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Will menopause cure adenomyosis?
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07-20-2016, 09:42 PM
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Posts: 36
Hysterectomy: October 28th, 2016
Surgery Type: LSH
Ovaries: Kept 1 or both
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Re: Will menopause cure adenomyosis?
Thank you Forelore for giving info about how things turned out for you. The more I research, it seems to go both ways. Some women's symptoms of adeno go away at menopause and others seem to stay the same or get worse. Not sure why.
It does help that so many women are supporting each other on such a wonderful site! I hope this will help others, as more sisters post about their particular outcomes.
Thank you again, and best wishes
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07-21-2016, 07:48 AM
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HysterSister
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Posts: 1,010
Hysterectomy:
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Will menopause cure adenomyosis?
It's too bad embolization didn't work completely! I was embolized too and in my case it worked however I stopped having periods. This necessitated a d&c to thin the lining. The pathology came back benign for cancer but positive for suspected adeno tissue. I'm markedly improved and don't plan on further treatment outside of wellness exams however I decided a long time ago if my fibroid resurfaced I would have a repeat embolization. Have you considered this?
A serious consideration for me along my unintended journey of the fibroid maze has been the inconsistencies within the medical community. Some say bcp, others say no. Some recommend ablation, others say absolutely not. Most want to take everything citing I'll never have to worry about future cancers while other highly noted doctors and organizations say reproductive cancers are quite rare. It's really hard to know what to do or how to proceed.
I think less is more which is why I would attempt re-embolization and because of the great discrepancies within the gyn community. Personally if a hysterectomy was eminent I would seek a doctor willing to save the cervix and ovaries. Just from what I've learned on this site. Hormone mgmt is complicated and healing is longer with a vaginal cuff, or so it seems.
Trust your instincts when selecting a doctor. If they look at you if you have 2 heads then I would move on.
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07-21-2016, 06:09 PM
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Posts: 36
Hysterectomy: October 28th, 2016
Surgery Type: LSH
Ovaries: Kept 1 or both
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Re: Will menopause cure adenomyosis?
I was thinking about getting embolization done when I thought it was just the fibroid. Now that I'm pretty sure adeno is causing most of the severe symptoms w/ the fibroid contributing of course, I'm leaning against it. I started measuring my waist in Jan. of this year because it just kept growing. People kept asking when the baby was due. I would make a joke about it or sometimes even make-up a due date if I thought I wouldn't see them again. I gained 4 inches in the waist since Jan. plus many inches the yr before while losing weight at the same time! Adeno sure does some wacky stuff to our bodies.
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07-22-2016, 10:20 AM
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Will menopause cure adenomyosis?
I can totally relate to the thickening waistline. My clothes were literally splitting at the seams. I think rapid weight gain is more fibroid related because fibroids need estrogen and this is stored in fat. I had thick pads of fat right on top of my uterus. Of course I developed more and more fat as the fibroid took over my body. Hormonal fat with an active fibroid is difficult, seemingly impossible, to shed.
Isn't adeno a distorted uterus, a result of excess blood flow? So much blood that the uterus becomes misshapen and enlarged? I read embolization at the artery (UAE) is great to control excessive uterine blood flow that contributes to adeno but I have also read this has been disappointing to control adeno alone. More contradictions.
Good luck to you as you proceed!
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07-22-2016, 10:51 AM
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Hysterectomy: June 6th, 2016
Surgery Type: LAVH
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Re: Will menopause cure adenomyosis?
I was thought to have had uterine cancer before my hysterectomy. I had an internal ultrasound for heavy bleeding 2 years after menopause. I took Tamoxifen for past breast cancer it can cause uterine cancer. I had a D&C with hystoscopy and biopsy after the ultrasound Gyn saw polyps and thickening of lining plus prolapsed uterus. I was then scheduled an hysterectomy for stage 2 uterine prolapse ,thickening of lining and blood filled uterus. After the hysterectomy my Gyn saw the adenomyosis. It is endometrial tissue of uterus that is displaced in muscle of uterus . It causes excess bleeding and thickening of uterus as well as enlargement. I didn't really know what adenomyosis was until I saw pics of my uterus after surgery and Gyn explained it. I wasn't a candidate for UAE for I was past menopause and prolapse. I hope Harpist you can have UAE done surgical menopause sucks especially since I went through menopause 2 years ago. Best of luck to you.
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07-22-2016, 11:28 AM
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HysterSister
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Posts: 1,010
Hysterectomy:
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Will menopause cure adenomyosis?
Thank you for clarifying what adeno is. I didn't realize it is endo within the muscle. My fibroid was in the muscle too. It has shrunk over 90% thanks to UAE.
I'm very sorry for your struggles too!
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07-22-2016, 07:29 PM
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Hysterectomy: May 17th, 2011
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Re: Will menopause cure adenomyosis?
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08-02-2016, 03:58 PM
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HysterSister
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Posts: 50
Hysterectomy: January 27th, 2007
Surgery Type: LSH
Ovaries: Kept 1 or both
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Re: Will menopause cure adenomyosis?
Menopause should stop the excess bleeding. However, adenomyosis causes a thickening in the wall of the uterus because of the scar tissue that is formed. That will remain if you leave it in. The scar tissue from repeated endometrial bleeding in the wall of the uterus is what causes the excess bleeding during your period. The uterine wall can't properly clamp down to shut off the blood vessels feeding the uterine lining when it is shed. When you have adenomyosis you are literally bleeding during your period, not just shedding the uterine lining.
I was diagnosed with adenomyosis at age 48 and had a laparoscopic hysterectomy. I left my ovaries and cervix as there was no history of ovarian cancer & my pap smears had always been normal.
The big reason for moving ahead with the hysterectomy for me was my blood count was down to 7.1. I had to have 2 units of blood because I was dangerously anemic. My mother didn't hit menopause till her mid 50's and I was not yet in perimenopause. My gyn did not want to wait as the anemia could have been fatal.
I was very upset about having the hysterectomy, because even though a pregnancy at 48 isn't something I was seriously considering, losing that option made me very sad.
I will say I do NOT miss my periods. Neither does my husband. I wish I could say I felt 100% better afterwards, but I may have made a mistake in leaving my ovaries, which I thought would make the hormonal transition afterwards easier. However, I also have polycystic ovary syndrome and I would have had a great deal less pain over the last 10 years if I had them taken out. I'm in menopause now and am on hormone therapy for the hot flashes.
You may eventually need surgery for you fibroid as well. It's a tough call but you will have more energy once you recover from the surgery.
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