treating endo after hysterectomy...

help.....what are you using to keep your endo from coming back or to at least slow it down and ease the pain

I had my hyst 6 months ago and just found out two weeks ago the endo was on my bladder and i had adhesions...im still hurting and i dont know what to do...

any advice would be greatly apprechiated
what have you tried? im feeling like these lap. surgeries are just making me worse

thanks and good luck to you all

Well as the Endo has come back the Dr's may suggest the removel of your Ovaries, as these are the things that are producing the hormone that Endo feeds on to grow.

If my Endo comes back that will be the next step for me (they cleaned mine up and said it was not a 'sure fire' way to cure it, but it works sometimes)
They decided I was too young to go into menopause at 44 and I'm not a good candidate for HRT, for some ladies the problem dosn't come back for 2/3 years, but obviously yours seem to be very active.

If you need to go down this route they can be removed with (yet another) lap and the recovery is about aweek to 10 days.

I hope you get this problem resolved soon.

s

i had severe endo and had o TAH wiv 1 ovary removed, he said my other ovary was clear from endo so whats the likelihood of it returning??

Candypops,

For some the Endo never does, but there is a chance whilst you still have an Ovary left behind.

As I said before it can take 2 or 3 years before it comes back, but in some cases (don't know the stats) you are Endo free.

I too am on the wait and see game on that score and hope they have cleared it all. If they miss one spot with Endo on it it can re-grow from there.
This is probably what has happend with manwhatever77 and they missed a hidden spot of Endo so it had a chance to regrow.

omg well i cant got through being cut open again no matter what.

thanks for your replys have any of you tried depo-provera and if so did it keep the endo away

ive heard alot of things about weight gain and bleeding side effects from depo but my uterus is gone so i guess i dont have to worry about bledding i just dont want to hurt

I am six weeks post op on Thursday. My doc would not put me on any harmones. She is waiting for at least 3 mos. Said it could make the endo grow back if I took hormones.

HI Manwhatever,
Before my surgery I was on Depo provera and that worked from 12-03 until 8-04 Then I had major problems again and finally was put on the ortho-evra patch which (luckily) worked really for me this time. The last time I was on it, it only worked for about 3 mos.

Now that I've had my surgery I too was told no HRTS or Estrogen for 6 months. I haven't experienced any menopausal side effects yet. I plan to see hormonal specialist after the first of the year to see what they recommend I do to prevent the Endo from coming back. I've read that your immune system can make a difference with how your body responds to the Endo too, and I'm sure I have immunity issues to correct too and they can help me do that.

Good luck to you!! Sorry to hear you're trouble again.

's

Hi, you real only chance and best bet for pain relief is excision surgery. It is the only proven way to fight this disease. Depending on the experiance of the doctor, and the extent of the endo, pain relief rates are upwards of 75-80%. Endo is not curable and has very limited succes with drug treatment of any kind.
It makes its own estrogen, so you do not have to have ovaries for it to return. A hyst will not cure it even one with BSO. You can get more info on excison surgery and other options at :

http://www.endometriosistreatment.org/
http://www.endocenter.org/


Be blessed,
Carrie

Hi Everybody,
I had a TAH in June 2000 for endo and severe adhesions. I kept my ovaries. Within 1 1/2 yrs my endo started to come back & the Dr put me on hormones - I tried depo-vera, but had a bad reaction to it. In May 2004 I was doubled over w/pain and figured a cyst burst - i went to the Dr the next week (I should have gone the next day) and we decided to take out my ovaries. On August 5, 2004 I had my ovaries taken out and it was the best decision I've ever made. From when the pain started in May until surgery I had pain every day. I was also having lower back pain and after my surgery it went away (apparently the adhesions where connected to the back).
I have felt great and am glad I went ahead and had the surgury. I have three incisions on my lower belly, one for c-section, one for TAH and this last one for BSO. When I had my TAH I didn't think the endo would come back, but the Dr said it can. I am now on the climara patch and am doing fine on it.
Take care.
Ellen