I am not in your position, but wanted to lean support to the upcoming surgery you are facing.
I've had the hysterctomy and then two years later my ovaries removed, so as for as the surgery you are facing.. that I do know about. What way are you having the surgery done?
Did having the gene make you decide to have the surgery?
What made you decide to take the test? My insurance did give me the go ahead to take the test, and I am stalling... just not wanting to take it right now.
I hope your surgery/recovery is uneventful as mine was... just remember to rest, rest, rest!
I to tested positive for BRCA 2 as well as BRCA 1. I had my testing don Sept . 2003 and had propholactic mastectomies and oopherectomies in Dec. 2003. I was 43 at the time. Best thing ever did. I basic took my life back. I am now going through reconstruction surgery. My hyst and oopherectomy were done laproscopically vaginally assisted. I feel better now then I did prior to the surgery. I don't have that constant questioning going on "are they going to find something" every time I go to the dr. Good Luck!!!
Thank you so much for you advice. I decided to look into getting tested for the BRCA 1 and 2 genes because my mother had breast cancer at 42 and my grandmother died of ovarian cancer. The doctor said that it really should be my mom to have the test, since she is the one that had cancer. Long story short, she tested positive for BRCA 2 gene and then I was tested for it and it turned out positive. My mom had her ovaries and tubes out last week, and I decided to have a total hysterectomy because I was thinking about facing years of taking hormones. I am not sure what to do about the threat of breast cancer. I am seeing a specialist for that next week. Thanks again!
I guess I need your help in learning a bit more about the BRCA genes. I know there is BRCA1 and BRCA2, but I do not know what each gene means, or what level of cancer risk each carries. I do know that some people get phophylactic mastectomies and hysterectomies.
My question is: Is cancer a definite eventuality for anyone carrying those genes? Or is it just a very high risk? If so, what percentage risk does each carry?
I was diagnosed with stage 3c ovarian cancer in 2003, had six full dose chemo treatments, and twelve taxol only. Right before I was diagnosed, my two second cousins had been diagnosed with breast cancer and had mastectomies and hysterectomies. They were tested for the BRCA1 gene and had it. I tried to get testing through my medical group, but they vetoed it. If I had gotten tested, I would likely have been diagnosed with my ovca nine months before I was. After changing medical groups, I had testing just a few weeks ago. I turned out to be BRCA1 positive also. I am now scheduling my mastectomy and reconstruction for this summer. I have two daughters, so I am very concerned with what will happen with them and how to aggressively be preventive with them so that they, I pray, will not have to go through what I have gone through.
I know what you are going through with respect to your daughters. My daughter is 20 years old and has tested positive for both BRCA 1 and 2. She is an adult now so I only have input for her. Talk to your drs and see what they would recommend. All of my drs that I have that are helping me deal with this are all females so I trust their judgment and advice. No one in my family was diagnosed with either breast or ovarian cancer prior to the age of 40. Check your families history. That will help in the long run. The dr. advice to her was to start mammos now to get a baseline and continue every year along with monthly SBE's. They also told her to live her life. A lot can change in the area of medicine and that hopefully she won't have to do anything. They also told her to have a family if she chooses and that her life is just beginning and strive for what ever she chooses to do. Testing positive is not an automatic death sentence and that it is just letting her know that she needs to deligent about knowing her body. They also told her that if at a later time she wanted to have the propholactic surgeries they would do that for her.
Good luck with the mastectomies/reconstruction. I am in the first stage of my reconstruction right now but have run in to some complications (tissue expander ruptured) so I have to have surgery again prior to the implants. I don't regret my choices. At this time, I am or will be the only female in my family to live past the age of 56. Good feeling.
It is good to hear from someone else who has gone through this. Most of the breast cancer in my family was at a young age(around the thirties). I actually started having my ovarian cancer symptoms at age 28, although I was not diagnosed until I was 31. It is tough to know how proactive to be with my daughters. I want them to have normal lives and not be rushed into parenthood for fear of ovca taking away their fertility, but I also want to spare them the pain that I have gone through. I am waiting a few months before my surgery so that I can talk to more doctors and be sure, but I feel good about being proactive about this. I hope that your surgery goes well!