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found out i didn't really need a  total hyst found out i didn't really need a total hyst

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  #1  
Unread 01-09-2004, 08:15 PM
found out i didn't really need a total hyst

I really feel at my wits end. 1 year after having a LAVH/BSO I discovered that I actually should not have even had a hysterectomy. I am 33 years old and feel like I am 70. I know I can not undo the past but what is wrong with me? After my hysterectomy I felt (feel) so fatigued, moody and had (have) no libido what-so-ever. My new GYN has tried me on 3 different types of HRT. The one I am on currently has helped with the hot flashes but I still have very little sex drive-and I have major vaginal dryness!! The part that is the worse is the fatigue. I have a 6 and a 10 year old I can barely keep up with. Not to mention my career. I teach 1st grade and by 3:00 each day I am pooped and need a nap to be able to prepare dinner for my family and go to ballgames...

I just feel like my family would be better off without me because I am a stick-in-the mud. I no longer do fun stuff with them because I am too tired or too irratable.
  #2  
Unread 01-10-2004, 05:18 AM
found out i didn't really need a total hyst

(((Connie)))
First let me give you a big and say how sorry I am that you had a surgery that you didn't need. It doesn't happen often but, unfortunately, sometimes it does.

There's an article in the jungle on Vaginal Dryness that is very informative. I use Vagifem once or twice a week and it helps tremendously! Once those tissues are moist, it does help with libedo but there are other things you can do for that also. Here's the Article List in the Jungle. There are several ideas in there. Read through them and discuss some of them with your doctor. One of the things that contributed to my fatigue was my thyroid. Have you had your levels checked since your surgery? I had to have a medication adjustment after surgery and it really made a difference.

No ones family would be "better off" without them. It takes a very long time for our bodies to heal. I was done raising a family when I had my hyst. and my hat goes off to you ladies who have that added task. When you can nap, sieze the opportunity. Your body needs the Keep in close communication with your doctor, educate yourself as much as possible and brighter days are sure to be just around the corner

hugs, Karlene
  #3  
Unread 01-10-2004, 05:22 PM
Is there light at the end of this tunnel

Oh I do know how you feel..I have a 13 year old with special needs and if it wasn't for my oldest children and husband I would be right in an institution.

But after speaking to my sister tonight see said "you don't have to feel like this" and ya know what she is right..I am calling the gyn on monday and letting her know How I feel..You should too..also, black Cohash , was suggested to really help with fatique along with iron too.

This can only heal fully if we "fight" for our sanity..We have to be our own advocates...My sanity is here only because of this site..I know its help me survive...

And if your doc can't help you...Find another..Thats what I am going to do...Mary
  #4  
Unread 01-10-2004, 06:49 PM
found out i didn't really need a total hyst

Please do discuss how you are feeling with your doctor. For some of us an anti-depressant has been helpful in getting over the humps and back into a productive life. I do believe that a hyst can mess up our brain chemisty (along with the hormonal aspect).....discuss it with your doctor and see what he/she advices.

Just my ---and I am sending lots of 's
  #5  
Unread 01-14-2004, 06:00 PM
found out i didn't really need a total hyst

Nearly 3 years ago, I ended up with a TAH/LSO.
I know exactly how you are feeling.
Shortly after surgery, I took it upon myself to get the pathology results. When I read that the left ovary, tube, and the cervix were healthy, I wanted to die. I nearly went off the deep end.
I still get mood swings, hot flashes, etc.
I wonder if the hot flashes are due to hormonal changes or the right ovary shutting down.
No, your family would not be better off without you. Don't feel that way. I have also felt like that. The hardest part to deal with has been the fact I had been afraid to have children, due to what my Mom endured.
So at times, I feel the hyst was my punishment.
But life does go on.
Millie.
  #6  
Unread 01-14-2004, 08:23 PM
total hysterectomy

Just wanted you all to know I went to the shrink ..I had a list made out of all the symptoms and what meds I was taking..

Shocked at the results: Replace climara patch .05 with premarin .625

Anytime you are on antidepressents you CAN'T TAKE ANY OTC SLEEPING AID..it counters the meds you on..

Melatonin does the same thing..bad if on antidepressants...Now, today after 3 days of the change I am feeling wonderful...I mean shockingly amazing..I went on appts, had a cera gem (girls if you don't know what this is look it up its a life savior for us the hysto gals..wwwceragem.com . I even used the snow blower on our driveway...Made dinner, told the whole gang to grab their bathing suits and we all jumped in the hot tub outside along with snowball fights ect..Had a blast...Our little one just looked at me and said "this is the best Mom".

