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New here~ Alot to sort out, and no clue!
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10-22-2003, 07:29 PM
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Guest
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Posts: 86
Hysterectomy: November 19th, 2003
Surgery Type: LAVH
Ovaries: Kept 1 or both
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New here~ Alot to sort out, and no clue!
Good evening. My name is Lin~ 6 weeks ago, I started having horrible pains, ended up in ER and was told I had a cyst that had ruptured, and another one that was big.
They sent me to a OB/GYN. He schedualed me for a laproscopy 4 days later. The cyst he removed was 5 mm ~ very big he said. He said my Uterus was very large and boggey~ enlarged to a 16 week pregnancy.
He said things were gonna be ok, and back to normal soon.
Well, here I am again.. More cysts... 2 on the left, 1 on the right. alot of pain.
he said we can do one of 2 things. Another laprdcopy and get them out of there, or remove the uterus all together.
Im confused. The cysts are on the overys.. yes, Ive had my peroiod, or bleeding 4 times sence end of August... but shouldnt he also be wanting to take the overies out as well???
If he goes in and takes the uterus, wont the overies still work, and cause more cysts..
Im in alot of pain, have no one as far as family to ask and Im so glad I found this site~ Ive already learned alot.. but Im still confused.. anyone out there have some answers to ease my mind a bit.
????
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10-23-2003, 07:33 AM
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HysterSister
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Posts: 4,004
Hysterectomy: January 15th, 2002
Surgery Type: TAH
Ovaries: Kept 1 or both
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New here~ Alot to sort out, and no clue!
Hi Lin,
Through the years my left ovary would develop cysts and eventually slough off on their own. I could always tell they were there because of the pain. I had a TAH Jan. of 2002, kept my ovaries and my left ovary developed a cyst right way. It never has completly disappeared. My Dr. said if it was too painful I could take birth control pills to control it's growth or I could have a lap and have it removed. Talk to him in more detail to see exactly *why* it is he is recommending a hysterectomy. My hyst was because of a fibroid that grew outside of the uterus and around my right ureter, not because of ovarian cysts. I also had 3 opinions before I had my surgery. Since a hysterectomy is major surgery, having more then one opinion is a good idea. This way, you are armed with enough information to make a choice and it promotes peace of mind going into surgery.
I wouldn't count on your cyst by having a hyst. I hope you find answers soon..... I know how painful cysts can be.
Karlene
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10-23-2003, 07:26 PM
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HysterSister
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Posts: 3,391
Hysterectomy: November 29th, 2001
Surgery Type: TAH
Ovaries: Removed both
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New here~ Alot to sort out, and no clue!
Hi Lyn,
Like you, I made a trip to the ER in terrible pain that most likely was due to a ruptured cyst. So I know how painful this can be.
I also agree with (((Karlene))) - removing your uterus and leaving your ovaries is no guarantee that you won't continue to have problems with cysts. Have you gotten a second opinion from another gyn? I know it's not fun to be making all these trips to the doctor, but you owe it to yourself to get at least 2 opinions if you are considering major surgery. You want relief from your pain so you need a good plan if you are considering surgery. Please consider getting another opinion, if you haven't done that already.
Keep us posted on what you find out and how you are doing. Sending gentle hugs your way.
Beth
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10-25-2003, 11:57 PM
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Guest
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Posts: 1
Hysterectomy:
Ovaries: Kept 1 or both
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Luvsdragons
For what I have read no, you dont want your ovries taken out in fact you are in pain, but that doesnt mean take things out, If I was you I would get another Doctor, you dont say how old you are, this pain could be from something else . if it is fibrods dont worry more women than not have them, its not cancer and to tell you the truth you cant die from them, I have seen to many of my friends have surgery and it didnt help, it made matters worse, read all the books you can find search. because you or the doctors are talkiing about once done you cant fix it or change your mind,
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10-26-2003, 09:55 AM
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Guest
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Posts: 6,807
Hysterectomy: January 4th, 2000
Surgery Type: TAH
Ovaries: Kept 1 or both
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New here~ Alot to sort out, and no clue!
