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daVinci Robotic Hysterectomy, second thoughts daVinci Robotic Hysterectomy, second thoughts

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  #1  
Unread 02-15-2015, 04:13 PM
daVinci Robotic Hysterectomy, second thoughts

Hi there, I am 31 years old and have had pelvic and low back pain for awhile now, along with constant spotting. I have had numerous trans vaginal ultrasounds and have been diagnosed with possible endometriosis. I have never had a normal menstrual cycle either, I only have a cycle every few months. Lately when my cycle is supposed to start it is just pretty much spotting for 2 weeks straight and no other symptoms. I have currently been spotting for 3 weeks.

Due to my symptoms and possibility of endometriosis, my Gyn has scheduled me for a hysterectomy on the 25th of this month. She suggested the Robotic method, which scares the living daylights out of me, considering I just saw on the TV a local lawfirm is backing a class action law suit against the company who made the machine because of numerous complaints and even deaths due to burns, etc from the machine.

I am terrified to the point where I want to cancel surgery altogether. I have gotten a second opinion, was told the robotic surgery was the way to go also, and my Doctor reassures me each time I have my doubts, but I just cannot shake the feeling that this is not the right method for me. I would like to hear the good and the bad about this method, and/or any other method. My sister recently had a hysterectomy using the LAVH method and is doing well. I am wondering what the push is for me to have a Robotic hysterectomy.
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  #2  
Unread 02-15-2015, 04:28 PM
Re: daVinci Robotic Hysterectomy, second thoughts

Hi Penny-Lane,

I know how difficult this decision is. Only you can make that final choice if you want to cancel the surgery or not. I didn't want to have surgery either,but as we know, there are risks with ANY type of surgery ,whether it's robotic or not. For me, my main concern was the spread of cancer. I had 4 different surgeon's opinions before I gave in to the physical pain. I just couldn't deal with the debilitating pain any longer. Would I do it again? I really don't know!? There are pros and cons; i guess in a sense, i've traded in one type of pain for another; my stomach is upset a lot,and my back hurts! Whatever you decide, I'm wishing you all the best!

  Quote:
Originally Posted by Penny-Lane View Post
Hi there, I am 31 years old and have had pelvic and low back pain for awhile now, along with constant spotting. I have had numerous trans vaginal ultrasounds and have been diagnosed with possible endometriosis. I have never had a normal menstrual cycle either, I only have a cycle every few months. Lately when my cycle is supposed to start it is just pretty much spotting for 2 weeks straight and no other symptoms. I have currently been spotting for 3 weeks.

Due to my symptoms and possibility of endometriosis, my Gyn has scheduled me for a hysterectomy on the 25th of this month. She suggested the Robotic method, which scares the living daylights out of me, considering I just saw on the TV a local lawfirm is backing a class action law suit against the company who made the machine because of numerous complaints and even deaths due to burns, etc from the machine.

I am terrified to the point where I want to cancel surgery altogether. I have gotten a second opinion, was told the robotic surgery was the way to go also, and my Doctor reassures me each time I have my doubts, but I just cannot shake the feeling that this is not the right method for me. I would like to hear the good and the bad about this method, and/or any other method. My sister recently had a hysterectomy using the LAVH method and is doing well. I am wondering what the push is for me to have a Robotic hysterectomy.
  #3  
Unread 02-15-2015, 04:55 PM
Re: daVinci Robotic Hysterectomy, second thoughts

I had DVH about 7 weeks ago, and I would say that I was terrified of any type of surgery, there are risks with any surgery. I did not want abdominal, I am not a good healer and was afraid of that large incision. Me personally would not have done it any other way. If you are waking with Endo, than the DaVinci robots arms have better ability of reaching and cutting out all of the implants, a laparoscope is similar but not as able. It has something to do with the mobility of the tools. I would definitely inquire about he many of these your doc has done? Also is your doc an Endo specialist?
And yes we all see those commercials, I have seen the one for the laparoscope and the morcellator, it is very scary. I had a very good experience, I had stage 4 endo and my doc was able to what was needed and I was out in about 2 hours. I have really had no problems. Yes the first week to 10 days was rough, I was off narcotics in about 3 days, and have had a great recovery. Before surgery I was miserable, always in pain, terrible periods, and back pain like nobody's business, I now have none of those problems. Good luck
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  #4  
Unread 02-15-2015, 05:08 PM
Re: daVinci Robotic Hysterectomy, second thoughts

Thank you for your reply, I know the risks of surgery come with the territory, I have had 3 prior surgeries and remember being scared, but not so much so as to completely cancel a surgery. So I am not sure why I am so scared this time :-(Hopefully after talking to my doc again I will be able to get past this fear.


