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cancer reccurence 6 mo after hysterectomy cancer reccurence 6 mo after hysterectomy

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  #1  
Unread 06-19-2017, 11:41 AM
cancer reccurence 6 mo after hysterectomy

Hi, I was wondering if this has happened to anyone else? Had a total hysterectomy Oct 26, 2016. They said everything was contained & I should be good. I went back to the dr. for a 3mo internal & everything looked good. At my 6 mo checkup so saw a thickening around the vaginal cuff. They did a biopsy (ouch) & unfortunately it was a 2 centimeter tumor wrapped around the vaginal cuff. Dr said sometimes cells escape during surgery & reattach. They seemed surprised & so was I. Now I am halfway thru 25 external radiation treatments & when this is done, I have to be admitted to a Boston hospital for internal brachytherapy. NOT looking forward to that!
I guess my question is: has this happened to anyone else & have you remained cancer free after therapy. Of course, one of the side effects of radiation is cancer! I'm just trying to take it day to day at this point, working part days & trying to remain optimistic.
Today the rad machine broke down & they called me to cancel!
  #2  
Unread 06-19-2017, 12:31 PM
Re: cancer reccurence 6 mo after hysterectomy

I had an endometrial cancer recurrence on my vaginal cuff nine months after surgery. I was told the same thing you were after surgery - early stage, we got it all, no further treatment. Ha!

I ended up having 25 external pelvic treatments and three brachy treatments along with five low-dose chemo sessions (cisplatin). Lucky for me, my local hospital had gotten the machinery to do brachy on-site six months before my recurrence, so I was able to have all my treatments locally.

I found the brachy to be the easiest to tolerate in terms of immediate side effects compared to the external rads and the chemo.

I had my last treatment almost three years ago. No signs of cancer since then! *grin* My guts are a bit jumpier than they used to be as a long-term side effect of the external rads. Also, rectal bleeding due to radiation proctitis has become part of my daily life. I just wipe and move on. Because I had brachy, I use a vaginal dilator 3x a week, two minutes a session - no big deal, it's about as routine as brushing my teeth.

All in all I find that the long-term side effects are manageable and beat the heck out of having cancer.

How are you doing with short-term side effects during the radiation treatments? I had jumpy guts and some trouble with radiation tanning/burning.
  #3  
Unread 06-19-2017, 02:34 PM
cancer reccurence 6 mo after hysterectomy

Short term has not been too bad. Some loose stools, not really any burning yet, more tired than usual. Just want to get thru the next 2 weeks. How long after the external did you have the brachy? They told me there may be a 1-2 week break in between.
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  #4  
Unread 06-19-2017, 04:03 PM
Re: cancer reccurence 6 mo after hysterectomy

I sort of had them at the same time. I had external M-F for three weeks, and then starting in week four I had brachy on Thursdays instead. I continued to have external the other days.
  #5  
Unread 06-20-2017, 01:18 PM
cancer reccurence 6 mo after hysterectomy

Hi, do you remember how big the tumor was on the cuff? Mine is about 2 centimeters.
  #6  
Unread 06-20-2017, 01:36 PM
Re: cancer reccurence 6 mo after hysterectomy

I had two lesions, each about 2 mm in diameter, so about a tenth of the size of yours.
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