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Surgery scheduled... delivered unknown mass yesterday. Surgery scheduled... delivered unknown mass yesterday.

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  #1  
Unread 07-08-2016, 09:39 PM
Surgery scheduled... delivered unknown mass yesterday.

I am so confused and can't stop crying. My GYN Dr is not very talkative or compassionate for that matter. In may I went to him for excessive bleeding and he suggested ablation or hysterectomy. I thought I had awhile to ponder that decision , but on June 1 I started bleeding heavily. It lasted until June 11th, and I thought I was done for the monrh. On June 22nd, I started again and it hasn't stopped yet. It did get very light a few days, but on 7/2, I went to the er where I told them what my gyn had said, and they basically gave me the same report. TVS both times showed enlarged uterus (13.9cm) and a fibroid that was 5 cm.

I called GYN and had an appt. yesterday. I was in excruciating pain when I went in, and he scheduled hysterectomy for Tuesday. After I left his office, still pretty much screamig, I went to walmart to pick up my pain medicine. While waiting, I felt like I was having contractions and went to the bathroom. I was sweating profusely and screaming in pain, I passed out, and an ambulance came and took me to ER again. After 5 hours of excruciating pain even with dilaudad and fentanyl, I delivered a mass in the bathroom by myself. Immediately the pressure and pain was minimal. I am terrified about what is going on. The DR has no idea what it was, and they sent it to pathology. It takes 2 weeks for results. I am 37 and wanted more babies. This is all so confusing and has happened so fast.

Today I have cramping and am bleeding heavily. I am torn... how could the ultrasound have missed that huge whatever it was?!?

Has anyone else experienced this, and what would you do? I have a picture of the mass, it was about 8.5 inches long and was very thick. I can't take bleeding like this anymore, but this two week wait for the pathology report is going to be stressful, and my surgery is 4 days away.
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  #2  
Unread 07-08-2016, 10:11 PM
Re: Surgery scheduled... delivered unknown mass yesterday.

OMG. That sounds awful! Did they do tests to make sure it's not cancer or some other type of tumor during your previous doctor visits? It's up to you, but I can't believe your Dr. is rushing to do a hysterectomy without doing other tests first. Is your Gyn. also an Oncologist? Has your insurance had time to approve the surgery so it's covered?

If you need some reprieve from the bleeding while you figure out your next move, maybe ask a doctor about "tranexamic acid?"

I took that before my UAE during heavy periods to slow down the bleeding. I'm not sure if it works for everyone, but it's worth learning more about.

Also, an MRI can be more accurate than a ultrasound. There may be other fibroids that an ultrasound can't pick up because of location or other factors. My ultrasound results reported a smaller size, when my fibroid was actually bigger.

I'm so sorry to read about your terrifying experience. Every woman has to make her own choice. In my opinion, it's worth seeking a second opinion from another doctor before rushing into anything. But I wish you well while you make some very difficult choices for your health.

Good luck with your decision!
  #3  
Unread 07-11-2016, 11:03 AM
Re: Surgery scheduled... delivered unknown mass yesterday.

I agree - ask for an MRI.. Much better imaging than ultrasound! Also, I would not rush into a hysterectomy without a definitive diagnosis - especially because you still want more children. Imagine how you might feel if the pathology just reports a fibroid, not any cancer ... but you already had the hyst for no reason!! It is extremely rare for a fibroid to be masquerading as cancer. Chances are you had a pedunculated fibroid that you passed - my RN friend had a similar situation passing a large fibroid (and later went to to become pregnant). I would insist on a second opinion.
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