We are so glad you have found us!
I have never heard or read of endometriosis causing missed periods. That's interesting! Have any of your doctors done any testing to see if you might have a co-existing condition along with endo?
PCOS maybe?
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I opted for endometrial ablation it helped for 2 months
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Since an endometrial ablation does not treat endometriosis, were you also having some bleeding issues or an issue besides endo? Has anyone ever mentioned
adenomyosis to you? That could explain some of your pain and why the ablation failed. Thankfully, unlike endo, adenomyosis is cured with a hysterectomy!
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the pain started getting unbearable like before I had only thing different I bled less which was good....
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Sometimes scarring occurs inside the uterus after an ablation. If there is endometrial tissue below it which is trying to shed, that can cause some pain and complications. And how effective an ablation is can depend on how well all of the endometrium was removed and how your body reacted to the procedure.
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he said I could get a hysterectomy but leave my ovaries and I believe my cervix as well....
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Have you had a
second opinion about what might be best for you. We strongly recommend them before a hysterectomy for a couple reasons. One, to be sure a hysterectomy is your best option, and two, to be sure you will have the right surgery type. For instance, keeping the cervix can be iffy for those with endometriosis and/or adneomyosis as both conditions can affect the cervix. My own cervix was removed because of the endo involving it.
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my main fear is because of me having 3 csections my last one was 2 years ago and then 10 months ago doing ablation if I will have too much scare tissue for them to be able to do lah
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Scar tissue from the c-sections will be outside your uterus and can affect surgery type. It can depend on how extensive they are, where they are located, and the skill of your surgeon as to which surgery can be completed. Also, endometriosis can also allow for the formation of adhesions which can make things complicated. For instance, thanks to endo, my uterus was connected to my pelvic side wall before my hysterectomy.
Scarring issues from the ablation would be inside the uterus and could affect whether or not the cervix--which is the bottom of the uterus--could be separated from the upper part of the uterus. So, that could change your hysterectomy type to a complete hysterectomy even if it can still be completed laparoscopically.
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Also will you eventually have your cervix and ovaries removed after the hysterectomy?
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Some women do end up needing their cervix removed later; it can depend on if the cervix is affected by whatever lead to the hysterectomy and/or if new issues arise. As long as the ovaries are healthy, they shouldn't need removed, but, again, if a health issue arises it can happen. It is best to keep them as long as possible as there are a number of significant health risks involved with premature menopause--especially for women younger than 40. I was 25 when I had my hysterectomy and my surgeon wouldn't even consider removing my ovaries, even though I had stage IV endo. Later, when I was in my 30's and had more endo surgery with an endo specialist, he also would not consider removing my ovaries. Estrogen is too important for overall health so there are so many
risks to having an oophorectomy for benign reasons.
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What about bladder slings?
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Unless you have a bladder issue, you shouldn't need a bladder sling. If you have issues with your bladder, be sure to discuss them with your surgeon prior to your hysterectomy in case there needs to be additional repairs.
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My mind is racing right now I'm ready to be out of pain for good.
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If a hysterectomy is right for you, I truly hope it brings you the relief you are looking for. Endo is a nasty condition which can implant in so many places and many general OB/GYNs are not able to locate or remove all of it. That can leave us with continued issue even after a hysterectomy. My own OB/GYN had to leave endo on my bowel walls so I needed more surgery after my hysterectomy as my endo pain and symptoms had slowly increased. For that surgery, I made my way to an
endometriosis specialist for
excision surgery, something I wish I had been able to do originally. He did an excellent job and I have been endo pain and symptom free for 8 years now!