((Lin)) ,
I ran across another website that contained some excellent info on the various types of Cysts~symptoms & treatments I thot of you when I saw it & wanted to share; here are a few excerpts from the site I thot would be of interest to you: the link to read the entire article plus more is at the bottom of the text...
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When a follicle gets to be bigger than about two centimeters or so, semantics dictate that it be referred to as a cyst. Therefore, we speak of theses cysts as "Functional Cysts," and nothing need be done other than wait it out._ If a woman has pain from it, or if she doesn't want to wait it out because she's not seeking pregnancy, it can be melted away usually with the temporary use of birth control pills.
New laparoscope techniques make surgical cyst management easier on the patient, and good diagnostics can ensure we don't get carried away surgically with mere functional cysts, which are the vast majority of them._ But a suspicion of malignancy or even pre-malignancy is never taken lightly and poses one of the most important exclusions of every routine GYN exam.
http://www.gynob.com/cysts.htm
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What are Corpus Luteum Cysts?
Much less common than follicular cysts, these develop after the ovary releases its egg and the formed follicular cyst changes into a small hormone producing "yellow body", also known as the corpus luteum. If the yellow body reaches a size of greater than 3 centimeters, it is then referred to as a cyst. Rupture of these cysts occur more often on the right side and occur during intercourse. Rupture occurs during the later days in the menstrual cycle when the cysts are the largest. Sometimes they may reach a very large size, which then requires a surgical removal.
"Smokers" have a two-fold increased risk of developing functional ovarian cysts.
Oral contraceptive therapy has been known to markedly reduce the risk of the formation of the functional ovarian cyst.
http://www.drdeljuncojr.com/subpages...riancysts.aspx
[/quote]
Here is also something I found concerning the Uterus <enlarged>:
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Known as "endometriosis of the uterus", adenomyosis is benign and does not cause cancer. Most commonly, the disease affects the back wall (posterior side) of the uterus. The endometrial cells penetrate deep within the uterine muscle (myometrium). When this occurs you have a uterus that is enlarged (usually more than twice the normal size) and very hard
How common is it?
This disease can only be diagnosed with 100% certainty by doing a biopsy of the uterine muscle. 12% of women with adenomyosis also have endometriosis in other sites like the pelvic wall, ovaries, fallopian tubes etc. The highest incidence is seen in women in their mid to upper forties, and though it may cause infertility, it does appear in women who have already had children.
What are the symptoms?
Patients with adenomyosis may not show any symptoms (asymptommatic). However, most commonly women experience excessive, heavy or prolonged menstrual bleeding and painful periods (dysmenorrhea). The amount of bleeding and cramps usually is associated with the degree of involvement and depth of penetration into the uterine walls. Also, extensive involvement of the uterine muscle can interfere with the normal contractility of the muscle which leads to excessive bleeding.
Every form of treatment should be tried first, before a hysterectomy is ever considered.
http://www.drdeljuncojr.com/subpages...enomyosis.aspx
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((((Lin))))........((((hugs))))
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10-27-2003, 06:35 AM
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Guest
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Posts: 86
Hysterectomy: November 19th, 2003
Surgery Type: LAVH
Ovaries: Kept 1 or both
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WoW~ Thank you all
Ive gotten so much from your posts & all the sites Sheri sent.. Thank you!
You have no idea how much better I feel about all this, just by being here, and learning, reading, thinking..
Words cannot express how gratefull I am.
:0)
as for my age, Im 34. Have 2 children, one is 18 the other is 13. Had my tubes tied after the last one.
I cant remember If I posted about the latest from the doc..
He did confirm that there were 3 cyst's one on the left, 2 on the right.
he was a little more concerned with the one on the left, it was bigger than the other 2. and at the same site where he removed the big nasty one in August ( 6cm)
he wanted me to just take it real easy over the weekend, go see him Wednesday for another Ultra sound, to see if they are growin, or to see if they have resolved themselves.
He also wants me to go see a Gastro doc.. make sure there isnt bowel involvment (?)
Im still feelin very full, as if Ive ate a big big dinner, even after only a lite meal, or glass of pop or something.
