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This was traumatic
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01-22-2010, 11:08 AM
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HysterSister
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Posts: 221
Hysterectomy: December 1st, 2008
Surgery Type: DvH
Ovaries: Removed both
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Re: This was traumatic
Looking at everyones dates it seems the longest is in April. I had mine 13 months ago. After many complications and numerous surgical interventions my life is finnally getting back to "normal". It has taken much longer than I would have thought. Yes many others are up and about so much sooner, many are back to their routines weeks after, and for some the surgery is ....... I hesitate to write because I dont want to sabatoge someones recovery. We all heal different and other health issues play a role. My diagnosis of cancer followed by the unexpected death of my mil within the week was shocking. Someone mentioned "a day at the office", when I tried to talk to the gyn/onco about my anxiety that was his reply. I told him I didnt go to the office. It is so routine to them. Yes many have acted as through I had a mole removed. Still many friends men and women were and still are checking in to see how we are. And to top it off they send you out the door in 24 hrs. No man goes home within that time from surgery.. My husband was great but grieving his mom at the same time. I am left with lymphdema and a spastic bladder from the surgry. When I quizzed friends who have had the surgery if they are truthful, no matter why they needed the surgery, they struggled with the fact that thier female body was different. I found keeping a journal helped. I could write anything with no one judging my feelings or thoughts. It just takes time, I do feel whole again, not the same but comfortable in my new body.
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01-22-2010, 02:09 PM
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HysterSister
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Posts: 5
Hysterectomy: December 30th, 2009
Surgery Type: TVH
Ovaries: Kept 1 or both
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Re: This was traumatic
I've read through so many of these and at least I don't feel alone anymore. I am 3 weeks post op and had a TVH and kept my ovaries but am having menopausal symptoms anyway. Hot flashes, moodiness, fatigue. I'm only 32 and freaking out. Everyone told me this would be a walk in the park and that the pain would be minimal. Well, I'll tell you what, when I woke up in recovery it was a nightmare and I'm sure I will be traumatized for a while. I woke up so suddenly and was in the worst pain of my life and totally lost it. The nurses were so rude to me and threatened I'd not get to see my husband if I didn't calm down. Ya know if they would have at least just put their hand on my arm and said it'll be okay I may have, but that was too much to ask. To top it off I started vomiting constantly and was super sick for a full week after. I'm beginning to feel a lot less pain at this point but I feel so different, and I don't know why. I'm so freaking bored too! Everything weighs more than 5-10 lbs and I'm on my own here (husband works a lot) with two young kids. I feel like my house is a disgrace and I can't keep up. I can't wear most of my clothes because they hurt, something I wasn't bargaining for....Phew. Sorry to just throw it all out there randomly but I'm so glad I found this site. I wish I had pre-op. Thanks everyone for putting your stories out there. It feels good to not be alone in this.
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01-22-2010, 02:25 PM
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HysterSister
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Posts: 42
Hysterectomy: November 16th, 2009
Surgery Type: LSH
Ovaries: Removed both
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Re: This was traumatic
Regarding the last message, I understand EXACTLY what you're talking about. It is very traumatic waking up from this surgery. I went in for a DAY surgery, to have my right ovary removed laparoscopically and an endo ablasion. My doctor said hysterectomy was a POSSIBILITY, but an unlikely one. I was so naive and didn't even seek a second opinion on the hysterectomy. I was so convinced that she could remove my right ovary and the cyst on it. I was ready to wake up with my uterus and left ovary & tube intact.
I did consent to a hysterectomy as a last resort during the surgery.
WOW!!!! Shock for me!!!!! I woke up and had a 6-8 inch incision, EVERYTHING had been removed except my cervix. Both ovaries and uterus. The doctor said my endometriosis was so severe that hysterectomy was her only option during surgery.
I was completely unprepared for this - it was so shocking and so hard to get through it. It wasn't until after the first week or two of pain killers that the reality and finality of what my doctor did really set in. I am 44 years old, and must deal with this as fact and this is where I am. I am coming to accept it but it hasn't been easy let me tell you! Many tears, many break downs, many nights of crying myself to sleep. Lots of support from my husband and women friends.
I do understand what everyone here is feeling about the trauma of this. It is very hard, but I am coming through it.
If I were you I would call the hospital and file a complaint about the nurses to administration on how they treated you in the recovery area.
I have done this before in other situations and most hospitals do not want their patients treated harshly at all.
Well, you're all in my thoughts and this is a journey we must get through day by day. I am so glad I have other women here to lean on and maybe I can support you all also in some small way.
Good luck!
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01-22-2010, 02:29 PM
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HysterSister
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Posts: 42
Hysterectomy: November 16th, 2009
Surgery Type: LSH
Ovaries: Removed both
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Re: This was traumatic
I also just wanted to add, and easier said than done, don't worry about your house right now. Take care of yourself and your children as best as you can. All of the house work can wait. Just take care of yourself.
