New here,scared and boggled.

Hi there,I am so glad to find this site tonight of all nights because my mind has been going around in circles.
I saw my consultant this evening and after sixteen years of living with endo I have finally been offered a hysto and although every time of my adult life I have suffered and wished for the day to be offered this I now have the ultimate choice and am scared stiff.
This is it!!! I really don't know how I'm supposed to feel,I'm relieved that it may well be the end of endo,but also I'm Worried and confused of a whole new world out here.
Just by looking around this site though,I know already I have found the right place to be tonight and would be so very greatful for any words anyone can share to ease my anxiety that I am feeling.
Thank you for taking the time to read this.
Helen.

Hi Helen,

Welcome - I'm so glad you found Hystersisters!

There are many women here who have suffered with endo, just like you. It's such a nasty disease. I can understand your anxiety about having a hyst, even if this might bring an end to your battle with endo.

I had a TAH/BSO just over 2 years ago, primarily due to severe stage 4 endo. I was 46 at the time. It was not an easy decision for me either because I knew there was no guarantee that I'd be endo-free forever, even after a hyst. Many women do very well and never have endo again after their hysts. But others are not as lucky and it recurs. I'm doing just great now, but it took awhile for me to fully recover. I have also learned that I can't take estrogen without having some of those familiar "pains" return. So I've been off estrogen for the last 9 months.

Since you've had endo for many years, I'm sure you've done your research. Can you tell us a little more about whether you've tried other treatments? If you do have the hyst, will you keep your ovaries? We'll do our best to provide support, whatever your plans. Sending extra hugs your way.

Beth

Good morning Beth,thank you for taking the time for me.
I started my periods at the age of 11 and from the start,always suffered pain.
I had my first lap at 18 and was diagnosed with endo and was sent home with just a leafelet.I went on a variety of pills for a few years and by the age of 21 had my second lap and was told that if I wanted children I was to consider this within the next few years.
I Have 2 children, one in 1993,the other 1998.
my treatment have over the years included pills,danazol and medroroxyprogesterone,the latter being my main for years now.
with the treatment I have tried, I have always still suffered pain due to the ligaments on my right side of the uterus being damaged,so my consultant suggested enough is enough and is taking everything apart from my left ovary to stay as my hormone factory.
This is what I want and the time has come which I never thought would,so as you could imagine I do feel a little overwhelmed by everything today and just need my mind put right and need to come to terms with this before I get my date.
I have read a few posts and I know I could get some sound advice here,I feel at home already,I suffered endo without knowing another soul with it for support,but now I feel I'm not alone on this one.
Thank you.
Helen.

If its any help at all please feel free to read my story

http://www.hystersisters.com/vb2/sho...hreadid=129558

http://www.hystersisters.com/vb2/sho...hreadid=129559

endo I have come to realise is a lonely disease . I mean people are often quick to judge because the endo victim looks perfectly normal outside yet may be very sick .

If I collected a dollar for every person who snipped aboutmy needing a hysterectomy or being on pain meds ,or not being able to confirm if I could be present at a gathering ( because I might get sick suddenly ) I would be rich .

mei

I am going to the Dr. today to discuss the hysterectomy and set a date. I know how you feel, wishing the appointment would hurry up and get here and now that I will be seeing him in 3 hours I am nervous as all get out. It's a big decision and I promised myself that I would not self doubt but here I am. Know that you are not alone and would love to hear from you anytime.
Hormone Hazel

Good evening to you all and I hope you all feel good tonight.
Well I have just received news of my date which will be the end of april and after a sleepless night and a lot of research I think I feel a little better today and made an appointment with my gp.
Now is my time,so Iv'e ordered the book package and away to prepare it is for me....I really don't know where to start so I am looking forward to getting my package as there is a lot to take in isn't there?!?
Love to you all
Helen.

Hi Helen,

Yes, once you make the decision to have a hyst there is a lot more to think about! Be sure to check out the series of Pre Op articles we have here at this Hystersisters link:

Pre Op Articles

Be sure to update your profile with your surgery date too!

Beth