TAH: Praying that the pain will leave with the surgery.

I am scheduled for TAH on the 15th. I am really praying that after 4 months of everday pain and horrendous periods that I will finally be feeling normal. My lifestyle has changed drastically since this began. I mainly lie around on the couch or in the recliner. I cant stand for very long without the pain becoming severe. Sitting . . forget about it, I have not been able to sit since the beginning. I have an enlarged uterous and a thick cervix, the Dr believes that I also have endo (but have not had a laporscopy to prove-Dr didnt want to subject me to two surgeries). Prayers and suggestions for before and after are greatly appreciated!

I had a hysterectomy Nov 6 and I am like a new person! Any pain I had afterwards was worth to make me feel as great as I do.. Good luck with your surgery

Hello,
I am amazed that your story sounds exactly like my life, you have described my life to a "T". I feel so useless and frustrated that my quality of life is essentially gone! I have a 2 1/2 yr old and feel like I cannot even be a good Mom to him because of this horrible disease. I have confirmed adenomyosis, and also suspected endometriosis, the specialist I was referred to, who I really can't stand, WANTED to do a lap on me first. I told her I didn't think so. I had a Novasure ablation done in August and my doctor found a way to make that 90 second money maker to happen in 7 days because of my severe pain and bleeding. I have been suffering much worse since then, minus the bleeding now. I have severe pain sitting too! The only explanation I have been given on that is my uterus is retro-tilted and rests on my rectum. I have severe pain when trying to pee also. I am beyond miserable and I have a da vinci booked for the 20th of this month with the specialist I told you is a witch. I haven't canceled it yet, but I am planning on it. I have a 3rd opinion on the 6th and pray that this doctor won't make me wait too much longer, and has an ounce of compassion. My regular doctor of over 17 years has basically abandoned me. I think he knows he made this worse with the ablation, and he knows he doesn't have the skills to operate on me now. I am beyond frustrated with the whole system and the waiting and the way I have been treated up to this point. I will certainly pray for you, please say one for me too. I may end up having the TAH like you just because the wait for the da vinci robot seems to be an issue in my state, and although they tell me it's "best" for me, they don't think it's a big deal to wait months in severe pain that sends me to the ER. I have to live on percocet just to function at a minimal level. I can only dream about how I might have a normal life after this surgery, but being in a holding pattern and in pain everyday really changes who you are. I don't even like myself anymore, I know I am miserable to be around, and I can't do anything about it. I can't deal with this level of pain much longer, honestly I am at the end of my rope now. If this appointment on Wednesday doesn't pay off in a big way I don't know what I will do.....You are not alone. I feel very alone and thank God for this website..
alicia

Thanks Alicia, I started crying when I read your response. It is good to know that I am not the only one with this severe pain. I have a appointment with a Dr that can do the da Vinci, however not sure that I want to wait to have that scheduled, considering my daily pain.

I read your post out loud to my husband! I was like, honey look, I am not the only one who can't get off the couch/heating pad!! He just hugged me and said it was going to be ok, and that he believed me! I feel like these doctor's are not hearing me at all!! I am so relieved that my mom just said she can babysit on Wednesday, now my hubby can come into the appointment with me. I feel like if he is there and makes a stink, (only if necessary), than maybe just maybe they will do something!! It's not humane to allow people to suffer as we are!! Dogs are treated more humanely than this!!! I just want one doctor to say, I am going to take care of you, NOW, not in 5 weeks!! I don't expect an emergency, but come on, they have spots open for surgeries that are emergencies, it's not like they cannot do it!! I worked in the OR for many years, I know how it works. It's the doctor's that call the shots let me tell you that much. I agree about da vinci, I have heard wonderful things about it, and of course I want the best possible outcome. But not at the expense of this suffering. I would take the longer recovery in a heartbeat over another month to wait! I am just really worried because they told me the da vinci does a better job on complex cases with endometriosis. I hate even being in this position. When I read posts about women getting surgery booked in a week or two I just cannot believe it especially because some aren't even in pain!!?? Plus the fact that I was told that the da vinci is "first come, first serve" here in CT, I about fell over!!? What??
That is the most ridiculous thing I've ever heard!! In 15 years on an ambulance, people go through triage, it's not who ever gets there first!! If an ambulance brings in a person with a broken nose, and a person with abdominal pain, no question the abdominal pain is ALWAYS seen first by the physicians in the ER. Doesn't matter who gets there first!! I'm sorry, I'm off on a rant again.......my hormones are raging, I am going through yet another miserable period.
I was blown away when I read your post! I didn't think anyone else was living like I am...I go from my bed to the couch. That's my life everyday! I suffered through xmas and had to shop for the kids and stuff, but I paid dearly with pain. My poor baby boy always says why are you crying mommy?? I just want you to be happy mommy.....he's only 2 1/2!! It breaks my heart. I hope that we both get to the other side very soon!! I will pray for you! I am grateful for your post, and I am here anytime you want to talk, or vent like I am!! LOL......< Email address removed for your safety and privacy>
BIG HUGS SISTER~
alicia

Hi there!

Just wanted to let you know that I had my TAH on Nov. 16.

I'd had pain and almost non-stop bleeding for one year. After having a D&C and then another D&C with ablation, my doctor and I decided a TAH was the best route.

My surgery took approx. 2 1/2 hours. I had absolutely no incision pain. I actually had a pain pump in my incision that was removed after the 5th day. The first two weeks post-op were not pleasant...to the point where I actually questioned whether I'd made the right decision.

HOWEVER, today, 7 weeks post-op, I feel FANTASTIC! I still have some soreness on the inside of my lower abdomen. But, I feel better than I have in a LONG time!! I didn't realize how bad I felt before until I realized how good I feel now!

I'm on the Vivelle dot patch and it seems to be working well.

Hang in there and best of luck with your surgery!!