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01-22-2010, 03:39 PM
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HysterSister
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Posts: 21
Hysterectomy: July 10th, 2009
Surgery Type: TAH
Ovaries: Removed both
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Re: This was traumatic
I don't want to scare you but it's been 6 mths since my surgery and I still have issues. It's so hard to tell what is related to my hysterectomy. I don't feel at all like I used too. I'm glad to have the freedom of no mthly but wow wish I had found this site before and read a little more about what I could possibly expect. I just went in for the lap and they found endo, right ovary attached to wall and cancer. It put the TAH on the fast track and when that happens it just doesn't give us time to begin to try to deal with what we are facing. The TAH was my 3 rd surgery in less than a yr(1 st spinal surgery..2 nd lap) and I am facing 2 more in the mth of Feb(nasal surgery..gallbladder removal). I feel for all the women who have to go through not just the surgery but everything and everybody who can't see where we are coming from. Just know that you are not alone ever and that tomorrow is another day.
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01-22-2010, 03:43 PM
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Posts: 6,717
Hysterectomy: September 9th, 2009
Surgery Type: DvH
Ovaries: Removed both
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Re: This was traumatic
AK93065,
I am so sorry for what has happened to you. It must be doubly tough to deal with when you weren't expecting it. I can't imagine waking up to discover that you had much more extensive surgery than what you were prepared for. This is a process of healing not only physically but also emotionally. I agree with you about taking care of ourselves. Sometimes you just have to say that the house can be dirty because you are recovering. Sending lots of hugs.
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01-22-2010, 04:01 PM
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HysterSister
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Posts: 5
Hysterectomy: December 30th, 2009
Surgery Type: TVH
Ovaries: Kept 1 or both
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Re: This was traumatic
I don't know what I would have done if anything more would have been taken than I expected. Thankfully my surgery went completely perfect, so I've been told. I'm glad but I still had so much more pain than ever expected. Sending you hugs for having to wake up to such a nightmare! I am so sorry that you are having to deal with that. I've thought about complaining about the recovery nurses, but I'm just gonna let it go I think. I just want to focus on healing and getting my life back. I had such good expectations for a speedy recovery because prior to the hyster. I had an ablation done and the recovery for that was no sweat. The ablation was the worst decision I ever made, it only made things worse for me. I'm not regretting my hysterectomy at all, just getting impatient . I'll pray for all of you ladies that things get better for you.
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01-22-2010, 04:12 PM
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Guest
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Posts: 65
Hysterectomy: December 29th, 2009
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Re: This was traumatic
I am so sorry to hear of all the problems & lousy nurses & cancer...I too had the TAH due to endometrial cancer. Gratefully mine was contained but I still have the fear of reoccurances...have to deal with that mental adjustment. As to all the complications - we are all so unique & everyone heals differently. I hope that each lady who is BORED, SUFFERING TRAMUTIZED etc will stop & just try to focus on where you were 2 weeks ago...and then calmly look at today. I think you'll find you are a bit better - a bit stronger - a bit more relaxed. I hope so. I did. I struggled becuase of setbacks & thought I should be finished way before my body said so...I'm coming up on 4 weeks & still not cleared to drive. So I look back...I have come a long way from the first day of surgery. I have gotten stronger & I have lowered my expectations of a "clean house". Who comes to see you who might care about dust bunnies? If they do - they are no friend. Send them home or better yet tell them to pick up a mop. And as far as the rude nurses - I'd contact the hospital & calmly tell them of your experiencee & perhaps there will be something better for the next lady. Just my thoughts...wishing you all a better tomorrow withh lots of ((((HUGS)))) for today.
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01-22-2010, 06:25 PM
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HysterSister
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Posts: 42
Hysterectomy: November 16th, 2009
Surgery Type: LSH
Ovaries: Removed both
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Re: This was traumatic
Zenyatta 5 and tmb77,
Thank you both so much - I really do appreciate your support - this site has been so helpful to me. I don't think I could have gone through this without the women on here, and both of you - thank you!
I am feeling stronger. It will be 10 weeks this Monday, and I'm coming to a place of acceptance. I guess I'm relieved that the ovaries and endo weren't cancerous. In that I know it's a blessing. My husband has told me all through our marriage that what may first appear to be a curse (or so called curse) may just end up being a blessing. I am focusing on that, and it's helping me quite a bit. Eventually maybe I will consider all of this a blessing.
I am starting to feel more like myself, and like I said, beginning to accept the outcome.
Thank you all again, and I wish all the best for you and your recoveries, and hope we can all get to a place of peace, good health, and blessings.
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