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anyone had a misdiagnosed cyst? anyone had a misdiagnosed cyst?

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Unread 10-14-2004, 05:10 PM
anyone had a misdiagnosed cyst?

My whole hyst came about because I had a large cyst on my ovary. Doc said we had to take the ovary and might as well take my uterus as well because of symptomatic fibroids.

Doc thought cyst was either an endometrioma or a cystadenoma. Turned out to be a hemorrhagic corpus luteal cyst which had ruptured and resolved before surgery.

Now, I know that ultra-sounds are not the ultimate diagnostic tool, but how often does a functional cyst get misdiagnosed? Doc is framing it as "good news" that I got to keep the ovary , but I'm feeling very unsettled because I'm not sure I would have had the hyst had I not been told that my ovary had to be removed.

Shouldn't this have been one of those watch and wait cases?

Has anyone else had experience with this?


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Unread 10-14-2004, 06:39 PM
anyone had a misdiagnosed cyst?

I have ovarian cysts that have been wrongly diagnosed as cancer, fibroids, you name it and have been almost in your shoes several times. I guess it isn't that uncommon. I finally had my hyst for problems unrelated to the ovaries, but with as much trouble with cysts as they caused over the years I bet I would have been in your place not too long after if it had not been for severe bleeding in the uterus.
Unread 10-14-2004, 07:44 PM
anyone had a misdiagnosed cyst?

Hi Maggot,
I had a cyst misdiagnosed , for 4 years my ex dr was happy to check on my cyst by ultrasound and pass it off as a chocolate cyst (endometrinoma) she put me on Birth control pill in June this year lucky for me it didn't agree with me so I went to my GP to change to another pill, he is only my new GP so when I told him about my cyst he got very angry that it hadn't been investigated and told me if cancer was present the pill "could" make it grow faster!!!!
You could imagine how scared this made me so he referred me to my current Gyno who imediately booked a laparoscopy , because I've had so many surgeries my abdomen had so many adhesions that he couldn't do the lapracope, this is how I got to my Hysterectomy , the cells in my ovary were pre cancerous so I was lucky , sorry this is so long but thought needed to tell.
Have you had a laparoscopy yet?
Also meant to add I had other problems which having the hysterectomy fixed , basically it was all had it!!
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Unread 10-14-2004, 09:41 PM
anyone had a misdiagnosed cyst?

I had a borderline tumor that was thought to have been a cyst. i had to have the ovary it was attached to as well. the coat was so thin it probably would have burst if it was kept inside for a week or so.
it ended up being larger than a babys head.
Unread 10-14-2004, 09:44 PM
anyone had a misdiagnosed cyst?

Hi Maggot

I guess in hindsight they should have done another ultrasound in 6 weeks.

This is what happened to me, but they still got it wrong!

I had several cysts in my first ultrasound, and a complex one on each ovary (complex means not simple functional cyst) The said at that time they could both be haemorrhagic cysts, or something else.

2 months later another ultrasound - the complex cyst on my right ovary had gone (just like yours) but the one on my left had grown (not like yours). They (3 specialists and GP) diagnosed endometrioma.

I opted to have everything removed - have risk factors for both ovarian and uterine cancer.

Turned out I had pre-cancer! Not an endometrioma at all!

But now I know I will get no more cysts!
Unread 10-15-2004, 12:40 PM
anyone had a misdiagnosed cyst?

Thanks, everyone. This is a really good lesson on how medicine is more of an art than a science in some ways, and how you *must* keep yourself informed and take charge of your own healthcare.

The surgery has been done and nothing bad was found, so I am thankful for that. But I'm still confused and irked with my doc. Looking at the operative report it says: "A symptomatic fibroid uterus, menometorrhagia and right complex adnexal mass, left hemorrhagic corpus luteal cyst which has ruptured and has resoved. Consequently there was no oophorectomy performed." Doc had said the (probably chocolate) cyst was on my right ovary. In recovery he told me it had been on my left ovary, but my ovaries were stuck together over on the right side (???),so it looked like it was on the right ovary. Unfortunately he doesn't remember any of this now.

I guess I could drive myself crazy trying to figure this out and should try to focus more on the fact that nothing serious was wrong.

Hey, you Australian girls.....Why are you calling me Maggot? Was that a typo, or did ya really think that was my name? (I *have* been called that by my siblings).

Unread 10-15-2004, 02:00 PM
anyone had a misdiagnosed cyst?

I had a tubal pregnacy and had to have my tube removed and my ovary repaired, two weeks later I was in the ER room and then off to surgery the next day to have my ovary and uterus removed(when in there they removed my appendix cervix and part of my small intestine) . Don't you think they should of seen the problem with my ovary after the first surgery? Still wondering about that. Sometimes I feel i had to go through so much xtra pain for no reason.
Unread 10-15-2004, 02:47 PM
anyone had a misdiagnosed cyst?

SORRY Margot yes typo
must be the brain fog
Unread 10-15-2004, 05:33 PM
anyone had a misdiagnosed cyst?

OMG - sorry Margot - I just copied WendyGai's post!!!!

Unread 10-15-2004, 05:44 PM
anyone had a misdiagnosed cyst?

Hi again Marrrrrrgot

Just checking on something - you have a complex cyst on your right (or is it left) ovary, but your DR didnt remove it? Is that right? He didnt check/remove a complex mass?

I had my surgery for a supposed endometrioma, described as a complex mass (ie chocolate cyst). Even after surgery she said it was an endometrioma based on visual appearance (I have a photo of it)

But it wasnt that, it was a cystadenoma, of which 40% are malignant (cystadenocarcinoma). I dont like to look at the photo now I know that I am actually looking at a pre cancerous tumour that was inside me!

Given the confusion, I think your Dr should get his memory fog in order and remember what has happened. If he cant, ask for another ultrasound so at least you know what has happened.

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