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Not a Simple Ovarian Cyst
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05-07-2005, 08:03 PM
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Guest
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Posts: 11
Hysterectomy:
Surgery Type: TAH
Ovaries: Removed both
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Not a Simple Ovarian Cyst
Hi to all my new sisters:
I had a pelvic ultrasound in 12/04. It showed a cyst that was 1/2 inch in size. The radiologist said it was "not a simple Cyst".
I had another ultrasound 2 weeks ago and the "not a simple Cyst" is now 1 & 1/2 inches in size. My Gyn has scheduled a TAH for May 12.
I am 59 years old. Has anyone else had a TAH for a similar reason?
I do have a family history of ovarian cancer as well as fibroids.
Thanks,
DonnaBelle
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05-07-2005, 09:05 PM
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Posts: 18,379
Hysterectomy: April 28th, 2004
Surgery Type: TVH
Ovaries: Kept 1 or both
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Not a Simple Ovarian Cyst
Hi DonnaBelle,
I'm sorry that you are facing surgery. I didn't have my hysterectomy for that reason, but many women here have had cysts of different kinds and I'm sure someone will be along.
I just wanted to say Hi and send you a big . I pray that everything goes well for you!
s
Deb
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05-07-2005, 09:39 PM
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Guest
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Posts: 27
Hysterectomy: May 17th, 2005
Surgery Type: SAH
Ovaries: Removed both
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Not a Simple Ovarian Cyst
Hi Donna
I have something similar going on. I have a large ovarian cyst that my doctor (now on doc #2) has been watching for almost 2 years.
I guess I've been in denial about the whole thing since I'm not in any pain - feel a bit bloated but nothing painful. My CA 125 came out negative as well.
Since my cyst has grown since Dec and is now the size of a softball, my doc is recommending surgery. I'm having a TAH BSO (keeping my cervix) on May 17. It would be easier to accept surgery if I was in pain....but my bottom line assessment is that I don't ever want to deal w/ this again. This will be my 5th abdominal surgery and the 2nd for cysts. I too have some family history for ovarian cancer.
I wish you well in your situation and the decisions that are to come.
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05-07-2005, 10:47 PM
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Guest
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Posts: 23
Hysterectomy:
Surgery Type: SAH
Ovaries: Undecided
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Not a Simple Ovarian Cyst
Hi, Hystersister's ,
I was diagnosed with an Ovarian Mass, the last Ultrasound in April showed that the Mass had shrunk . I initially went to the Dr. due to the constant Nausea I have been experiencing since September . The Gyno/Onc. I saw last week told me that he does'nt think the mass is Cancerous , therefore want's me to came back in 3 mo. for a repeat Ultrasound and Office visit . My question is - if the mass has shrunk does it mean that it is definitely not Cancerous ? The Nausea is still lingering and I am starting to feel pain on the left side of my pelvic area also . I thought that perhaps the Nausea was stress related , but it continued while I was on Vacation this past week , sneaking - up on me . I was also surprised to find that anything could be wrong with an Ovary that was supposidly removed during my Hysterectomy five yrs. ago
God Bless you all
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05-07-2005, 11:46 PM
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HysterSister
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Posts: 4,889
Hysterectomy: May 15th, 2002
Surgery Type: SAH
Ovaries: Removed both
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Not a Simple Ovarian Cyst
Complex ovarian cysts should always be removed by a GYN-oncologist. If there is ANY chance that malignancy is present, having a GYN-oncologist perform your surgery absolutely maximises your chances of getting all the disease at one time.
I had a complex ovarian mass. My GYN surgeon told me, "these things always rupture." Not great, but I understood how difficult it could be. However, the oncologist I finally saw was able to remove it whole. Mine turned out to be endometriosis, but if it had ruptured, it would have seeded endometrial cells all throughout my pelvis. Not a good idea!
