 AM
cystocele 8 weeks post op

Yeah...20 minutes for them and 8 weeks and multiple problems after for YOU! I love my Dr but I think he was very flippant about the seriousness of the whole thing! The PT says by the time I go back to work 12-1 it should be resolved. I see her once next week to see it I am doing things right and add some exercises and then 2 weeks after that. She thinks then maybe once more a month from then. It is costing 80.00 a visit out of my pocket so I am glad it won't take too long. I will be able to tell you in 3 weeks whether it works. However with your issues you sure need to get something started quickly. I am sorry you are going through this at such a young age. PLEASE let me know how you are doing and I will let you know how next weeks appt goes! I am going to do my exercises religiously, not pick up anything over 10 pounds (even my sweet baby granddaughters) and pray alot!! I will send some good thoughts your way!
  #7  
Unread 11-10-2006, 12:56 PM
cystocele 8 weeks post op

I can tell you what it's been like dealing with the cystocele, but he didn't repair it (ugh!! *banging head*) so I can't give any insight on the surgery or recovery.

I just turned 25 and have been dealing with these prolapses (uteran, cystocele, & rectocele) since Jan '04. In *my* experience, sex always hurt. It didn't feel okay sometimes and bad other times..it always felt the same (painful). We haven't resumed relations yet, so I don't know if it's improved at all...but I still have the cystocele. Going into surgery, he was planning on fixing the cystocele..and he was going to use some kind of graft material to hold it up (anterior repair) and use the TVT (sling - which I guess can be done laparoscopically?) as well.

I am personally very irritated with my gyno. He was supposed to fix it and I'm not sure why he didn't. I was pretty out of it when he was talking to me after surgery and I just don't remember. I do have a urologist and saw him last week (as a 6 week follow up from a different surgery) and mentioned the problem to him...he denied me an exam because he said to get a good look at the problem, it would hurt because I'm still healing down there...so he wants to see me in 4 months (another follow-up to previous problem) and we can do an exam then. I'm very, very anxious to see what the gyno has to say next week. I do *not* want to wait another 4 months or more to get this resolved. I'm 25 years old with my bladder falling out and I wet myself every day (sometimes multiple times)...this is just ridiculous!!

I don't blame you for not wanting to wait the 4 months or even the 5 weeks!
  #8  
Unread 11-10-2006, 02:24 PM
cystocele 8 weeks post op

I don't know what I would do if I had to deal with the incontinence issues you both have! JK, have you tried to talk to your surgeon about why he did not do the repair? I sure would be curious! You just can't live a normal life like this. DId you look on the link to see if there was a PT specialist in your area. The one here is Tucson does alot of work on bladder issues. ALso why does the uro have to wait so long. I would thing 6 weeks after he should be able to get a good look at what is going on! (but what do I know) I am going to let you both know how the PT works. I don't have leakage but she says my bladder is really down there. Please hang in there. I hope things turn around for you! Kathie
  #9  
Unread 11-10-2006, 02:32 PM
cystocele 8 weeks post op

I think the uro is waiting that long because it wasn't his original issue and I am seeing my gyno/surgeon next week...so the uro really doesn't seem concerned with it at this point..since a different doc has been doing everything and hasn't released me yet..so i'm still under his care, i guess. And, the uro wants to see me in 4 months for a different issue..so i think he was just saying that we'd go ahead and do an exam while I was there for the other issue (kidney stones). Either way, i don't want to go another week like this, much less 4 months.

I have my 6 week follow up appt next week (at 5 weeks and 2 days) and will be asking him WHY in the world he didn't fix the cystocele. I'm REALLY curious because one of the big things that was discussed as a benefit of having all this surgery done at once...was NOT having to have another surgery for another 10 yrs! I wanted ONE surgery...so that I'd have ONE recovery...because I've got 2 toddlers!! Just SO completely frustrating.....sorry to hijack!!

I hope the PT works for you kathie!!
  #10  
Unread 11-10-2006, 03:01 PM
cystocele 8 weeks post op

Rant away... I would be sooo upset. If the PT does not work and I have to have another surgery it could not be prevented. I would be LIVID in your case and I don't know how you are surviving with 2 toddlers! I do know the PT told me no lifting over 10 pounds while I was retraining my muscles. Of course I had committed to taking my 8 mo old 18 pound granddaughter to Dr today. I did it very carefully but she said the lifting causes your pelvic muscles to spasm (I could not feel it but you could see it on the machine she hooked me up to). Then you can't retrain them if they are in spasm. I know the lifting issues with little ones is impossible but try and lift as little and as carefully as you can. It can be contributing to the problem. Big hug to you!
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