  Quote:
Originally Posted by dreamer72 View Post
Hi Penny-Lane,

I know how difficult this decision is. Only you can make that final choice if you want to cancel the surgery or not. I didn't want to have surgery either,but as we know, there are risks with ANY type of surgery ,whether it's robotic or not. For me, my main concern was the spread of cancer. I had 4 different surgeon's opinions before I gave in to the physical pain. I just couldn't deal with the debilitating pain any longer. Would I do it again? I really don't know!? There are pros and cons; i guess in a sense, i've traded in one type of pain for another; my stomach is upset a lot,and my back hurts! Whatever you decide, I'm wishing you all the best!
  #5  
Unread 02-15-2015, 05:14 PM
Re: daVinci Robotic Hysterectomy, second thoughts

Thank you for your reply! My ultimate goal with having surgery is to not be in pain anymore, and a better quality of life, so your experience really helps me. My doctor is one of the doctors at our local hospital that has used the daVinci method since 2005, she says that most, if not all of her hysterectomies performed since 2005 have been robotic, so that does make me feel slightly better. She did also mention the broader range of motion and less of a risk to switch to the open method if when she gets in there, they find more than they bargained for. I just cannot get past all the negatives I have heard about the procedure. I know there are different risks for each type of hysterectomy performed, I just don't want to be the unlucky one who made the wrong decision!


  Quote:
Originally Posted by asimo184 View Post
I had DVH about 7 weeks ago, and I would say that I was terrified of any type of surgery, there are risks with any surgery. I did not want abdominal, I am not a good healer and was afraid of that large incision. Me personally would not have done it any other way. If you are waking with Endo, than the DaVinci robots arms have better ability of reaching and cutting out all of the implants, a laparoscope is similar but not as able. It has something to do with the mobility of the tools. I would definitely inquire about he many of these your doc has done? Also is your doc an Endo specialist?
And yes we all see those commercials, I have seen the one for the laparoscope and the morcellator, it is very scary. I had a very good experience, I had stage 4 endo and my doc was able to what was needed and I was out in about 2 hours. I have really had no problems. Yes the first week to 10 days was rough, I was off narcotics in about 3 days, and have had a great recovery. Before surgery I was miserable, always in pain, terrible periods, and back pain like nobody's business, I now have none of those problems. Good luck
  #6  
Unread 02-15-2015, 05:38 PM
Re: daVinci Robotic Hysterectomy, second thoughts

Try to think positive and go and read some of the DaVinci hysterectomy stories. And also please remember that sisters on here will tend to post if they have concerns or something they feel may not be right. So don't think that those sisters represent all sisters.
  #7  
Unread 02-15-2015, 05:59 PM
Re: daVinci Robotic Hysterectomy, second thoughts

Never ignore those strong feelings. For some it's a strong urge to look elsewhere for a solution.
I cancelled my hysterectomy 18 months ago. I almost had major surgery and lost my sexual organs for no good reason.
My doctors were pretty insistent this was the way to go but I was in a panic. Not my personality at all.
If you've not had a second and third opinion I suggest you consider it.
It may help ease your nagging doubts.
  #8  
Unread 02-15-2015, 08:21 PM
Re: daVinci Robotic Hysterectomy, second thoughts

I had the robotic and had no problems. He gave me the choice of abdominal or robotic. No way did I want that big incision plus I knew recovery would be slower. You will find stories here of women who had abdominal, vaginal and robotic with problems. As mentioned above, most of the women who come here came because they had problems or fears like you. Number of hysterectomies average 600,000 a year, so we represent only a minority here.