Im not feelin as much of the pain.. not sure if its because of the pain killers, or the fact ive done nothing for so many days, or if they in fact resoved themselves.... Im still real crampy~ but crampy i can deal with.. :0)
I am going this afternoon for my 2nd opinion.. I wanna see what another doc has to say about the whole process of removing the 'sick' utuers..
My feelings are still leaning towards, if I end up having surgery to remove the 'sick' utuerus, he might as well take the overies that are causeing me all this pain with the cyst that keep popping up.
Im not so sure I want to end up in this spot month after month. I have Fibromyalgia, and it seems to throw me right into a flare up~ which makes it even more harder to feel better.. 3 weeks a month down & out is very nerve raking.
:0)
Thank you all for your thoughts, experience, and help..
Im so Thankfull.
Lin
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10-27-2003, 09:50 AM
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Guest
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Posts: 6,807
Hysterectomy: January 4th, 2000
Surgery Type: TAH
Ovaries: Kept 1 or both
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New here~ Alot to sort out, and no clue!
Your welcome ((Lin)) ....anytime :-)
I'm 34 & have Fibromyalgia as well That syndrome in itself is enuf to keep you in pain 24/7 much less having to deal w/ other sources of pain & problems *ugh*
What I have always found to be helpful to be helpful is to research all I can on my dx, symptoms, options ect... Hystersisters has been my lifeline over the past 4 yrs...being able to share info, receive support & understanding from others who have been there..I could go on & on!!
Pls let me know if I can be of further assistance in locating info...I truly enjoy helping others where I can
Hope that FMS flare dies down soon
(((((((((((hugs)))))))))))
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10-29-2003, 11:21 AM
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Guest
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Posts: 86
Hysterectomy: November 19th, 2003
Surgery Type: LAVH
Ovaries: Kept 1 or both
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Well~ here it is in a nutshell
Hi everyone.
I went in for my 2nd opinion on Monday~
she pretty much said just as my doc did.. Yhe uterus is rather large, and low.
felt that the right overy was a bit large, as well as said she'd like to see what's gonna happen in the next week or so before decideing on weather surgery will be the next step, and that yes, its a good idea to see a gastro as well.
So~ ok. I feel better that i did in deed get a 2nd opinon about all this.It also made me feel better to know that she pretty much said the same thing my doc did.. I was worried about the "what if" she tells me something totally different "what if" she say's whatever..
Now~
I just got home from my Doctor's.
He showed me the Ultra sound results from last week.
He said my uterus is in fact bigger than it was after the laproscopy back in august. then he said it was enlarged to 12-16 week pregnancy <ughhhh> all this time, ive been tryin & exerciseing & giving up allll them goodies because of the weight gain> and here it was my uterus all big & swollen..
And he also told me that he belives that the left overy is still healing, that there is alot of scar tissue from the cyst he removed back in Aug. it was aprox 6 cm. a pretty big n nasty one.
the 2 one the right, he belives are folicile<?> cysts and that they should resolve, altho~ im still feeling them and praying they go away and not rupture or become large like the last.
He has also decided that Yes, I am to have my uterus taken out.
He say's its not gonna shrink down, and only continue to get bigger and bigger each month.
with all the bleeding and swelling.. feeling soo full and pressure, its already really bothersome, It will continue to be more and more so as time goes on.
I have the Fibro~ and I tell ya.. All this has gone and thrown me into a bad Fibro-flare, and im sooo tierd & waek feelin, Im not sure I want to continue to do this month after month..
So~ Ive got alot of reading to do on this wonderfull site, and websites & links Sheri has shared with me.
Surgey date is either Nov 12 or Nov 19, his office is gonna call me with the exact date.
He tells me he is gonna go ahead and do this vaginally, because its so low, and that is a good thing <?>
he is also gonna go ahead and do a laproscopy as well at the same time so he isnt going in blind.
He told me to expect to be in the hospital 24-48 hours and recovery will be 2-4weeks, but for me and having Fibro~ we can go with the 4-6week recovery peroid.
So here, Im sitting, feeling a little releaved < which is weird> and Scared, and wondering.. I really have alot to get taken care of and researched now.
Thank you all for your help~ shareing your experiences~ being here.
<lin>
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