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Ok, here goes... I had a LAVH last June. I have had many problems since. Cysts back on the only ovary I have left, granulation tissue, kidney stone, you name it. I was almost convinced that I was crazy till I switched doctors. Anyway, it seemed that my problems were simply adhesions and I went for Lapro again and laser of the vaginal cuff, this past week.
My new Dr. completed the laser but stopped the Lapro surgery and explained that my body would not allow him to enter the abdomen Laproscopically and that I would need to reschedule my surgery for another time. That I will miss more work and be in the hospital for a longer period of time.
He explained that "something" happened during my LAVH, and that I had either had an infection or bleeding and my body actually did what it was supposed to do to protect itself. It "sealed" off my abdomen. He said that he could have forced his way through, but it would be too risky and it might injure one of my organs, as they all seem to be real close buddies now.
This is a new one on me and I have not seen any similar posts on this forum yet.
Has anyone ever encountered this?
I am worried about what actually happened and what he will find!
I had a TAH in Feb./03...I kept my ovaries, they took everything else... I went for aMRI for my back and the radiologist that looked at my pictures noticed a mass on my left ovary...That was in Dec of '03... I immediatly contacted my GYn per request of the back specialist and she set me up for more Lupron injections to try and shrink the mass... They weren't sure if it was a cyst or what but it did have some abnormal tendencies under ultrasound...
My gyn that did my hyst and I decided that I couldn't stand to go through Lupron again and I didn't have much luck with it in the past so we decided to go in to remove the adhesions, and ovaries. Well, the day of surgery when she went in via Lap she couldn't get to anything... my cavity was blocked off to... Plus my intestines were adhered to my abdominal cavity from one side to the other...Well she closed me up and sent me to a Specialist which was the best thing ever... My gyn and I have since had a falling out... But the specialist has been wonderful... He did the surgery via Lap even though it took about four hours longer than if he would have just cut me open.But then that would just cause for more adhesions.
I had the last surgery at the end of Feb... and I am feeling much better... I had some complications, and my post op was no t much fun but I have had great luck with HRT and as the days go by I know I made the right decision... I can still feel some pulling but it is nothing like what I had...
Hang in there, you are not alone. I went in for a TAH in April after living with endometriosis for ten years. The gyn had a general surgeon assist him as he thought the surgery might be a little more "involved" than usual. Well, he was right.
After opening me up (they used a low, side to side incision), they found the bowel attached right under the muscle and they described everything as "concrete." After several attempts to enter the abdomen to do the hyst, they finally decided that it would be life threatening and stopped the surgery.
I have been referred to a gyn/onc surgeon who will do another surgery (probably in August) for the hyst. You may want to have a second opinion with a gyn/onc surgeon. They are used to dealing with these difficult surgeries. The other thing that my gyn/onc said is that he would take everything, including my appendix so there would (hopefully) never be another need for abdominal surgery. Obviously, given our situations, further surgery in the furure would be even more difficult. Originally, I was doing to try to keep at least one ovary but what he says makes sense.
Hope this helps. Feel free to contact me if you wish.
I wanted to let you know I am 30... I just turned 30 I was 28 for my first surgery and 29 for my second... I heard the same things from my drs... Actually if the truth be told my first dr was told by me and DH to take everything... She made the decision that I was to young to have my ovaries removed... She felt that she was able to remove the cysts, and endometriosis that she would give me at least ten years...
Well, not ten years but ten months passed and I started having some pains, cramping and problems with BM I then had an Mri for my back...And they found by chance a 6x10 mass... I went to her and she was still hesitant to admit that the cyst was causing the pain. My dh and I finally talked her into at least looking closer at the cyst becuase my path report from my TAH showed precervical cancer cells, I no longer had my cervix but I was still worried that this mass was something to worry about...
She did go in but like you she closed me up with in about 20 min...Stating that it was to difficult for her... I went to see a specialist at the Univ. Of Fla... He was terrific..
I just wanted to let you know so far I have not any problems from the HRT... That I can' t handle anyway
What a coincidence that we have the same name. :0)
What do they plan to do with this next surgery? They told me that they will do a long vertical incision and then work down from the top through all the endo/adhesions. I go back to see the gyn/onc on Wednesday so I'll know more then and I'll let you know what they say.
I just turned 36 this month. How old are you? I've been fighting this battle since I was about 25 years old. I had a large fibroid removed 7 years ago and then another surgery four years ago to "clean things up" so we could try for another baby. At that time they said it would give me another 3-5 years. Sounded ok at the time but I had no idea things would become so involved and serious. If I had known this would happen, I would have probably had the hyst 4 years ago. Hindsight is always 20/20.
It's unfortunate that you can't take hormone replacements. Have you asked about the bio-identical hormones? I wonder if they would have the same problems with the clotting disorder that you have. Just a thought. Glad to hear that you have a great doctor now. That makes all the difference in the world!!
Thanks for the reply. I'm a little older than you are but have had similar experiences with doctor's saying that they would try to keep the ovaries. After this last surgery, though, there is now no doubt that they have to go. I have had large endometriomas on both of them in the past and it's just not worth it.
How scary for you to have had that large mass and not know what it was. I'm so glad things turned out ok. What a relief...
I can't wait to have all this done and over with. Waiting to heal from this last surgery just to have them cut me open again has been really difficult. My blood levels weren't the best either so I've been taking LOTS of Iron and they plan to give me shots of Procrit to increase blood production prior to the surgery. Sounds like loads of fun. Ha ha.
Glad to hear that your HRT is going well. What are you taking? My gyn suggested the bio-identical HRT. Due to the endometriosis they will give me some Provera after surgery to help get rid of any that they may have missed. I'm not sure how long I will have to wait before starting HRT.
Thanks so much for all the support and info.
Keep in touch,
You are a younger than me. I am so sorry that you had to go through this so early.
I started early with kids, so it was no suprise to me that any problems would start early too.
I had a catscan last month because i was rushed to the hospital in pain. My Dh did not know what to do, as I had never been in pain enough for me to tell him to bring me in. I have a very high tolerance level. That is when they decided i must have passed a stone. I cannot take the contrast as I am highly allergic, so they did not say too much else. I have not had an MRI since my allergic reaction a few years back.
You must have a lot of faith in your doctor now. How did you end up going to Florida for the Doctor? I noticed that you were from Georgia.
Your dh sounds like he has been very supportive throughout this. It is great to have good dh's.
Please let me know how you are doing, it seems like so much to face. I don't know about you but somedays I am at my wits end.