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I feel so alone... I feel so alone...

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  #1  
Unread 02-16-2012, 05:26 PM
I feel so alone...

I had my hyst 12 yrs ago when I was 24 after multiple laps for adhesions...first they took my uterus then a yr later the ovaries, tubes and cervix...I was an undiagnosed manic so when I attempted hormone replacement the first time, I went uber wonky...I just lived with the hot flashes, the night sweats, and the horrific insomnia...Drs. chocked up the insomnia to my mania...

Over the years my bladder went bad, I got that fun sling and so on..but I also got my bi polar under control...What sucks is that I still suffer, 12 yrs later, from hot flashes, night sweats, and insomnia...My gyno is perplexed...Menopause should have been over 8 yrs ago..what the heck??

So today I slapped on an Estradiol patch..I am scared and nervous..I really want this to be the end of menopause...12 yrs of surgical menopause has been hell...I feel so alone and frustrated..

What is worse is that the reason for the hyst in the first place was for pain...Pain that was later found to be from interstitial cystitis, never from my reproductive organs at all..
I just want it all to stop..

If you all lasted through this whole rant...thank you...I hope someone here can understand my pain..I just want to know someone out there understands...
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  #2  
Unread 02-16-2012, 06:44 PM
Re: I feel so alone...

I'm so sorry that you've been through such a challenging ordeal. My heart feels for you! I think you should feel good that you've done your very best to take care of yourself and your health. It's good you're even trying the Estradiol right now. The mania and other symptoms may or may not have been aggravated by the HRT, but you'll know more by trying again. I'm on the same HRT and very happy with it. I feel my hormones are good. I feel balanced and without menopause symptoms. I wish you all the best on your continuing your to health!
  #3  
Unread 02-17-2012, 10:42 AM
Re: I feel so alone...

good luck.. I wish you much luck with what you're doing now and I hope some of this insanity and pain ends for you.
  #4  
Unread 02-17-2012, 02:53 PM
Re: I feel so alone...

I really hope it helps you!! Hugs
  #5  
Unread 02-17-2012, 07:51 PM
Re: I feel so alone...

Goodness, I'm surprised at the age of 24 your doctor wasn't more persistent in finding the right hormone balance for you. So sorry you have been suffering for such a long time. I can understand the part about the surgery having been done for pain and then finding out that it was not necessary to be forced into surgical menopause, only I was 20 years older than you when it happened to me nearly 10 months ago! I certainly hope you get some relief and very soon. Be vigilant-my motto is 'Inspect what you expect". Keep us posted and know that you are not alone-we care.
  #6  
Unread 02-17-2012, 08:07 PM
Re: I feel so alone...

Hugs to you, sister.
  #7  
Unread 02-18-2012, 08:32 AM
Re: I feel so alone...

I am on day 2 of this estrogen patch...I know it is a wicked low dose....0375 mg patch, but yesterday I was so sick...nauseous, dizzy, body aches...some anxiety last night, glad that passed...no nausea today...just feel kinda glum...

around the patch feels like I have been kicked...

On a positive note I did lower my sleep med dose last night as well and still did get some sleep...so maybe this stupid patch will do it's job after all...To be honest though, I didn't miss hormones...not one bit!!
  #8  
Unread 02-18-2012, 09:15 AM
Re: I feel so alone...

Where are you placing your patch? I tried Climara 05 mg but had a reaction and had to switch to oral estradiol (Estrace equivalent) 1 mg every other night. I could tolerate the patch better on my rear than the front but, unfortunately, still couldn't absorb it properly. For me, the nausea, anxiety, dizziness, body aches and insomnia have improved but it took time and I still struggle with those awful feelings off and on. Hope you continue to improve and please let your doctor know about the effect of the application site if it doesn't go away. Well wishes.
  #9  
Unread 02-20-2012, 08:50 AM
Re: I feel so alone...

I hope the patch helps you and I think for me it' s better than doing nothing which I briefly tried. I'm not able to understand at this point, how someone can go without HRT. Just keep trying and consciously choosing happy over sad...it doesn't always work for me but I am hoping someday it sticks and I might feel normal again.
  #10  
Unread 02-22-2012, 10:55 PM
Re: I feel so alone...

You are not alone. I totally understand what you're going through. I'm almost 2 years post-op. I've been on .05 estradiol patch for the last 8 months or so. Initially I thought I could do without the hrt but couldn't so my dr has me on estrogen, perhaps the absorption now is poor for the last few weeks I've been struggling with Insomnia, headaches from lack of sleep, irritability, foggy thinking, poor motivation and a job that is driving me up the wall.
This has been the hardest process for me - I'm dreaming of the day things will be back to normal. Had some hormone lab work done today, should get results in the next few days which may help me understand what in the world is going on with my body.
Please hang in there, you are not alone, we will get through this...we have to get through this.
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