Check over in [color=deeppink]Cancer Concerns[/i] for what the real experts have to say on this subject. The medical literature is overwhelming on this subject, especially given a family history of ovarian cancer: get a GYN-oncologist. You owe it to yourself, and your family, to get the best treatment you can.
Big s and hope it's nothing to be concerned about! Have they done a CA-125? Although they are not a good marker for everyone, it's an important number to know prior to your surgery...
Audrey
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05-08-2005, 07:05 AM
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Guest
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Posts: 11
Hysterectomy:
Surgery Type: TAH
Ovaries: Removed both
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Thanks to all who replied.
Hi Ladies,
Thanks to each one of you who replied to my post and I really enjoyed Audrey's photos!
I really felt alone about this situation until I found this site. I had a lot of reservations about getting this computer but now I am so proud that I did.
I had no idea there was such a thing as a "pain pump" and many other things I have read about here. Thanks again for all the information I have read about.
I did have a C-125 test and it was normal. I guess I am just tired of worrying about having cancer. My maternal grandmother had uterine cancer. They gave her "cobalt treatments". My mother had severe fibroids and her older sister died of ovarian cancer. So I am really skittish about anything to do with my "female organs."
I have read a lot of the posts and all I have to say is that we women have a lot of guts.
DonnaBelle
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05-08-2005, 07:06 AM
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Guest
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Posts: 2,618
Hysterectomy: September 17th, 2001
Surgery Type: TAH
Ovaries: Removed both
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Not a Simple Ovarian Cyst
s DonnaBelle
AudreyS has given you some excellent advice. Please be sure to have a gyn/onc perform your surgery. It is a must even if cancer is even remotely suspected.
Also, as some others have asked, have you had a CA125 done? It is not a good marker for all ladies, but it sure has been for me.
I had a TAH back in 2001 and then developed ovarian cancer in 2004. My tumor was the size of a softball.
life's embrace:
I'm not sure the answer to your question about the shrinking of the mass. That would be a good question for your Dr. I just wanted to say that I was so happy to read that you have a gyn/onc performing your surgery.
I know how scared you both must be. Many of us have walked in those shoes before. If you would like, feel free to visit us over at the Cancer Concerns forum. There are many ladies there who are just like you both, waiting on surgery to determine if there cysts are benign or not. We would be glad to have you.
I will be praying for benign results for both of you!
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05-08-2005, 07:28 PM
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HysterSister
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Posts: 4,889
Hysterectomy: May 15th, 2002
Surgery Type: SAH
Ovaries: Removed both
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Not a Simple Ovarian Cyst
To ((DonnaBelle)), . Sorry I didn't set up the link to Cancer Concerns correctly, but it should work this time! Thanks for your sweet comments about my pictures.
Although it may be good news that your CA125 is normal, it is not a good cancer marker for some women; for me, as it turned out, it was a good marker for my endometriosis. Given your family history, there is enough there to demand the oncologist. The thing about complex cysts is that they many not be easy to remove, and that's where the three years of added surgical training work to your benefit, whether or not there is cancer present.
((Life's Embrace)), your situation also warrants the interest of a GYN-oncologist. It occasionally can happen that a leftover "scrap" of ovarian tissue regenerates; even a small bit can produce a cyst. The fact that your cyst has decreased in size probably does argue against cancer. The nausea could in part be due to hormonal fluctuations, since an ovarian remnant can produce unpredictable amounts of hormones. Either way, it still takes the extra experience and skill of an oncologic surgeon to offer you the best outcome. If you do a search on "ovarian remnant" you'll find this is not unheard of! We've had some ladies around here who've dealt with that. My doctor followed me with FSH (follicule stimulating hormone) testing for a while, to make sure my ovaries weren't growing back. If you are in full surgical menopause, that level will be high (it's "looking" for an estrogen response that isn't there). A low figure, even if it's just above pre-menopausal limits, can reveal an ovarian remnant producing estrogen.
I hope you BOTH get some answers...and the best care you can get!
Audrey
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