Am I doomed for Life?

I have spent many hours the last few days staring at this screen trying to get the courage to write this. Plus my mind feels that by writing this down, I am admitting failure to myself. Even though I know this is NO fault of my own, and out of my control, and knew it could be a possibility, I just don't want to believe it.. I believe the adhesion that was cut, is reforming. I am only 8 weeks post op adheolysis. The pain is not as bad as it was pre-op, and is not constant, but it is that definite pulling tugging pain, sharp,pain I remember. It is now coming and going. But coming more frequent, or I am noticing it more. I know there are lots of sisters who are sufferers, is this just to be life now. I cannot at this time go through another surgery, not that it is even an option for me at this point... Is all I have to look forward to, the "Wait until it gets so bad you cant stand it anymore, then have surgery" .. I have an appointment with my gyn surgeon in a couple of weeks. I dont even know what to say, to ask. Is there something more he should have done other than just cut the adhesion band? He did not use any barrier's and I did not know about specifics until afterwards... So maybe now that they have returned, he will use barrier's next time. Or throw his hands up and say, nothing more to be done? I want to be prepared for my appointment with him in July, so any of you sufferers out there, who can give me some direction, I would greatly appreciate it. I think I am in denial! I tried to share with my dh, and he got really upset... All he wants is his wife back. All I know is I dont want to be debilitated... Sorry this is so long...

Dear Susie,

I'm not sure if you're familiar with the wdxcyber.com website that has a physican message board and FAQs on a number of women's health topics, but...the doc there says that it takes about 6 months or longer for adhesions to form and attach. I would doubt that that is what you're experiencing and sincerely hope it's part of normal healing.

Of course, this is an extremely important question that you must raise with the surgeon, but it does not seem likely that adhesions can form that fast, as far as I can tell.

I hope your appt goes well!

Susie
You are still fairly early post op, if I remember correctly, from two surgeries in a short period of time. I have found that with each successive surgery I've had it has taken me longer to recover. Even the nose surgery I had last week has me out of whack. Nose hurts, belly is swelling more than usual, I am sooo tired, etc. Do give yourself some time and don't necessarily assume the worst.

Perhaps you could start keeping a journal of the pains you are feeling. This way you will be prepared for your gyn visit in July.

Good idea... I will start a pain diary... And you are correct I am 4 weeks post op from my uro surgery... I only assume the worst because the pain is so familiar, and I had none of this type of pain until the past week or so after the lysis. This area is not near where the uro did anything either... I just hear my gyn say "in his experience they can reform, and most do within 8 weeks following surgery" And after the uro removed a bunch of scar tissue from my urethra, I believe I will be prone to develop scar tissue... Yucky! I have a vacation soon, and am counting the days....
's to you and your nose too! Thanks for being there for me! I'm not a winer, just completely unlucky in 2003 so far.....

CMCM, thanks for the site, I will check it out.

Susie,
While reviewing all my medical records they all indicated adhesions, yet when I had the exploratory lap in November the doc didn't find any adhesions. Yeah, I still have my problems, but it's probably not from adhesions. I guess what I'm trying to say is that even though you have a history of them, it doesn't necessarily mean that you have them now. I'll be ing that they have not reformed.

Thanks Kim... I find other's stories interesting... I had the opposite, doc at first did not think I had any... He thought it was bowel related. But I wasnt having any bowel symptoms... I am keeping my fingers crossed that I am just having a bad week. Atleast in case I don't feel better, I know I have an appointment waiting for me when I get back from vacation.

I know you can relate well in the search to be pain free, and normal again.... We can keep praying for the developement of nano bots that can be injected go and fix all the bad yucky stuff, and then you expel them when they are done.... One can dream anyway.