Hello to all of my Dear Sisters on the Road....
Sorry I haven't been around very much. There has been a lot going on with my sister (personal stuff) and I have been trying to be there for her and her kidlets. Even though I haven't been posting, I have been reading when I've been home...& praying for all of you.
I'm not sure if I have posted this before or not <fog> but wanted to ask all of you about vaginal re-construction. Previously, my docs thought I had a fistula. It turns out after many tests...that it doesn't appear to be that.
Shortly after this (several months ago) my docs informed me that I have what can only be described as a fork in the road (in my vagina). Meaning that I have two separate passages/tunnels down there.
The reason behind this is not clear. It could be because of the way that I was stitched up at the time of the hyst...Or something else. They aren't really sure yet.
My Uro-Gyn & Neuro doc have both mentioned re-constructive surgery. I am very nervous about this, as I have a feeling that it may only make things worse for me. I have numerous other diseases (including nerve damage)...and have put this on the back burner. It does affect relations with dh
depending on how he 'navigates' himself when we are intimate - which isn't very often.
My Neuro doc has mentioned the use of Botox in my vagina. I am also nervous about this, as I seem to have many reactions to so many different things. The jury is still out on that one....as well as the surgery. I know that a lap for Endo is in my future, but I need to find the right Gyn for that still.
So, Basically I want/need to hear from those of you who have been through/going through something like this. I would truly appreciate any and all input.
Also, I wanted to mention that the pain has escalted this past week. I can only describe it like this: if feels like someone is tightening up a vice (sp?) in my lower ab - on whatever is left in there LOL! Does anyone else experience this type of pain? If so, what was your dx? I know I have to see the doc, but I am curious to see what you have all found out....
to each of you....
**P.S. It seems that the swelly belly is getting worse again too. I have had problems with this since the hyst., But lately my gut swells so much that I look about 6 months pregnant. Any ideas on this??? Sorry about all of the questions....xoxo Jude