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Back from urodynamics - anyone else have nerve damage? Back from urodynamics - anyone else have nerve damage?

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  #1  
Unread 11-21-2003, 09:38 PM
Back from urodynamics - anyone else have nerve damage?

Hello ladies - I have endured urodynamics today, and I am thankfully reporting that I do not have an overcorrected bladder and do not need more surgery. However, I do not have normal bladder sensation and I do not empty my bladder when I think I did. It's nerve damge, I'm told, and I need to retrain my bladder to go every 4 hours. I have incontinence at times, and the odctor thinks I am just staying full and havbeing bladder spasms. SO, anyone out here have this? It seems very strange to me - is there any hopeof this training thing working? I am doubtful.
Please give your insights.
Sue
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  #2  
Unread 11-22-2003, 12:31 AM
Nerve damage also

Except mine was diagnosed before surgery. In fact she wouldn't operate until I had an evaluation including MRI done by a neurologist. He couldn't find out the cause of the nerve damage. Since the surgery, it has worsen. I don't feel any sensations of a full bladder, and sometimes it is slow in starting. I have been usually emptying OK (better than before surgery, since I had a very large prolapse). I have been taught how to self catherized, so if my bladder doesn't empty, I don't get into a crisis situation. I don't have the big"o" anymore, but on occasion a feint small "o". I really miss that.

It has been 5 1l/2 months since my surgery. Everything went well for 5 months, then I managed somehow, to cause another rectocele. Now I have another large bulge into my vagina and facing another surgery.

Levanah
  #3  
Unread 11-23-2003, 11:21 PM
Back from urodynamics - anyone else have nerve damage?

((Sue)),
I'm so sorry you are dealing w/ more problems I have not experienced Nerve damage of the bladder but I do have damaged nerves in my vaginal cuff (caused by my Hyst), arm & shoulder. I also wanted to share some info I found w/ you concerning *Bladder retraining*, there are 2 sites that have instruction sheets to help

Bladder retraining instructions:
http://www.wdxcyber.com/retraining.htm

Bladder Retraining:
http://www.ichelp.com/TreatmentAndSe...ngProgram.html

http://www.fpnotebook.com/URO38.htm

Bladder retraining instruction sheet:
http://www.sgsonline.org/edpi001.html

bladder retraining and biofeedback:
http://www.overactivebladder.pnu.ca/...etraining.html

There have been others who have had success w/ this, hopefully they will drop by shortly & share their own personal experiences

Good Luck...I do hope it is able to bring you some answers & relief to all you suffer Pls keep us posted....(((hugs)))
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  #4  
Unread 11-24-2003, 10:20 PM
Thanks for the websites...

but they do not address my problem, they are more for an overactive bladder. Mine is an UNDERACTIVE bladder. I have NO urge or sense of fullness. I have done bladder training, but a different one. I have "timed" emptings, I am to empty my bladder every 2 to four hours. I can go for hours and hours without the urge to go pee. Like tonight, I was at a meeting after work, and forgot to go. Thought about it when the meeting ended, then got distracted. Walked through the mall, then walked home. Then decided to go pee when I realised that it had been 10 hours since the last time I went pee. (and still only had a slight urge). This may sound desirable, but urine retention can cause kidney damage or kidney stones. Sometimes the only indication that I need to go pee, is when I dribble. Then I know my bladder is full.
  #5  
Unread 11-26-2003, 06:50 PM
Back from urodynamics - anyone else have nerve damage?

I've been on the schedule process and it's working better than I thought it would. Thanks for the links - the doctor just doesn't have the time to explain this process, and I have more hope of it working out (the retraining) after reading those links.
Sue
  #6  
Unread 11-28-2003, 03:04 PM
Back from urodynamics - anyone else have nerve damage?

Hi Sue

I too endured an urodynamic test a few weeks back, my bladder fills up fine but empties slow, and when they put the catheter in oh my did that hit a sore spot, they think I have a dmaged uretha possibly damaged during hyst.

I hope you can get sorted I will post the outcome of my follow up appointment after 17th december.

Take care

Jane
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