So I got back from my second ob/gyn this week, she also recommended a hyst! But I have been reading a lot on line, and I believe that UFE (uterine fibroid embolization) is really an option. According to some research on Web-MD, the success rate is about 95%. As long as the fibroids are under 10cms (the largest I have is 6.5 cms.... just got lots :-)
Also they say that the uterus shrinks (mine is 16 weeks). The complications are rare (2-5%, with fibroids that are inside uterus cavity.. they can "slough" and get infected, but an MRI before hand can tell where the fibroids are).
I am going to see a specialist on thursday - this procedure is done by an "interventional radiologist" not an ob/gyn.
My first obgyn said there is a 50% chance that if you do an UFE you will have a hyst after, but in fact the statistics show that only 10% of women doing an UFE will have a hyst within 3 years... sometimes due to other complications than fibroids (adenomysis, malignant growths etc.)
I would like to hear some more stories about success or failure on this forum, and would like to encourage more women to at least entertain this option.
Anyway love this forum, but its also time to find real options!!
I am new to the site and was happy to find some posts from women considereing UAE. My doctor is telling me the same thing...it's not always effective and 50% of her patients end up with a hysterecomy anyway. I have multiple fibroids with heavy bleeding/anemic and alot of pressure....many trips to the bathroom each night! ugh...My largest fibroid is around 6 cm. and i am the equivalent of an 18 week pregnancy according to her. She is saying that it would only shrink my uterus 50%. I am hearing more and more that doctors are quick to recommend a hysterectomy due to 'cash flow' so it's hard to make an informed decision that is best for me.
I received an abnormal pap smear results recently and had a colposcopy last week....pending results. If it does turn out to be dysplasia, does anyone knowif this would interfere with making me a good candidate for UAE?
I'll continue to look for posts on this topic and appreciate all that I have seen so far. It's so good to know I am not alone in some of the confusion and feelings I am having!
I truly hope that the colposcopy will show no further problems. However, if your results come back showing additional problem cells, I highly encourage you to check out our Cancer Concerns forum. I'm not saying that you have cancer ... but the gals on that forum really are the experts on these topics. Many of them have been down this road of bad paps, colposcopy, LEEP, etc. Here is a link to that forum:
UFE or UAE are successful in many cases, but they first have to rule out any malignancy, I got the results back from an endometrial biopsy = negative! That is the first thing to do. Then they have to do an MRI to verify the types and locations of the fibroids. Most of the radiologists try to avoid pedunculated fibroids(those with a stem) since they tend to die and drop off. Also they need to see whether theyare subserosal (because they too can die and be "expelled").
I just got the results from my MRI, I have a small stem fibroid (only 2cm) and some small subserosal, but lots of others (report says too many to count :-) some 6cms.
I have to wait two weeks before my appt w radiologist, still crossing my fingers that UFE can be done.
Good luck in finding your best option!
Thanks for the infor Aine,
Congratulations on the good report on your biopsy. I am anxious to hear if you get the thumbs up from your doctor for UFE. I am researching it currentlyand am more and more convinced that I want to give it a try. I find out my colp results on Tuesday. If the results are good, I will begin the process with the interventional radiologist that my brother in law recommended. He is an ob/gyn.
I noticed that you are from NJ. I am as well. If will be looking into a group in South Jersey and can provide you info if you are interested. I did find an OB/GNY affiliated with Robert Wood Johnston who is a big proponent of UFE but she is not on my insurance plan unfortunately.
Nice to know another "jersey girl", I have lived here for 14 years but grew up in Ireland.
I have an appointment with the doc at Robert Wood Johnson in 2 weeks. I also have an appointment w a doc at Cornell (his office has performed 5,000 ufe's ? (if that is possible???)
I see you are in south jersey, University of Penn also has a good ufe group... maybe you could see if they are covered by your insurance.
I am in central jersey, so would work out if you are setting up a group.
I am definately keeping my fingers crossed. My MRI came back with a 12cm uterus vs. 16 cm on the ultrasound, I believe the MRI tends to be more accurate.
Thanks for the info about Robert Wood, Philly and Cornell. I am also 'central jersey' so to speak...live in Hunterdon and work n Somerset. I also contact Robert Wood UFE area and was quite impressed. I would be intereste in any info you could share about the Phillyand Cornell UFE groups. I am willing to travel. Am currently in process of contacting an interventional radiologist in Atlantic city, upon recommendation from a familymember who is a physician. Again, need to know if he accepts my insururance. I'd be happy to share any info with you as well.
I found out this a.m. that my colposcopy biopsy results were 'normal'. I am quite relieved. i have requested a copy of my report as my 'new' doctor doesn't go into much detail. I can now move on and determine if I am a good UFE candidate.
Good luck to you with your appointment and please let us know how you make out.
Hi Lp and all ladies!
So I went to see two specialists in UFE. Had an MRI of pelvis done (before you go for one, make sure that they ask for certain information- or ask me :-)
Both specialists said I would be a very good candidate and there is a success rate of close to 95%. You are in the hospital for a max of 24 hours (but some women go home after 6). Then you need 4 - 8 days to recuperate.
Best of all you get to keep all your parts....
I am thrilled with the idea of trying this. If it fails, I can always go back to the TAH!
I will keep you posted. Looks like I will schedule in early April (work, weddings... getting in the way). Please do not hesitate to ask any questions, I feel like I am almost an expert on this particular alternative.
Hi, I also am going to opt for this procedure. I am scheduled for the 25th of Feb. I would love to hear from anyone that has done this already and what kind of results they have had. The only thing that gave me pause.... was the idea that it could send me into menopause quicker. My uterus is at 20 weeks so its time I do something to regain my life. Bathroom breaks, lower back pain and protruding belly is enough! I started also having bladder spasms close to my cycle. Not much fun, and I have given up coffee and cut way back on pop etc.
So anyone with the scoop on this that has done this surgery please GIVE me the scoop! Thanks much!
there is alot of information on this site if anyone wishes to check it out.