I am sorry about your pain and diagnoses.
Unfortunately, endo can be microscopic in its earliest stages, so it can be undetected as yours must have been. As you have retained your ovaries, your own estrogen has been feeding the endo, allowing it to spread and grow.
Surgical excision or vaporization during a lap are both options for removing as much endo as possible to alleviate your pain. There are
medications to treat endo and some women benefit from using
progesterone to treat their endo. Is there an
endometriosis specialist in your area, or a reproductive endocrinologist who treats women with endometriosis? I highly recommend getting more than one opinion on what your options are.
Have you had an opportunity to read through the
Hyster Sisters' Endo/Adeno Resources? Knowing everything you can about endo so you can discuss your concerns and situation with your dr will help you as you make the best choices for you.
As of yet, there is no cure for endo, so knowing about the available options and treatments and how they might affect you is very important.
My endo was discovered during a lap to see why I had been bleeding for 2 years. My hyst followed my lap by a few weeks. By keeping my ovaries, the endo left on my bowel walls is being fed by my own estrogen, but I had to make the best choices for my overall health.
Many best wishes to you as you sort through as much information as possible about endo. Feel free to search the site and read through other threads about endo and what ladies have done to deal with this disease. If you have an opportunity, the
Endo/Adeno: Stories of Triumph over Pain can offer some encouragement and hope.
in there and keep us posted!