Continued Pain, very upset and frustrated

Most probably know a lot of the grief I've had since having my LAVH/BSO Sept 5. At over 6 weeks I had truly thought I'd feel at least mostly normal, not still unable to be up for the whole day or able to lift anything over 15 pounds without crying out in pain.

The pain I've been in for the past 10 days is actually worse than my period and just as uncomfertable since I'm still spotting. Only now I get the added pleasure of leaking if I cough or sneeze. By the end of the day my poor abdomin is back to being swollen (I really thought since my hyst was vaginal this would be done). Granted at the start of the day, I can see exactly the 22 pounds of endo they removed (I've dropped 3 sizes in my waist - of course I've gone UP a cup size - not something I needed since they were plenty large enough before) and on paper I realize that a lot of work had to be done and perhaps I'm asking for a miracle but I so didn't want this surgery (I've had endo since age 14 and have spent my entire life trying to conceive never to have it happen) and had hoped for pain free.

At my 6 week post-op appt (with the worlds worst gyn, INHO) I was informed I was having bladder spasms and IBS - none of which was surgical related though I did not have this grief pre-op. I constantly feel a pain like I have to pee (24/7) and when I try to go I have to consciously push and then it feels like my bladder is attached to the abdominal wall and is trying to get unstuck (literally cry every time I sit there). The cramps and lower back pain are twice what my period was only now I have no scrip pain meds to help. I know that the meds help constipate you but since I almost pass out when I try to have a bm I could use some constipation.

I don't have a UTI, we looked on Thursday. I do have an appt with a gastronologist (excuse the speling) but the soonest I could get in is Nov 4. I'm not sure I can handle trying to function in this much pain until then. Since my gyn told me Thursday that none of my concerns are due to my hyst or endo (even though he admits to leaving "inactive" endo on my bowel and threw me - without consulting me - on .1 climara patch) so please don't call his office anymore. There's nothing he can do for me.

I knew there'd be emotion with the hyst (and I'm working on the grieving process) but now I'm mad at myself for allowing him to take everything out since the pain now is actually worse than before. Everyone is suffering in my house (3 step-kids with mental issues that I'm really new at raising) and it's very hard to explain to them (my incisions look wonderful, thank god) why I still hurt when I don't understand it myself.

Thank you all for giving me a place to vent since at least here you know some of what I'm talking about. I know I don't have it as bad as some, which makes me feel guilty for whining, and to those women I apologize. I so don't want to minimilize anyone's elses pain. I'm totally alone here (closest friend or family member is 2000 miles away, I've not lived here for long) and am feeling the isolation. I'm losing my sense of humor which has helped thus far, but I can't muster the strength to make anyone laugh, sorry.

Thanks again for all the support and suggestions I've received during what has been a tumultuous 6 weeks.

Hi Cherry Lea
I'm so sorry for you.
I had my op Tuesday, I hope I don't have the same complications, that sounds selfish, but my sister had hers in March and she is complaining of the exact same symptoms as you. Seeing her suffer didn't re-assure me much before my operation, as you can imagine!
Also, my sister is quite a distance from me but she doesn't even have a computer! I know! I'm so lucky to have this and the support I have found on here.
If you could contact me via my email address, I could pass her snailmail address to you? I'm sure that you both could find comfort in each other. She has no idea at all of the different emotions, symptoms, complications etc experienced by other women. She is waiting to see a bowel specialist now, a 17 weeks waiting list.
I wish I could cheer you up! I've now developed the sneezes with a nice little cough to accompany them, Boy! do they hurt!
Hugs
Sue

Hi Cherry Lea,

You poor thing. I had to push to urinate for a couple of days after surgery, once they removed the catheter, but it got better in a few days. I think I was swollen and the urethra was traumetized. But 6 weeks is too long for that to still be hurting you.

You need to seek help from your dr. If he is not helping, ask to see another one.

There must be something they can do.

You must speak up. Doctor 1 is an ****, See doctor 2. Bladder spasms hurt. Detrol LA is easy to take and will stop it. Demand help.

IBS hmmm. What a double whammy.

We are here and we care.

Please let us know how you are doing.