please help, im desperate for info on having TAH with ovaries out coz of endo.

Hi all

I hope everyone is having a good day. Im quite new to this board and would like very much for some response from ladies that have had or are going to have a TAH with ovaries removed as well becoz of endometriosis. I am in the process of talking to the docs about having it done (age 29) and would really appreciate hearing from those who have had it done and how they are coping, if endo has come back or whether they have started a new life without all the pain?

Please, please help me with info, im desperate to hear how others are after having this done.

thanks very much for reading this post, take care

lots of love

ems

Hi Emma,

I didn't have my hyst because of endo, but I wanted to reply to say that I am glad that you are getting a second, or even a third, opinion before you decide to have a hysterectomy. I'm sorry that you have been suffering for so many years, but you are also very young, and there may be other options available to you that would be less drastic.

Have you seen the information in the Resource Forum yet? There are some articles and links to web sites discussing endo and alternative treatments.

Please continue to read, research and post any questions that you may have. I'm glad that you found us and posted.

's

Hi Emma,
I too suffer from severe Endo. I went in for a Laparaoscopy on May 9th. What should have been a 30 minute outpaitent procedure lasted 3 hours and I lost both of my Fallopian Tubes.

I am only 35. After the surgey my Dr. started me on Lupron Injections. This is the last stop for me before a TAH. My Dr. seems "Positive" that after the course of Lupron that the Endo he couldn't get will have destroyed. He then intends to put me on a low dose birth control pill to keep the Endo "At Bay".

I won't kid you though, my experience with Lupron has not been an easy thing. As there are MANY side effects.

I am constantly researching other alternatives as a hyster is forever and I am only 35.

Keep on reading and DEFINATELY get a second opinion.

Keep us posted!
Stacy

Hi Emma,

I had a TAH/BSO about a year and a half ago, primarily due to severe stage 4 endo. I was 46 when I had my surgery. My experience may or may not be typical ... you'll find many other ladies here who have had hysts with ovary removal due to endometriosis. I also had a history of fibroids and it turns out that I had adenomyosis too (discovered during pathology examination of my uterus after my hyst).

As you probably know already, there are no guarantees you'll be endo-free forever even after a hyst and ovary removal. Some gals do just great and never had a recurrance but others are not as lucky and the endo comes back.

During my surgery, my gyn was assisted by the gyn oncologist who actually trained him .. the gyn oncologist did peritoneal stripping and removed the endo deep in my pelvis. I also had a urologist there who put stents in my ureters because one was attached to an ovary and everything was attached to the peritoneum. I was in the hospital for 2 days ... surgery on Thursday afternoon and left for home at noon on Saturday. I had no complications whatsoever from my surgery. I was back at work full-time in 7 weeks.

I didn't take any estrogen for the first 3 months post op and during this time I took Megace, a progestin, as an added precaution to suppress any possible endo implants that might have been missed. I had some pretty major night sweats and trouble sleeping, but this improved a lot once I began taking a soy supplement and using Tylenol PM to sleep at night. After getting past the first few weeks of recovery, I actually felt really good and told my gyn I felt like I was living a miracle! I started taking the lowest dose of estrogen (Menest 0.3 mg) at 3 months post op until 5 months post op. Then I switched to Estratest H.S. at 5 months post op (0.625 mg of estrogen and a small amount of testosterone).

Unfortunately, I began struggling with "belly" pain and intestinal problems again. I made the rounds of my GP, gyn and gastroenterologist to try to find the source of the pain ... had a CAT scan, ultrasound, tried irritable bowel medication, etc ... and finally decided that the only thing I hadn't tried was just stopping the estrogen to see what would happen.

I stopped taking the Estratest about a month ago and the piercing "belly" pain stopped within about 48 hours. Although there's no way to know if the endo came back without doing a lap, I'm suspicious that it did. I feel MUCH better now, despite some hot flashes and night sweats. Life is much better without persistent belly pain, bloating, etc.

I wish there were easy and definitive answers for you. Unfortunately, there are not. You are young, so please consider this decision carefully. Get a second opinion. Ask questions and make the decision that ultimately feels best for YOU. We'll do our best to provide support, whatever you decide. Sending hugs your way.

Beth

I had a TAH on 06-02-03 due to Endo (Stage 4) I think it depends on the amount of pain the endo causes you. I had severe pain from it for a good 10 years and it finally hit a point where I just wanted it taken out!! I'm just one month into my recovery w/ post-op pain but the pain I suffered pre-op is GONE! Over-all I'm extremely happy with the decision my DH, DR & I made- I'm 27 and will never have my own children and that is a source for some emotional down-falls but each person has their own unique situation and the final decision is their own to make.

Hi Hyster Sisters,
I am 43 and have been suffering with endo since age 14.
I am scheduled on July 31 for a TAH/BSO for Endo. I look fowrad to this. I want everything out. I am in so much pain now and just don't want to deal with this any longer.

I have had 3 laps, Danocrine (horrrible experience), BCP's, Lupron inj. (never again).

I know that I will experience the typical hot flashes, night sweats,
possible insomnia, etc... I hope I don't experience any depression, but I will deal with that if it comes.

But I think that is much better than the pain I have been suffering all these years.

The Lupron injection did put into menopause so I know basically what I will be dealing with.

I am going to take vitamin supplements for my menopause and hopefully this will help.

I will stay away from any soy products because it is a phytoestrogen.

I am only weeks from surgery, and am a little anxious, but I believe in the power of prayer and that is what I am holding onto.


Glinda: Good luck on your recovery PRINCESS!

I WILL KEEP YOU ALL IN MY PRAYERS!