What I realized today is this, You have to find what works for you..Don't take what the doctors say as the only way..The shrink tweek the meds told me I would be a new person within 48 hours..Guess what SHE WAS RIGHT..

Worth the appt...Just4today
  #7  
Unread 01-18-2004, 10:21 AM
found out i didn't really need a total hyst

So, what is a ceragem? I went to their website and could not really tell much from it. Appears to be a massage bed of some sort? How much was the visit and how often do you have to use it?

I am up to try anything. I am so fatigued, moody....Sometimes I am emotional and other times I have NO emotions what-so-ever. It scares me. I do not like what I am. I ache all over, I am exhausted but yet do not rest well, I am not the mother, wife or friend that I was 2 years ago. I can not tell you the last time I truly LAUGHED-I mean a real belly laugh.

I started out on Vivelle Dot patch and was up to max dose but still having terrible hot flashes and insomnia. Got switched to Premarin and broke out in big red knots all over my face. Went on Syntest (generic for Estratest)-very few hot flashes, no break outs, but still have no libido, no energy.....

I was on Paxil CR-it seemed to help some but the doc wanted to try something that was an antidepressant but would also help me sleep-Effexor. I have been on it for 1 week now. Has anyone tried this? Heard anything about it?

Girls, I just feel like I "exist". I get up, shower, get kids ready for school, go to work, get kids, come home, help with homework, feed kids, clean, do laundry, go to bed, wake up and start all over. I know my husband and family loves me but I can't tell you how many times a day the thought of leaving this world crosses my mind. I have been to a therapist and just sit there and agree with everything she says....
  #8  
Unread 01-18-2004, 10:50 AM
found out i didn't really need a total hyst

"I can't tell you how many times a day the thought of leaving this world crosses my mind."

Hi Connie,

Your words that I quoted about have me very conerned. I hope you do not think of hurting yourself. If you are, you really need to get serious help. Also think about how it would hurt your husband, children, and all the others who care for you.

There have been times in my life when I thought about and talked about dying, then I saw the pain it caused my husband and I got serious about fixing things.

Please, if you do have thoughts of harming yourself, get serious about finding help.

Take Care,
Sharon
  #9  
Unread 01-18-2004, 11:37 AM
I wonder

your first post perhaps shows a clue. I am not a trained psychologist or counsellor so ignore this post if I am way off track, but I find myself wondering if it's the unresolved issue of being 'cheated' out of your uterus and having 'unneeded' surgery. It's okay to feel anger, its absolutely normal, but it's very damaging to us physically to try and bury it or not have it recognised.

I don't know the medical details of why you had the surgery, that was between you and your gyn, but how the end results are spilling over into your life now concerns me.

Is there a possibility of going back to explain how you feel NOW in the light of your path report to your surgeon? You're quite right, you can't turn the clock back and undo the past, but you can and perhaps should deal with a need to talk the experience through and be listened to and understood. This is not a chance for the surgeon to say he did what he thought was best, it's a chance for you to tell him where you are now and how you are feeling.

If your gyn is not supportive then perhaps you could talk to your own medical caregiver or ask for an appropriate counselling contact.

I am most definitely not suggesting your physical symptoms aren't real, I am suggesting that your body is possibly dealing with an unresolved issue that is stressing you and impairing your whole healing - mind, body and emotional and spiritual for many.

I think there is also a lot of good advice and support available on this site and I hope you will soon be starting to feel refreshed and energised. Try and take one small identified issue at a time, sort it, analyse it, even learn to accept an issue, and then don't go there again and move onto the next little step and don't look back!

Please keep posting and letting us know how you're doing, use persoal messages or emails if the boards seem a bit public, but please don't keep stuff bottled up. You are an important person, put yourself first, hugs, Linda
  #10  
Unread 01-18-2004, 07:57 PM
found out i didn't really need a total hyst

Dear Connie,
I ditto what the others have said. Please keep connecting in one way or another and be sure to get help. You will be glad you did and so will your hubby and family. You are sooooo important to them. It just doesn't feel that way for you right now. I'm sending a big ((((((((((((hug))))))))))))) for you. I'm so sorry you had that unnecessary hyst! I have had suicidal thoughts myself in the past. It was a terrible black hole and I wouldn't wish it on my worst enemy. Do one thing to help yourself and then hang in there. Take it one minute at a time. You are loved and you are very special.

I'm praying for you,
Monalees
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