Does anyone else have Interstitial Cystitis

I have had bladder problems for years. When I went to my new DR this summer, she told me she thinks I have IC. Yuck. I was having so many other problems, she said we would work on the IC after surgery. The cathedar/surgery has caused me severe bladder symptoms. Horrible pain, burning, pressure etc. I didn't have good control until week 3. My question is how long did it take other IC suffers to get back to a pre-surgery bladder. I go back to the DR friday. I have been taking my Ditropan and Pyridium, drinking water, no caffeine, watching my diet. I feel my surgery was very successful otherwise. I haven't had a lot of other problems, but this bladder stuff is driving me nuts!!

Sorry to hear about your problems. I have IC. At this point I am considering hysterectomy to try to alleiviate some of my bladder problems. My bladder problems are worse around the time of my period. Maybe your body just needs to adjust to the surgery. Wish I had better insight. Just wanted to let you know you're not alone.

I also have IC disease and from my own experience after my TAH the IC became much worse, possibly because of having a cysto, hyrdo, biopsy... of the bladder at the same time of the TAH. It actually got so bad and was so painful that I had have a cath for almost 3 weeks. But, after about 8 weeks post-op my IC symptoms have improved, even more so than what they were pre-op. I know when IC symptoms are at their worst it is so very painful... I hope that as you recover from your surgery that your IC will calm down as well.

Unfortunately for me having a hysterectomy triggered the onset of my IC, although I did have some symptoms beforehand. I had my hyst because I had fibroids pressing on my bladder causing frequency, but after my hyst everything just got so much worse as regards pressure, frequency, burning and urgency. Although I'm sure the fibroids were causing some of my bladder issues, I believe now that the IC was the underlying problem with my bladder all the time and unfortunately the surgery just made things so much worse. With hindsight, I wish I'd waited a bit longer to see if my fibroids may have shrunk as I was postmenopausal when I had my surgery. Still, hindsight is a wonderful thing as we all know. We can only do the best we can with the information we have at the time.

Have you checked out www.ic-network.com....great website for IC sufferers. Good luck.

I've not been diagnosed with IC, but beginning to wonder if I don't have it. My surgery July 11 was for third degree prolapse of uterus, bladder and rectum. It's been 4-1/2 months and I'm still having bladder pressure that doesn't respond to medication. I don't suggest hysterectomy as a way to help it - on the contrary, I wonder if it's solved some problems and created others!

Thanks to all of you! I was beginning to think I was the only one with IC. I don't know alot about it yet. But I am learning. Silverfern, I will check out that website. Today is a little better day. But I really watched what I ate and drank yesterday. I am learning it is not only what I drink it is also the foods I eat. I don't regret having my surgery though. I was bleeding buckets 20 to 30 days each period, with a 4 or 5 day break in between. I am glad that is over

Have a great day!