Someone out there please help me!

I've not posted on here for a while, hopefully someone is going through the same thing and can help me. My LAVH/TAH was on December 3, 2007. 5 weeks after surgery I was in the ER with internal infections where the stitches were. 3 months out I had laparoscopic surgery on March 18 to remove scar tissue and adhesions from my colon and abdomen. These formed after the hysterectomy on December 3. At exactly 6 months post op- had been having horrible pain in my lower left abdomen for 2 months. I've had 3 CT scans, xrays, colonoscopy, blood work, etc.. nothing is showing up. I have been to 3 different ERs in the past 3 month, nothing. 1 doctor told me I'd pulled muscles, haha. 2nd doctor said it was diverticulitis, 3rd doctor ordered the colonoscopy. Results came back normal. He said it might be IBS- never had so much pain until AFTER the hysterectomy. My OBGYN released me 2 months ago and said whatever it was, its not GYN related and he could no longer help me. More tests revealed that it was indeed adhesions again, so my doctor sent me to a pain therapy dr who now wants to give me a spinal nerve block. It is supposed to cover up the pain in my abdomen, but it will not get rid of the adhesions. the only way to get rid of them is another surgury.
I am in a bind and don't know where to turn, who to talk to, my dh is awesome but he does not understand what I'm going through. This new nerve shot is to cover up the pain im still having in my abdomen- Yes it's still painful- every minute of every day- I do not even work a whole week anymore and when I'm at home i just lay in bed and cry from the pain. This doctor is also waiting until the pain shot to give me any meds. Oh, I get them every now and then if my mom has a pain pill she will give it to me, and a girl at work let me have an ultram a couple wks ago- what a joke that was.... I just feel like every day it gets worse and worse and even though my dr refered me to this pain doctor, he has totally removed himself from my case. i called him yesterday again to tell him i didn't want the shot because it's a cover up and i don't see the point if im still going to need another surgery. he told me that was my personal decision but i need to talk to the pain doctor about it, not him. all i want right now is either a few pain pills to get me through to november 11- when the pain shot happens, or someone to give me another route to take.. im going out of my mind here. i don't even do simple things anymore like laundry, dishes, dusting, etc... dh does ALL of that. I feel like I am ready to give up..... im sorry for the long post, is there anyone who actually understands what im going through? any suggestions? If I would have known that 10 months out I would still be in pain, worse than before the surgery, I would NEVER have had it done! Have lost a total of 50lbs since December also. Anyone else gone through this?

I'm so sorry to hear what you are going through, but I know alittle how you feel. I had a LSH on Jan14 and during the ong operation I had what the doc called"Pounds" of adhestions removed during the surgery from my c-sections. Ever ince the operation I have pain when I hav a BM and I will get occational pain when I bend , lift or strech. I went to the stomich doc and he did a colonoscopy which was fine. He did tell me my problem was related to new adhestions that formed after the surgery. He told me there is nothing that can be done. He also said that it is a vicious cycle of more and more adhestions. Please go to another pain doctor. You should not have to suffer this much. Get a second opinion. Stay strong, as strong as you can right now you will get relief it just takes a while sometimes. Good luck to you and God bless. Denise.

Wow, and I thought I had it bad. I am sorry to hear about all of your complications. It is good that you posted. I am also having problems. Soon it will be 5 months since my surgery and at times I just sit and cry and I wish I never did the surgery. After my surgery I had extremely heavy bleeding for 9 weeks. I had 4 utis and other infections. I was in the er 4 times. I still had bleeding every so many weeks and after intimacy. One day athe dr tells me he knows where the bleeding is coming from and orders the silver nitrate when I go back to the next visit he is not sure of what spots and wants me to go to ob/gyn specialist that also did my surgery. (Don't really care for him) I also think I need a urologist because I have to constantly pee. Like every 20 minutes. I try to stretch it to 40 minutes to an hour but it gets painful. I am also always constipated.

I understand what you are going through. Right now I am in a bad place physically and emotionally. I don't know if I should seek more help or just give up. I also don't work as much as I used to because of the pain.

Why did you have you hysterectomy? I had mine because of severe endometriosis, adenomyosis, pelvic congestion syndrome and ovarian cysts. I told the dr that I understood the pain and bleeding before surgery but I don't understand it now. The drs make you feel like you are crazy. I know that I am not because everytime I go and they run tests they find something. I just want to feel good. If I can't feel good I guess I just want to be left alone. My dh and family are very supportive but how much more can they take. I admit that I try to cover up my pain but my dh sees right through me.

Look at me I venting about myself when I should be helping you. Remember you are not alone. Women go through so much. Don't give up. Perservere. Maybe I should listen to my own advice. lol.

Good luck and let me know how you are doing.

Sending you BIG HUGS.

Have a GREAT DAY.

Tophatt10

Oh poor you !!! I know what you are going through. I had emergency hyst in April (fibroids) and developed more adhesions from that surgery (had had 2 c -sections). These adhesions that caused a cystic mass, encapulated my rt ovary and basically stuck my bowel to everything. I had to have a 10cm section of bowel removed, rt ovary (size of grapefruit), appendix and adehsion separated in August. I have NEVER been so ill and in pain before the surgery. My 2 surgeons were fantastic and I'm now back to work pt (for the last 2 weeks), but it has been a long road.

I really wish you well and hope that this pain is resolved soon for you. I was so ill in August I was admitted from the emergency room.

However.................. now I am over the trauma of the hyst etc, I'm please I had the surgery.

Sammy

I cannot say that I know what you are going through but I just wanted to let you know you are in my thoughts and prayers... take care of yourself and keep your faith.

Oh sisters, I see I am not alone, I have yet to get any hard core tests from my pains, but I too fear adhesions, for now I am treating myself for IC (Interstitial cystitis) My bladder wont empty fully, not sure if it because I stress too much or its tilted wrong. I have no incontinence thanks God... that stopped after my surgery when they removed that huge cyst... I had a Burch bladder procedure surgery. My problem bladder caused problems with UTI's and I get bladder pain and spasms, only difference was I switched from bottled water to a Brita filter pitcher.. had started having one cup of coffee a day, half cafe and walking on the treadmill up hill slowly and I was in so much pain I thought I had another UTI. my Dr says no and didnt know what else to do, I am going to a urogl specialist soon, I am taking those drugs and watching my DIET to make sure I stay away from anything caffeine or acid.. I am not suppose to sit to long either like long car rides, but I work at a computer all day for work.. I dont know what to eat but meat or pears. I have to tread lightly.. the IC makes a lot of pain in my lower hip areas and my abs, so I think if the new dr does not tell me I am IC for sure I may have to move to looking for adhesions, but from all I have read with bladder pain, and spasms and muscle pain in the pelvic area with treadmill walking and caffeine and must drink bottle water, I am hoping I can control it by going back to my old ways.. I did have bladder surgery with my TAH/BSO.. GOOD LUCK ladies.. Anyone else get bladder pain from using Brita filters or walking on a tread mill?