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I have just come back from an appointment with my dr and I can't stop crying. I have a small fibroid (3 cm) in the lower right side of my uterus. I also have heavy bleeding and tons of clots. A trip to the bathroom during a visit from Aunt Flo leaves behind a crime scene. Am now on iron, but have been anemic. For the last month, I have had constant pain very low (in the middle of my backside) that radiates down my leg. I have had back x-rays, which were fine. Am now on anit-inflamatories, muscle relaxers, vicodin and physical therapy (no help at all--I feel worse after). My physical therapist did think my pain was coming from my pelvic floor.
I have been to two docs who have basically ignored this pain
and assured me it cannot be from my gyn problems. Has anyone else experienced this? Can pain come from the symptoms I have?I can't live with this pain much longer and have no idea where to turn next.
As far as I know small fibroids don't cause pain. The large ones can inpinge on other organs and cause pressure and pain.
I've been on all the drugs you describe and go to PT for neck pain- due to my upper spine. I can tell you from that experience that Xrays of the spine aren't totally useful. In my case an MRI was needed for proper diagnosis- in my case it's degenerative disk disease and "bone spur" due to arthritis in the neck. (cervical spine). To me, (no medical expert) pain radiating down a leg sounds like pressure on a nerve.
Did they mention an MRI? What types of doctors did you see? What techniques did the physical therpist use? Did they use ultrasound (for inflammation) or use the traction machine for the lower back?
You might want to go to webmd.com and search on back pain to see what you can find.
Yep--done the MRI route. Nothing was seen. My therapist will be using ultrasound today. She wanted the o.k. of the dr. New research has show ultrasound to increase cancer growth and she wanted to make sure the fibroid was not cancerous.
Thanks for your input. I appreciate it more than you will know!
Forgot to mention the drs I have been to--an internist (who has always handled my care) and my surgeon, who helped me in the past. Would a gyne help, or would I be wasting my time and theirs? As I mentioned, I'm kind of strung out right now and don't want to bother another doc if it's not necessary.
I'm not asking for a medical opinion, just your valued experience.
If two docs say the pain is not coming from gyn problems, I'd say probably not. But I thought you were already going to a gyn for fibroids? If so , you might ask about a "pelvic pain specialist."
The internist ought to know whether to refer you to another type of doctor- so try asking for all the 'possibilities" that might expalin your pain. In my case, the specialists I would see because I've had nerve pain would be either a othopedic surgeon or nuerosurgeon, BUT not for surgery! The would inject antii-nflammatories and other drugs into the spine. But my current treatment is working, so there's no need to go that route.
I hadn't heard that ultrasound increases cancer growth. I don't have cancer, and even so , the ultrasound was only done about 3 times in my PT. They have since switched to massage in its place. It's highly unlikely that your fibroid is cancerous as I'm sure you have learned.
By the way , which muscle relaxant are you on and at what dose? I learned from my next door neighbor (a doctor) that the stuff my PCP prescribed -Flexeril- is rather useless. Another doc I met in the ER when I had a bad reaction to some meds my doc had prescribed told me the same thing about Flexeril. Talk to your doctors about alternatives if you are on it and it's not helping.
I am just beginning this process. Just had my ultrasound yesterday. Won't get the results for about a week. I currently have the same kind of pain you do. A good friend of mine had her hyst. last October. Same pains we have. Her ultrasound showed nothing but when then got in they found over 15 small fibroids!!!! I'm currently on Tylenol 3 for the pain but it doesn't touch this pain.
It helps having other women who I can "talk" to! Thanks to you both for your ideas. I am on Skelaxon as a muscle relaxer and vicodin for pain. My hospital has a service where I can call a nurse and talk to her about my problems. I called and explained all to her, and she told me I needed to try another doctor, so I am. I have an appointment June 4th. She told me I needed to be assurative and make sure I got my symptoms across to him.
She thought that my excessive bleeding and clots were reason enough to keep trying. So, I am. I am scheduled for a bone scan tomorrow and a biopsy on a 1.2 cm breast nodule. Kind of scared--I am a breast cancer survivor, but I will get through this.
TeresaLynn, I was also on Tylenol 3 and it did nothing for me, either. Like you, I am new to this world and am trying to make my way through it as best I can. By sticking together and sharing we will get through.
I have a small fibroid too (not quite 4 cm on my right side), and I am experiencing similar symptoms as you. I also have very heavy periods with lots of fist-sized clots, and I'm anemic because of it. For 2 of the last 3 months, I've had breakthrough bleeding mid-cycle despite being on BCP to try to regulate my cycle. It sounds like my pain isn't as bad as yours, although it's in the same place (lower back and right leg). I'm muddling through with OTC tylenol and motrin, plus the trusty heating pad.
I offer the following information to tell you of my experience, not to offer a medical opinion. Of course, check with your doctor.
My Dr. said my fibroid is probably just below the inside wall of my uterus (submucosal), and it's probably what's causing the excessive bleeding. The fibroid is at the top of my uterus, and it's sort of tugging/weighing down my uterus...I have one of those funny "tilted" (retroverted) uteruses. So the tugging is probably the cause of the backache/leg ache and abdominal pressure I feel. I also think that when I have my period, my uterus is trying to do it's cleaning-house thing around this golf-ball size obstruction. The uterine muscle has to work harder, which means serious cramping. Last time around, the cramps woke me out of a sound sleep.
I don't know if my all pain problems will be solved after my surgery, or if I may have more going on inside than one small-ish fibroid. But seeing the messages from other women on this site give me hope. Good luck to you.