If you are having so much anxiety over it, then delay it. If you are not sure for whatever reason and cancer is not the reason, then delay it. Only you can decide if the pain (if you have it) is worth doing it now or can you wait.

Your irregular periods sounds like it could be PCOS too. Has that been looked into?

Have you had a D&C to see if that would stop the bleeding and maybe get more of an idea of what is going on? It doesn't sound like much has been done to eliminate other reasons. That kind of bothers me. And you say they think endo?

As above asked - is the doctor an endo specialist? If not, I would consult one and have them do the surgery.
  #9  
Unread 02-16-2015, 02:09 PM
Re: daVinci Robotic Hysterectomy, second thoughts



  Quote:
Originally Posted by Penny-Lane View Post
... and have been diagnosed with possible endometriosis.
If there is a possibility of endometriosis in the picture, then you need to realize that a hysterectomy is not a cure though for some it can help. If you do choose to have a hysterectomy, you instead need to focus on the skill of the surgeon rather than the type of hysterectomy. As long as any endo remains, you could continue to have issues. They key with endometriosis is finding a skilled surgeon who can successfully remove as much of the endometriosis as possible regardless of whether or not the reproductive organs are removed. Unfortunately, many OB/GYNs simply do not have the skills and experience necessary so they are not able to locate and remove endometriosis from all areas.

  Quote:
Due to my symptoms and possibility of endometriosis, my Gyn has scheduled me for a hysterectomy on the 25th of this month. She suggested the Robotic method, which scares the living daylights out of me ... I am wondering what the push is for me to have a Robotic hysterectomy.
This type of surgery has likely been recommended for you as it can offer a much greater magnification to allow a surgeon to locate endometriosis. The tools also have greater dexterity so that those implants can be reached and removed.

  Quote:
I would like to hear the good and the bad about this method, and/or any other method.
There are pros and cons with every surgery and every surgery type. There are also several variables that come into play which can affect your outcome. Your diagnosis, your surgeon's skills, how your body reacts/responds, and even happenstance can all play a role along with many other variables--both controllable and uncontrollable. Statistically speaking, most women do fine following a hysterectomy. But there will be some with complications and/or regrets. I had complications but not regrets, and my complications fall in the happenstance category--to this day they are unexplainable.

  Quote:
I am terrified to the point where I want to cancel surgery altogether.
If you have any doubts, then you need to take some time to consider your options and learn more about your diagnoses so you can make an informed decision for you. Unless you have cancer or are in a life or death situation, there isn't a rush for this elective surgery. Finding out a definite diagnosis for your symptoms could help you decide whether a hysterectomy or alternative treatment is best for you. You might want to ask whether it would be beneficial to have a hysteroscopy to let your doctor see what could be going on inside your uterus as well as a laparoscopy to see what could be going on outside the uterus. At that time, a D&C or some type of ablation could be done to try to stop any extensive bleeding. Lab work might show hormonal issues.

Without a lap, there is no definite diagnosis of endometriosis, and a definite diagnosis could affect your decisions. If you do have endometriosis, an endometriosis specialist could offer you a more optimal outcome endo wise.

  #10  
Unread 02-16-2015, 03:55 PM
Re: daVinci Robotic Hysterectomy, second thoughts

I had uterine cancer, and the doctor used the DaVinci Robot. I asked all kinds of questions prior to surgery of the gyn oncologist, and they answered every question, making me feel at ease with the surgery. Using the robot helps the doctor, as they use the camera to see what they need to see, and the doctor told me that he sees more using the camera than he could ever see with an open abdomen. I'm almost 11 weeks PO, and although I still have a few issues (insomnia, migraines, depression, all of which I had pre-surgery), I feel fortunate that the doctor was able to use the robot.

If you are unsure, please talk with your doctor, or get a second opinion. There are many posts about problems people have had with surgery, but few about the successes. Many people have successful surgery, successful recovery and never look back. Talk to the professionals. Write down your questions, there are a lot of them, ask the questions, the doctors have heard it all, so don't be embarrassed to ask them ANYTHING!

I consider my surgery a success.
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